• Bonnette's Avatar
    04-09-2018, 10:50 PM
    Bonnette replied to a thread Sitting on my left leg in Care
    I'm very glad that you'll be seeing a neurologist before too long. Dislocations are not so easy to identify, but if the neuro dosn't find a solution...
    9 replies | 749 view(s)
  • Bonnette's Avatar
    04-09-2018, 04:03 AM
    Bonnette replied to a thread Sitting on my left leg in Care
    Hernias can usually be detected by palpating the abdomen, so if your doctor poked and prodded he would have found it. A sudden sharp movement like...
    9 replies | 749 view(s)
  • Bonnette's Avatar
    04-08-2018, 09:08 AM
    Bonnette replied to a thread latest? in Food
    Excellent! :thumbsup: Edited to add: Meant to say earlier how great it is that you have a maintenance plan ready. That's literally half the...
    14 replies | 1952 view(s)
  • Bonnette's Avatar
    04-07-2018, 09:36 AM
    Bonnette replied to a thread latest? in Food
    I've been reading about that, there's good evidence that it speeds up weight loss even when people don't count calories (so long as they're eating...
    14 replies | 1952 view(s)
  • Bonnette's Avatar
    04-06-2018, 07:53 PM
    Bonnette replied to a thread Sitting on my left leg in Care
    It sounds to me like you need to have some imaging studies at this point, especially MRI of the dorsal and lumbar spine/abdomen and a flat plate of...
    9 replies | 749 view(s)
  • Bonnette's Avatar
    04-06-2018, 01:01 PM
    Bonnette replied to a thread latest? in Food
    Congrats on your weight loss, fuentejps. I'm a big fan of intermittent fasting, too. My basic rule of thumb is to not eat anything that my body can't...
    14 replies | 1952 view(s)
  • Bonnette's Avatar
    04-06-2018, 11:48 AM
    That sounds right, bigtop1...it would explain a lot of his symptoms. He might never recover what he's lost, but perhaps he can get better from here...
    8 replies | 939 view(s)
  • Bonnette's Avatar
    04-05-2018, 06:14 PM
    I get this, too and in relation to MS it's called the "MS hug" (more like a python), but anyone with cord damage and spasticity at a certain level...
    4 replies | 2569 view(s)
  • Bonnette's Avatar
    04-05-2018, 02:13 PM
    Thank you, lynnifer...I sure hope so, too.
    8 replies | 939 view(s)
  • Bonnette's Avatar
    04-05-2018, 01:04 PM
    Thank you, hlh. No, he is not going to a good quality major academic hospital. He has seen a cardiologist, who has referred him to a...
    8 replies | 939 view(s)
  • Bonnette's Avatar
    04-05-2018, 11:32 AM
    I hope and pray that they will do this.
    8 replies | 939 view(s)
  • Bonnette's Avatar
    04-04-2018, 10:40 PM
    A good friend of mine had an inguinal hernia repair on January 4 of this year. He had a hard time coming out of the anesthetic and was still sluggish...
    8 replies | 939 view(s)
  • Bonnette's Avatar
    03-25-2018, 02:07 PM
    Bonnette replied to a thread Rehab dr. visits in Care
    Only when there is a specific issue. I know much more about my condition than the local doctors and PTs. In the past, I saw a physiatrist and PT/OT...
    11 replies | 994 view(s)
  • Bonnette's Avatar
    03-24-2018, 12:15 PM
    I can't even imagine being able to control my spasticity - it has a mind of its own. It does sound like you'd be a good candidate for stim therapy...
    8 replies | 2395 view(s)
  • Bonnette's Avatar
    03-23-2018, 04:26 PM
    Bonnette replied to a thread CBD oil for nerve pain? in Pain
    I agree with Mize and annev308. I spent a good bit on CW hemp oil, and it did nothing for me (gave it a fair trial, too).
    30 replies | 21850 view(s)
  • Bonnette's Avatar
    03-22-2018, 05:45 AM
    If you search for "waterproof knee pads" on Amazon, many brands will appear and some are minimal and lightweight with convenient strap fasteners. The...
    4 replies | 621 view(s)
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    His name is George and he is 6. We inherited him from a friend's mother that passed away a year ago. I never had a bird before and he is spoiled. Rides on my shoulder like a supervisor. We had to trim his wings as he kept smacking into the patio window. I'd love to see your birds picture. He is sure entertaining and has a personality. Wished he liked hubby (SCI) more.
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About spasticXfantastic

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Date of Birth
December 23, 1985 (32)
About spasticXfantastic
Are you::
A person with SCI/D?
Date of injury (NA if not spinal-injured)?:
N/A
Location:
connecticut
Gender:
Male
Occupation:
student
Interests:
watching movies (especially horror movies), music, art
Biography:
i'm a student at TxCC studying studio art

i dont have a SCI, i have a genetic neuromuscular disorder called mitochondrial disease complex 1 deficiency, and a genetic collagen disorder called ehlers danlos syndrome. i have spina bifida occulta at l5-s1, which was caused by the ehlers danlos syndrome, and have had 2 small TIA strokes due to the mitochondrial disease. i have been diagnosed with HSP, but it is still un-clear if i have it or not, since mitochondrial disease can have similar symptoms.

i use a manual wheelchair (quickie GT) and a powerchair (permobil c300), a G tube for venting/draining, a J tube for feeding for nutrition, a cough assist machine, chest PT, a pari nebulizer for meds and saline, and AFO braces.
i also wear hearing aids in both ears as i am HoH.

i have a black lab service dog named weezie.
i swim and bowl for special olympics connecticut, and surf. i played sled hockey until i lost too much upper body strength.
Why did you join this forum?:
there is a lot of good information here.
How did you find us?:
i was looking on google at handcycles and found these boards

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mitochondrial disease complex 1 deficiency, suspected HSP
type 3 ehlers danlos syndrome w/ type 1 overlap, g and j tubes
aspergers & friends
survivor of 2 TIA strokes

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