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17 Visitor Messages

  1. Not to be ignorant, but can you tell me a little about the Friend request I received from you and yourself before I approve it?
  2. View Conversation
    glad those worked out for you! good luck with your dad.
  3. View Conversation
    It's been awhile have you changed your mind?
  4. View Conversation
    yep I was holding it for you. I believe I said $350.
  5. View Conversation
    thanks breh
  6. View Conversation
    Hi yeah it's still available. Doesnt CPMC have some rehab clinic in the city? I would think they have a pt who would have some exprience with them.
  7. View Conversation
    The guy I bought it from last year said he only used it a few times and I never even turned it on s it should be practically new.

    I go to sf sporadically have no plans to now. I could meet you halfway, Sausalito or Mill Valley?
  8. View Conversation
    Ah, I cant help you there as I've never used one I was going to consult a PT. Let me know when you make up your mind.
  9. View Conversation
    I'm in Novato
  10. View Conversation
    yeah I'm in Marin and still have the empi available.
  11. View Conversation
    Joey
    let me know what on your mind.

    Oconnon
  12. View Conversation
    Joey like I said my program will not let me acitvate a friend. Ican receive meeages and I can reply.
  13. View Conversation
    I've only went to 1 and it wasn't a good experience for me mainly because the guy didn't know what he was doing.
  14. View Conversation
    Hi Joey,

    I had no movement what so all, it just suddenly happened after trying for hours every night. It takes a lot of focus of the mind and is mentally stressful. Your dad can't simply look at his foot and say move, he has to grit his teeth and really go nuts inside his mind trying to get it to move.

    Also range/touching/e-stim I think helps. Also try cold. Find an ice pack, put it on his leg, and then tell him to try to move his foot. This is something I discovered years ago after I got movement to try to get my other leg to move. It would work sometimes. Worth a shot.
  15. View Conversation
    Hi Joey,

    What the doctors say isn't true exactly. It took 3 months for me to move anything and from there the progress was slow. I still use a wheelchair as my main transportation but I"ve regained quite a bit of function as well. I recommend your dad continue to try to move things he can't. I use to just spend hours a night trying to move my limbs which I think helped make the connection.

    Also if you can get him to some program like Project Walk in Southern California that would help as well although its not cheap.
  16. I think you mean "reflexive" (ie, a reflex), rather than "reflective". Please see your forum post, which is a more appropriate place to put questions, as few people look at your profile page.

    KLD
  17. On Sept 30th, my Dad suffered a fall and damaged (compressed) his spinal cord at C3-C4. After the operation, he could shrug his shoulders and wiggle his toes, but was vent dependent. Prior to the operation, he could also wiggle his toes. My Dad became non-responsive (kept his eyes shut and was grimacing) and didn't seem to be able to wiggle his toes when asked, and even stopped shrugging his shoulders. The doctors are saying that the toe-wiggling is merely "reflective" and that he is "complete." However, in the past 2-3 days, I've been giving him foot massages and trying to move his limbs -- and he shrugged for me and wiggled the toes on his left foot. Any experiences out there?
Showing Visitor Messages 1 to 17 of 17
About Joey_SF

Basic Information

About Joey_SF
Location:
California
Gender:
Undisclosed
Occupation:
Teacher
Why did you join this forum?:
Dad - SCI, C3-C4
How did you find us?:
Googling
What do you think of this site?:
Incredible, Life Saver, Learned a Lot

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12-02-2012 05:24 PM
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10-19-2011
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