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Thank you PBR. I have been in touch with the urologist that she is booked out months in advance and so I’ve written to her (very detailed) extensively. The response that I received was ‘ this isn’t...

Thank you both. It’s something that I’ve had to deal with on and off. If the pain was not so intense I would not be as desperately searching for an answer. The very odd thing is that some days I wake...

Somehow, there is this negative pressure buildup with my SP tube, extension tube and the leg bag set up.

I've tried buying the vented leg bag set up.

I've tried to add additional air into the...

Exactly. I’m very frustrated and downright angry at how I’m being treated and Mgh. The best I got after it ultrasound was re-think that prolonged antibiotic use is causing your extreme bloating and...

Thanks for the support. Every little bit makes a difference and I know that I’m not alone with these issues. The pain is what drives me over the edge. I have asked about SIBO multiple times but have...

I have not tried these.
I'm going to purchase some right now And overnight them.
In the meantime, is anyone Jerry rig something for the time being. i.e. drilling a small hole into the extension...

This is very helpful. I’ve been fighting pseudomonas for over a decade and did not know this. All of oregano has been effective but this is one tricky bug. When you’re referring to a scan that you...

For what it’s worth, I have yet to find any solutions to this ongoing severe bloating problem. I have tried with diligence call
- Iberogast
- FODMAP with dairy and gluten and also gluten and...

What is the highest quality disposable drainage bag?

Over five years ago, I was Recommended the Urosafe disposable bags. They have the anti-reflux Device and for a while worked well.
...

Wrists. I don’t have any functional wrist movement. My fingers are stretched out daily. What I’m curious about is that if there’s a way to naturally find ways to create wrist stability.

For...

I'm not sure if this is a rehab related question or care, but I've noticed that some higher cervical injuries (with no wrist movement) sometimes have contractures while others have stretched out...

Incredible.
I probably don?t need to say it but your transformation is amazing. You must feel very accomplished and your hard work and perseverance is shown. It?s clear that I?m sure you?ve worked...

Did you find any relief? Still on the search myself.

I am so sorry. He and yourself have contributed so much this community. You've always been there for so many people and it saddens me to even read any of this. I'm completely bewildered – at this...

In terms of diet – I am gluten-free, lactose-free, on a low fodmap and keeping sugars low i.e. even watching pineapple consumption. This is not fun but beats pain. However, still having symptoms...

I’m still on the hunt for the solution.
My diet could not be any more restrictive without hitting malnutrition.
Seeing a variety of specialist – but something for me is connected with bloating, low...

C4/5. Incomplete. I’m not against a colostomy; I thought about it and entertain the possible solution. However I have predisposition to infection and I’m not a big fan of adding additional holes in...

One would think that after a decade and 1/2 that I would be used to this but it still is mentally and physically rough for me.

Nonetheless, about my and many others personal feelings ? does anyone...

NIH budget is about $30 billion. If NIH spends $120 million on spinal cord injury research, that means only 0.4% of the NIH budget is spent on spinal cord injury. Two institutes have the...

Yes- I use Magic Bullet, MiraLAX and Dulcolax. this is the current suggestion by the G.I. physician. Although I am beginning to think that this is way too many "lax" medications and I don't like...

I have the capsules. Thinking 6am w/water. Hope to be free around 10.

THANK YOU. I will integrate your ideas. All physicians have made things just more complex and outside of the FOD M AP suggestions – most of what has been helpful so far has been found through trial...

Does anyone here have recommendations on a cleansing "clean out" that doesn't destroy your day? I don't mind four hours. However, would like to minimize

In terms of "action"; was it two hours of movement or more like four? Have had pretty much nonstop G.I. issues and do everything I can to reduce the pain, aberrant bloating and constipation. Never...

Hey thank you. I picked up the tablets. If you had a 7:30 AM program – what time would you take them to ensure or reduce incidents of incontinence?