• Bonnette's Avatar
    12-12-2019, 05:05 PM
    Bonnette replied to a thread MRI findings in Brain Injury
    Ugh, I know you're not looking forward to going through another long diagnostic process - so I hope she calls you back today and gets you scheduled...
    11 replies | 938 view(s)
  • Bonnette's Avatar
    12-11-2019, 10:28 PM
    Bonnette replied to a thread MRI findings in Brain Injury
    Maybe the puncture relieved the pressure a bit. Hope you can get a good night's sleep, now that the headache is better.
    11 replies | 938 view(s)
  • Bonnette's Avatar
    12-11-2019, 06:42 PM
    Good, I'm glad it's getting better. Maybe some of that steroid got into your circulatory system and caused a temporary issue - expect you'll feel...
    7 replies | 931 view(s)
  • Bonnette's Avatar
    12-11-2019, 01:45 PM
    Dave, I would call the hospital department where you received the injection and paperwork listing things to be aware of, and ask them about this....
    7 replies | 931 view(s)
  • Bonnette's Avatar
    12-10-2019, 10:54 PM
    Bonnette replied to a thread MRI findings in Brain Injury
    Smash, you've been on my mind and I was hoping someone with medical expertise would see this thread - all I know about increased CSF around the optic...
    11 replies | 938 view(s)
  • Bonnette's Avatar
    11-22-2019, 09:19 PM
    Bonnette replied to a thread For those that remember, in Life
    I was in junior high study hall. The principal came in and told us all to go to our home rooms, where we received the news.
    15 replies | 880 view(s)
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    His name is George and he is 6. We inherited him from a friend's mother that passed away a year ago. I never had a bird before and he is spoiled. Rides on my shoulder like a supervisor. We had to trim his wings as he kept smacking into the patio window. I'd love to see your birds picture. He is sure entertaining and has a personality. Wished he liked hubby (SCI) more.
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About spasticXfantastic

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Date of Birth
December 23, 1985 (33)
About spasticXfantastic
Are you::
A person with SCI/D?
Date of injury (NA if not spinal-injured)?:
watching movies (especially horror movies), music, art
i'm a student at TxCC studying studio art

i dont have a SCI, i have a genetic neuromuscular disorder called mitochondrial disease complex 1 deficiency, and a genetic collagen disorder called ehlers danlos syndrome. i have spina bifida occulta at l5-s1, which was caused by the ehlers danlos syndrome, and have had 2 small TIA strokes due to the mitochondrial disease. i have been diagnosed with HSP, but it is still un-clear if i have it or not, since mitochondrial disease can have similar symptoms.

i use a manual wheelchair (quickie GT) and a powerchair (permobil c300), a G tube for venting/draining, a J tube for feeding for nutrition, a cough assist machine, chest PT, a pari nebulizer for meds and saline, and AFO braces.
i also wear hearing aids in both ears as i am HoH.

i have a black lab service dog named weezie.
i swim and bowl for special olympics connecticut, and surf. i played sled hockey until i lost too much upper body strength.
Why did you join this forum?:
there is a lot of good information here.
How did you find us?:
i was looking on google at handcycles and found these boards


mitochondrial disease complex 1 deficiency, suspected HSP
type 3 ehlers danlos syndrome w/ type 1 overlap, g and j tubes
aspergers & friends
survivor of 2 TIA strokes


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