Search:

Ty sir, big help!

No, I haven't really looked elsewhere until now. I had a lot of faith in Dr. Goldstein but he told me himself his team lost 3 people this year and isn't running optimally. And that was blatantly...

Ty guys! I don't have the resources to get to them I live alone and @ this point I can barely get out of bed. "Hang in there Ken, your doing great" is what I'm told. Or "I can hurt you but I can't...

Agreed! I guess when you have a neurological condition that they haven't treated or know anything about and you don't follow their broken agenda they destroy your name in the computer and keep...

Hello, C-6 Asia A Complete here currently admitted @ UMDNJ Newark N.J. I have been dealing with a Sryinx that spans from my C-2 down to my C-5 for 5 years now.
For the first 2 years I was a...

I found the surgeon's email🤙. Inbox me if you need It?

I'm not sure how u can contact them? Sry
I had the Nurse Practitioner's phone # but lost my phone.
U would probably have to go there idk.

Yes Dr. Ira Goldstein from umdnj Newark NJ. I can give you their # in a message or you can Google it. Lmy if you have any other questions no worries. I'm Ken btw.

Hi, I have a syrinx in my c spine. I've had it drained and I hade my cord untethered @ the same time in 2015. I live in NJ and got surgery @ umdnj Newark thank God. If I can be of any assistance...

Do Baclofen pumps work for people who have a syrinx above the level of injury? ty

ty, yes I have seen the infomercial about the pump.
I am looking, very diligently for someone who knows how the pumps work for people with a syrinx above the level of injury?
Does the pump...

Hello,
i have a question about baclofen pumps. Does anyone in here have 1? if so what for?did it help? Can you exercise with it? Does it make you gain weight? ty in advanced!

I have a question regarding the use of nueroplasticity and if it can play a part in recovering from sci.? In 2016 are there any Dr's incorporating this into their rehab programs or experimenting on...

I have 1 too, I've had it popped and my cord untethered. I'm a c-6 and it's @ c3. Syrinx was 3.5cm attached to the cord filling up with csf. I still have symptoms and I'm just trying to learn more...

I was doing great post surgey. Crashing off the Deccadrone (steroids ) was the hardest part. Then I used a Functional Electrical Neuro Stimulator on both sides of the lamanectomy scar, turned it up...

Alan sry i confused you and Chaz. I'm in the same situation. It sucks, mine was tethered and that was addressed as well. I heard recently that they have a pain stimulator that is very successful.

Chas19, like I said they popped mine. Don't be afraid of the surgery, make sure the surgeon is the best!!!!! I am lucky to be in n.j so I went to UMDNJ.... I got immediate relief from the burning in...

Maybe they throb?

I have no idea? Maybe they missed it? If it was attached to the cord filling up with csf I would assume the pressure pushing out would always be greater than the cyst pushing the fluid back inside?...

Chaz 19,
I am in the same boat except they did pop mine. Took 9 hours and hurt like nothing I can explain. Valium works good

Sorry to hear that! Was it your elbow or shoulder socket if you don't mind me asking?

Mine is above my injury and definitely angry after I exercise. It's the numbness that I am concerned with mostly.

Thanks guys, are yours above your injury site or at?

i have a 3.5 cm syrinx at the c3 level that was operated on jan15. it is attached to the cord and before they popped it, it was filling with csf and growing. The surgery definitely helped the nerve...

Hello,
I was wondering if anyone has a syrinx and how they went about treating it?
How much pain it causes?