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What can I do to go without a pouch at all times? Im reeeeeaaaallllyyyy considering one.. I would only like to wear a ban-aid at ALL times.. I can just irrigate? Im new to this.. Will stool come out and I won't feel it? WILL I STILL KNOW WHEN I HAVE TO GO? WHO CAN I TALK TOO?
Ace???
Yeah try searching "ace" "mace" "malone procedure" on CC and Google.
i was also considering one after spending MORE THAN AN HOUR on the stupid toilet! I read a great thread once on the topic. I'll look for it soon.
Quote:
Originally Posted by MADPRODUCER
i am a quad c6c7 i love it freedom i can change my own pouch. it goes when it wants to. i always care supplies so i ca change it. it great
You might want to go to www.uoaa.org. This is the Ostomy Association's website and they have discussion boards that tons of people could help you with experience with irrigating and stuff like that. I have an ileostomy and can't go without a pouch, so can't help you there.Quote:
Originally Posted by MADPRODUCER
Jessie:friday: :bounce: :high5: :wtlftr:
mimin and vj.
I would like to wear a ban-aid.
jessie-gray i will check the board out.
Which is why I suggested looking into the procedure I posted.Quote:
Originally Posted by MADPRODUCER
No bag that I'm aware of.
:)
You had it done? Thought you was straight that way.. Thought you was talking about something else. Checking it. LMK if you find something!!
No I don't have it, but know others who have.Quote:
Originally Posted by MADPRODUCER
It's sometimes done with the mitrofanoff (bladder surgery I do have) and then it's called MACE, but can be done individually. Even Wikipedia has some info on it. Seriously just search the web.
ETA I guess it's not really popular and is usually done on children with spina bifida. Regardless this is the only thing that I've heard of like you described.