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Type: Posts; User: annev308

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    I only buy unlocked phones and I’ve never had...

    I only buy unlocked phones and I’ve never had trouble setting up WiFi. Some vendors sell phones unlocked by default, some make you pay a fee to unlock and with some it depends on how you bought the...
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    Will your doctor call in labs prior to the...

    Will your doctor call in labs prior to the appointment? That way you could go and see the doctor once the labs are in.
  3. I had a tbi with my SCI and it was/is pretty...

    I had a tbi with my SCI and it was/is pretty grim. It’s worth finding a neuropsychologist (many focus on autism and adhd, so it can a challenge to find someone who works with adult TBI folks) for an...
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    I got it in the ICU after my initial injury. The...

    I got it in the ICU after my initial injury. The strain I had had the binary toxin, was resistant to flagyl and moderately susceptible to vanco, which is why I was on the vanco for so long. The...
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    I am so pleased it worked for you! That is...

    I am so pleased it worked for you! That is entirely the opposite of my experience, and this is one of those things where I greatly prefer to be the outlier.
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    Just as a heads up - if you reach out to the...

    Just as a heads up - if you reach out to the reeves foundation address for help with this whole ordering fiasco, they will send you a new order link which (surprise!) also will not work. I have...
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    PCR is Polymerase Chain Reaction - it shows tiny...

    PCR is Polymerase Chain Reaction - it shows tiny segments of DNA, and is one of the ways they test for c diff and determine what type it is. So my test results mean there is neither c diff toxin nor...
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    I spent 18 months on oral vanco for c diff. It...

    I spent 18 months on oral vanco for c diff. It started as a standard six week vanco taper and then every time something happened and I was off the vanco, the c diff recurred - thus the long long...
  9. Thread: Books?

    by annev308
    Replies
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    240

    The library of Congress daisy sign up is really...

    The library of Congress daisy sign up is really easy - it’s a form and a physician sign off, someone did it for me when I was first hurt and couldn’t use my arms - just be aware it’s about 95%...
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    Basically, Google does not support this...

    Basically, Google does not support this promotion. They don’t know anything about it and there is absolutely no internal support or awareness of this. They have no idea what is going on. If your...
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    Mine was also canceled. I spent 2+ hours on the...

    Mine was also canceled. I spent 2+ hours on the phone with google support, where they say they have no record of the promotion. I wound up emailing the Reece foundation, where someone is trying to...
  12. Thread: Books?

    by annev308
    Replies
    4
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    240

    I am not aware of any app or service that would...

    I am not aware of any app or service that would either locate or give you a free ebook for purchased physical books so I can’t help with that and overall, the news is not great.

    Years ago, a...
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    Can your doctor not stipulate that you get a...

    Can your doctor not stipulate that you get a private room and a quiet environment? I’ve had 6 surgeries and 8 non-surgical hospitalizations since my original injury and I have never been put in a...
  14. I have. I found it to be uncomfortable because...

    I have. I found it to be uncomfortable because the 100% silicone catheters are much stiffer and pokier than the latex ones.
  15. I pay a handyman. He’s not fast but he’s super...

    I pay a handyman. He’s not fast but he’s super thorough and responsible. I have also put jobs up on the student job board at the local university and gotten a good response and folks who have done...
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    I was told 1000 mg. Also, you probably know this...

    I was told 1000 mg. Also, you probably know this already, but just in case - d-mannose only works on e coli and it is still possible to get an e coli UTI while taking d-mannose.
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    I think they are going back in now believing that...

    I think they are going back in now believing that having the stent in place for several weeks will have relieved some of the irritation and inflammation and the urethra will be less swollen. The...
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    So I had to give it the eligibility page an email...

    So I had to give it the eligibility page an email address and then I got an email with a purchasing link about an hour later.
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    A clinical trial for Betadine instillation was...

    A clinical trial for Betadine instillation was cancelled due to lack of enrollment fairly recently. Which - if clinicians can’t get folks having multiple UTIs to enroll, leads me to have doubts...
  20. Thread: not plugged

    by annev308
    Replies
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    1,315

    This happened to me for the first time a couple...

    This happened to me for the first time a couple of days ago, and my urologist attributed it to exactly what gjnl suggested might be happening to you - bladder sand, only mine is washing out of my...
  21. I don’t know where you can find help but I would...

    I don’t know where you can find help but I would suggest reaching out to case management at some of the big rehabs and see if they’ve got any suggestions. Can the psychiatrist not coordinate...
  22. Thread: SCI stink

    by annev308
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    And mention that as soon as the other behavior...

    And mention that as soon as the other behavior stopped this behavior began. Patterns of this stuff matter.
  23. Thread: SCI stink

    by annev308
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    22
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    1,490

    My (very strong) suspicion is that this is...

    My (very strong) suspicion is that this is straight up harassment and you need to go to HR or legal. You are being bullied. Even if you are term, temporary, freelance or contract, you have...
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    Even if an individual has a state medical permit...

    Even if an individual has a state medical permit for weed, including growing their own, it’s not covered under the (federal) FHA, which means the landlord has to authorize the grow on a case by case...
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    Also, you can report adverse events directly to...

    Also, you can report adverse events directly to the FDA - https://www.accessdata.fda.gov/scripts/medwatch/ It has been my experience that manufacturers are fairly rapidly responsive to...
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