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  • Patrick Madsen's Avatar
    Today, 12:53 AM
    Patrick Madsen replied to a thread DME pricing in Equipment
    My insurance just bought me a Zx=1. Listed price from Spinergy is around 9995.00. On the sheet I signed was 22,000.00 billed with another line that...
    7 replies | 119 view(s)
  • hlh's Avatar
    10-10-2018, 09:49 PM
    My Dad had two of the waterfall cushions, and they cracked in mere months. It may also depend on your size/weight etc. my Dad was 6' 2" and about...
    14 replies | 554 view(s)
  • Patrick Madsen's Avatar
    10-10-2018, 04:20 PM
    I chose the surgeon because he's a certified hand, neuro and plastic surgeon. He did the surgery on my bum also and found him very dedicated to his...
    25 replies | 1123 view(s)
  • hlh's Avatar
    10-10-2018, 02:37 PM
    This is really great to hear Patrick. Thanks for sharing. Can you tell us a little bit how you chose your surgeon, and why the recovery time was...
    25 replies | 1123 view(s)
  • hlh's Avatar
    10-10-2018, 02:34 PM
    We also switched to the ComfortTuff cushions. So far so good. My Dad uses a Comfortuff for his elevated toilet seat, and it is in perfect condition...
    14 replies | 554 view(s)
  • Patrick Madsen's Avatar
    10-10-2018, 12:25 AM
    Yep, that's what the doc said Lynnifer.Since the op., the two fingers from the Ulnar seems to be a little more active and less numb. Daoc was saying...
    25 replies | 1123 view(s)
  • Patrick Madsen's Avatar
    10-08-2018, 08:57 PM
    Hello Everyone, Just a quick note letting you know everything went well. He didn't have to open the palm so did it Endoscopy. Was in the op room for...
    25 replies | 1123 view(s)
  • hlh's Avatar
    10-03-2018, 08:32 AM
    hlh replied to a thread Warfarin??? in Care
    You should see a hematologist to discuss it. You probably should still be on it, but you should discuss your options with a knowledgeable doctor. ...
    16 replies | 825 view(s)
  • Patrick Madsen's Avatar
    10-03-2018, 01:00 AM
    Thank You, your encouragement means a lot. Yep, gotta keep going. When the surgeon phoned and asked when I want it done; I mentioned that I'd like to...
    25 replies | 1123 view(s)
  • hlh's Avatar
    10-02-2018, 11:27 PM
    There are few things as wonderful to have as an escape from the burden of SCI ..... as music. How wonderful you have that talent. We need to keep...
    25 replies | 1123 view(s)
  • Patrick Madsen's Avatar
    10-01-2018, 11:51 PM
    Thank you all for your great advice and wishes. Sometimes it's tough to keep going after all these years. Seems this injury of ours takes a little...
    25 replies | 1123 view(s)
  • hlh's Avatar
    10-01-2018, 07:05 PM
    I hear you. Aging with SCI is not for the weak.... Good luck with the surgery. Come back and let us know how it goes.
    25 replies | 1123 view(s)
  • Patrick Madsen's Avatar
    10-01-2018, 11:00 AM
    Thanks everyone for your advice. I realize the surgery will not help the ulnar nerve. The ulnar is dead, gone. The doc said is was from impingement...
    25 replies | 1123 view(s)
  • hlh's Avatar
    10-01-2018, 09:59 AM
    The carpal tunnel release surgery is only for the median nerve - not the ulnar nerve. The ulnar nerve is the nerve that controls the pinky and ring...
    25 replies | 1123 view(s)
  • Patrick Madsen's Avatar
    10-01-2018, 01:16 AM
    Oct. 8th, I'm going in for an Endoscopy Carpal tunnel release surgery. The doc said it's a simple in/out surgery and I should be able to use it...
    25 replies | 1123 view(s)
  • hlh's Avatar
    09-27-2018, 09:01 PM
    hlh replied to a thread Vetericyn tolerance. in Care
    I don't think there are many other papers publishing well controlled studies of Gentamicin for UTI prevention. We are sharing are personal...
    13 replies | 754 view(s)
  • Patrick Madsen's Avatar
    09-27-2018, 05:26 PM
    Patrick Madsen replied to a thread Colostomy questions in Care
    They cut into your gut, so there is a hernia there already. It depends on how well the surgeon affixes the opening if there will be a prolapse or...
    124 replies | 10436 view(s)
  • Patrick Madsen's Avatar
    09-27-2018, 10:52 AM
    Also must be careful on the ulnar and capral tendons and nerves. After 45 years of a very, very active life in a chair, my right ulnar nerve has died...
    14 replies | 745 view(s)
  • hlh's Avatar
    09-25-2018, 03:57 PM
    hlh replied to a thread Vetericyn tolerance. in Care
    Yes, he uses a new foley every night. He re-uses collection bags for at least a week or more, washing/bleaching every day. There are several guys...
    13 replies | 754 view(s)
  • hlh's Avatar
    09-25-2018, 11:38 AM
    hlh replied to a thread Vetericyn tolerance. in Care
    My Dad's neuro-urologist has been using Gentamicin with her patients for many years - more than a decade for sure. Surprising to me as well, she has...
    13 replies | 754 view(s)
  • Patrick Madsen's Avatar
    09-24-2018, 06:24 PM
    Patrick Madsen replied to a thread Colostomy questions in Care
    The barrier ring is a good thing to use. We use a hair dryer to soften it up a bit so it'll form around the appliance opening better. I also use the...
    124 replies | 10436 view(s)
  • Patrick Madsen's Avatar
    09-23-2018, 11:43 PM
    Patrick Madsen replied to a thread Colostomy questions in Care
    I have a Sigmoid Loop C. No change in diet though I am aware of the foods that cause gas and either avoid them or eat 'em.
    124 replies | 10436 view(s)
  • Patrick Madsen's Avatar
    09-21-2018, 11:45 AM
    I have one of Pat's original model ZX-1. It's a bit older but no problems to speak of other than not getting much mileage out of a battery charge. I...
    632 replies | 171767 view(s)
More Activity

17 Visitor Messages

  1. Not to be ignorant, but can you tell me a little about the Friend request I received from you and yourself before I approve it?
  2. View Conversation
    glad those worked out for you! good luck with your dad.
  3. View Conversation
    It's been awhile have you changed your mind?
  4. View Conversation
    yep I was holding it for you. I believe I said $350.
  5. View Conversation
    thanks breh
  6. View Conversation
    Hi yeah it's still available. Doesnt CPMC have some rehab clinic in the city? I would think they have a pt who would have some exprience with them.
  7. View Conversation
    The guy I bought it from last year said he only used it a few times and I never even turned it on s it should be practically new.

    I go to sf sporadically have no plans to now. I could meet you halfway, Sausalito or Mill Valley?
  8. View Conversation
    Ah, I cant help you there as I've never used one I was going to consult a PT. Let me know when you make up your mind.
  9. View Conversation
    I'm in Novato
  10. View Conversation
    yeah I'm in Marin and still have the empi available.
  11. View Conversation
    Joey
    let me know what on your mind.

    Oconnon
  12. View Conversation
    Joey like I said my program will not let me acitvate a friend. Ican receive meeages and I can reply.
  13. View Conversation
    I've only went to 1 and it wasn't a good experience for me mainly because the guy didn't know what he was doing.
  14. View Conversation
    Hi Joey,

    I had no movement what so all, it just suddenly happened after trying for hours every night. It takes a lot of focus of the mind and is mentally stressful. Your dad can't simply look at his foot and say move, he has to grit his teeth and really go nuts inside his mind trying to get it to move.

    Also range/touching/e-stim I think helps. Also try cold. Find an ice pack, put it on his leg, and then tell him to try to move his foot. This is something I discovered years ago after I got movement to try to get my other leg to move. It would work sometimes. Worth a shot.
  15. View Conversation
    Hi Joey,

    What the doctors say isn't true exactly. It took 3 months for me to move anything and from there the progress was slow. I still use a wheelchair as my main transportation but I"ve regained quite a bit of function as well. I recommend your dad continue to try to move things he can't. I use to just spend hours a night trying to move my limbs which I think helped make the connection.

    Also if you can get him to some program like Project Walk in Southern California that would help as well although its not cheap.
  16. I think you mean "reflexive" (ie, a reflex), rather than "reflective". Please see your forum post, which is a more appropriate place to put questions, as few people look at your profile page.

    KLD
  17. On Sept 30th, my Dad suffered a fall and damaged (compressed) his spinal cord at C3-C4. After the operation, he could shrug his shoulders and wiggle his toes, but was vent dependent. Prior to the operation, he could also wiggle his toes. My Dad became non-responsive (kept his eyes shut and was grimacing) and didn't seem to be able to wiggle his toes when asked, and even stopped shrugging his shoulders. The doctors are saying that the toe-wiggling is merely "reflective" and that he is "complete." However, in the past 2-3 days, I've been giving him foot massages and trying to move his limbs -- and he shrugged for me and wiggled the toes on his left foot. Any experiences out there?
Showing Visitor Messages 1 to 17 of 17
About Joey_SF

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About Joey_SF
Location:
California
Gender:
Undisclosed
Occupation:
Teacher
Why did you join this forum?:
Dad - SCI, C3-C4
How did you find us?:
Googling
What do you think of this site?:
Incredible, Life Saver, Learned a Lot

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