northpond
Junior Member

How are you doing?

I just want to say that you will probably experience more improvement as time goes on. It is still early in your recovery. This time next year you will not be as you are now. Your whole body, including brain, is trying to adjust to the assault it has experienced. As it adjusts and changes your medications will probably change, too. Hang on. It does get better.

First of all, My mini statistics are incorrect: I am 58 years old. My surgery was back in 1977. I was initially paralyzed from the chest down, but that improved to below the belly button. My condition improved over a two year period. Or so before stabilizing.

My legs were different too. One had more spasticity than the other and was more difficult to bend. I relied on that spasticity to walk (albeit with crutches). I had to look down to walk because of proprioception issues.

I do not remember what meds I took back then, but they are probably obsolete now!
I do remember how hard it was to adjust to a new way of being.

I feel I have been no help at all, but I am here to support you as you go through this, and answer any questions or concerns you might have as best I can. I remember there being a website for people who have/had ependymoma. Have you found it and if so, was it helpful? Please keep in touch and let me know how you are doing.

Northpond, I posted return message on my own page (still learning how to navigate the site). Please tale a look there. Also, how are you doing and what is your situation now?