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  • gjnl's Avatar
    07-18-2019, 11:20 PM
    It is one of the most difficult issues that any patient deals with...no matter what the medical issues. One person's great doc is another person's...
    15 replies | 309 view(s)
  • gjnl's Avatar
    07-18-2019, 10:28 PM
    How do you vet their background? Not trying to be pejorative...but what does "knowing their background" mean? How do we evaluate background vis a...
    15 replies | 309 view(s)
  • gjnl's Avatar
    07-18-2019, 07:45 PM
    I can't advise on what you should do. Microcyn, MicrocynAH, Hydocleanse, Vetericyn, Puracyn, and Theracyn are all used experimentally and off label...
    11 replies | 238 view(s)
  • gjnl's Avatar
    07-18-2019, 07:23 PM
    Hydrocleanse is made by Sonoma Pharmaceuticals formerly known as Oculus Innovative Sciences headquartered in Petalum, Ca.. They are the owner of the...
    11 replies | 238 view(s)
  • gjnl's Avatar
    07-18-2019, 05:11 PM
    Here is a paragraph out of a study reported in the Journal of Spinal Cord Medicine: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1864800/Treatments...
    15 replies | 309 view(s)
  • gjnl's Avatar
    07-17-2019, 12:00 AM
    In our world of trying to find what works for anyone of us as an individual, you have to go with whatever rocks your boat. Best on you.
    11 replies | 238 view(s)
  • gjnl's Avatar
    07-16-2019, 08:13 PM
    Think you mean that MicrocynAH has .009% hypochlorous acid. MicrocynAH Wound and Skin Spray has .009% hypochlouous acid. MicrocynAH Pink Eye...
    11 replies | 238 view(s)
  • gjnl's Avatar
    07-16-2019, 04:57 PM
    gjnl replied to a thread riding in Exercise & Recovery
    Sorry, pictures posted now...was having trouble with sizing.
    15 replies | 377 view(s)
  • gjnl's Avatar
    07-16-2019, 03:36 PM
    gjnl replied to a thread riding in Exercise & Recovery
    I don't cycle, but NL and I go for walks in our neighborhood and the scenery is pretty lovely. Here are a couple pics from our walks in April, after...
    15 replies | 377 view(s)
  • gjnl's Avatar
    07-16-2019, 02:55 PM
    Tap on the name "SCI Nurse" either from the member list or a post. You will get the page identified in the image I have posted. On the left side...
    4 replies | 132 view(s)
  • gjnl's Avatar
    07-15-2019, 10:41 PM
    Can't say I know the % of hpochlorous acid in MicrocynAH wound and skin spray. Lately, I have been using MicrocynAH Pink Eye formulation at full...
    11 replies | 238 view(s)
  • gjnl's Avatar
    07-15-2019, 10:20 PM
    How frequently do you find that convenient "end spot?" Not often in my experience.
    25 replies | 546 view(s)
  • gjnl's Avatar
    07-15-2019, 08:09 PM
    I'm seeing about 10 offers (https://www.amazon.com/gp/offer-listing/B00425DZTM/ref=olp_twister_child?ie=UTF8&mv_size_name=2&mv_style_name=0) for 16...
    11 replies | 238 view(s)
  • gjnl's Avatar
    07-15-2019, 10:42 AM
    gjnl replied to a thread How to do Microcyn? in Care
    Worth a try. Seems like 30cc to 60cc instilled into the bladder for at least 5 minutes. Some who intermittent cath leave it in the bladder...
    2 replies | 140 view(s)
  • gjnl's Avatar
    07-14-2019, 11:29 PM
    Our local Whole Foods Market has the same deal. There must be 8 electric car recharge parking spaces and only 3 handicapped spaces. What is up with...
    25 replies | 546 view(s)
  • gjnl's Avatar
    07-14-2019, 02:07 PM
    gjnl replied to a thread Ergo Seating in Equipment
    The rules of engagement with Medicare when ordering a new chair are quite specific. First, your doctor makes a referral to an occupational or...
    2 replies | 154 view(s)
  • gjnl's Avatar
    07-13-2019, 10:35 PM
    gjnl replied to a thread Died, now they're killing me in Life
    Personally, I keep looking forward to the new and improved Care Cure Community on vBulletin or another platform. Long promised... Not being...
    13 replies | 849 view(s)
  • gjnl's Avatar
    07-12-2019, 10:38 PM
    gjnl replied to a thread not plugged in Care
    Yes, I absolutely understand about the mitrofanoff procedure and how that may look like the next best option. That said, are you physically capable...
    32 replies | 904 view(s)
  • gjnl's Avatar
    07-12-2019, 01:59 PM
    gjnl replied to a thread not plugged in Care
    The only other thing I can think of is the regularity of flushing the catheter. If I am reading what you do correctly, I have the impression that...
    32 replies | 904 view(s)
  • gjnl's Avatar
    07-11-2019, 10:46 PM
    I've had colonoscopies done in a hospital endoscopy out patient setting and in a clinic with a full time anesthesiologist. It really all depends on...
    12 replies | 299 view(s)
  • gjnl's Avatar
    07-11-2019, 10:32 PM
    How do you know that what you source from a compounding pharmacy is the Enemeez-like solution? What "rolliniv" is asking is how you get the...
    14 replies | 782 view(s)
  • gjnl's Avatar
    07-11-2019, 07:35 PM
    One of our members wrote this a few years back: ​My special trick for using...
    14 replies | 782 view(s)
  • gjnl's Avatar
    07-10-2019, 11:01 PM
    gjnl replied to a thread not plugged in Care
    Sometimes bladder stones are so small, just like very fine grains of sand, that they can't be detected by scans, etc. What I am trying to suggest in...
    32 replies | 904 view(s)
  • gjnl's Avatar
    07-10-2019, 03:29 PM
    gjnl replied to a thread not plugged in Care
    Here are a couple more questions and things to think about. Are you leaking from around the stoma or from the urethra? Or both? What size...
    32 replies | 904 view(s)
  • gjnl's Avatar
    07-10-2019, 02:00 PM
    Here are some guidelines and procedures from the Wound Ostomy and Continence Nurses Society: ...
    12 replies | 299 view(s)
  • gjnl's Avatar
    07-10-2019, 12:28 AM
    gjnl replied to a thread not plugged in Care
    Samples are good, just know that Myrbetriq can be very expensive and there is currently no generic equivalent. So hope your insurance drug program...
    32 replies | 904 view(s)
  • gjnl's Avatar
    07-09-2019, 11:48 AM
    gjnl replied to a thread not plugged in Care
    KLD and I are asking if you are taking one of those anticholinergics for bladder spasms that can cause leakage. So if you aren't taking something...
    32 replies | 904 view(s)
  • gjnl's Avatar
    07-09-2019, 12:29 AM
    gjnl replied to a thread not plugged in Care
    There is another thing to check...if my recollection is right, I think you are using the Poiesis Duette Catheter. If my recollection is correct, you...
    32 replies | 904 view(s)
  • gjnl's Avatar
    07-08-2019, 11:43 PM
    gjnl replied to a thread permobil f3 in Equipment
    You are not locked in to the Permobil back system. You can request evaluations with the back systems that may suit your needs better. I have a Roho...
    2 replies | 1679 view(s)
  • gjnl's Avatar
    07-08-2019, 10:59 PM
    gjnl replied to a thread not plugged in Care
    Tizanidine is a medication prescribed for general muscles spasms, not prescribed for BLADDER SPASMS. I think you need to ask your urologist to...
    32 replies | 904 view(s)
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