• Bonnette's Avatar
    10-28-2019, 04:54 PM
    Bonnette replied to a thread 2nd/3rd opinions in Care
    I think it's safe to say that doctors come from a very defensive position nowadays, due to restrictions imposed on them by insurance companies and an...
    5 replies | 332 view(s)
  • Bonnette's Avatar
    10-22-2019, 08:25 AM
    Bonnette replied to a thread Laying On Of Hands? in Cure
    Putting the hands on the spine, one at the base of the skull and one at the tailbone, sounds like craniosacral therapy. Before I knew I had MS, I...
    6 replies | 2879 view(s)
  • Bonnette's Avatar
    10-22-2019, 08:04 AM
    Thanks, KLD. I'm glad to know the problems aren't systemic.
    10 replies | 714 view(s)
  • Bonnette's Avatar
    10-21-2019, 10:54 PM
    Hanger's getting to be the only game in town - the orthotist where I got my KAFO said Hanger is buying up scores of small independent clinics. ...
    10 replies | 714 view(s)
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    His name is George and he is 6. We inherited him from a friend's mother that passed away a year ago. I never had a bird before and he is spoiled. Rides on my shoulder like a supervisor. We had to trim his wings as he kept smacking into the patio window. I'd love to see your birds picture. He is sure entertaining and has a personality. Wished he liked hubby (SCI) more.
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About spasticXfantastic

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Date of Birth
December 23, 1985 (33)
About spasticXfantastic
Are you::
A person with SCI/D?
Date of injury (NA if not spinal-injured)?:
watching movies (especially horror movies), music, art
i'm a student at TxCC studying studio art

i dont have a SCI, i have a genetic neuromuscular disorder called mitochondrial disease complex 1 deficiency, and a genetic collagen disorder called ehlers danlos syndrome. i have spina bifida occulta at l5-s1, which was caused by the ehlers danlos syndrome, and have had 2 small TIA strokes due to the mitochondrial disease. i have been diagnosed with HSP, but it is still un-clear if i have it or not, since mitochondrial disease can have similar symptoms.

i use a manual wheelchair (quickie GT) and a powerchair (permobil c300), a G tube for venting/draining, a J tube for feeding for nutrition, a cough assist machine, chest PT, a pari nebulizer for meds and saline, and AFO braces.
i also wear hearing aids in both ears as i am HoH.

i have a black lab service dog named weezie.
i swim and bowl for special olympics connecticut, and surf. i played sled hockey until i lost too much upper body strength.
Why did you join this forum?:
there is a lot of good information here.
How did you find us?:
i was looking on google at handcycles and found these boards


mitochondrial disease complex 1 deficiency, suspected HSP
type 3 ehlers danlos syndrome w/ type 1 overlap, g and j tubes
aspergers & friends
survivor of 2 TIA strokes


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