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    Not too bad. I move a little better and getting stronger, but still have a long recovery. Some things are not impoving at all. The tone in right foot is severe. No way to make the "gas pedal" move. Still need an AFO brace. However, I can move faster and walk longer distances. Balance is better, and I can peform basic tasks a little easier. I need to excercise more and be more disciplined. Gaining weight! and don't like it. I did get my car fit with hand controls and now I can drive. Nice.

    How about you? I don't recall or see any notes - curious to know how you get around? Cane?? Thanks for the follow up.
  2. Yes, I just wanted to feel normal again. That motivated me. I would put on music (I remember specifically Fleetwood Mac!) and practice walking with one crutch around and around the house. We find our own ways to get through, keep us going. It can seem so overwhelming.
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    Thanks for your input, and you have been helpful. i think fellow patients can be more helpful than some doctors!! yes, I need to be patient and stick to my PT therapy. At times I feel like it is futile, but then I just keep moving. I try to spend as much time as I can doing normal things, like yardwork, simple home repairs and going to stores. It keeps me feel a little more normal than just excercising. Stay in touch and thanks for listening.
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    Thanks. I m one year past surgery. I have loss of propiroception on the right side, minimal motor skill and balance on the right, and the right side is also very stiff and tight. I can barely bend at the knee. But I haev pain and temp.

    the left side is the exact opposite. I have strength, good motor skill, but there is no pain and temp sensation. this is known as brown sequard.

    From the chest down, I have terrible sensations of stiffness, numbness and a sensation of "bloating" It all feels real bad.

    How far past surgery are you?? Do you have stiffness? Are you taking meds at all? I am having a hard time adjusting and getting back to normal I know I am in for the long haul. Any suggestions you have or anything you wantto share would help. I know I am not alone, and it seems like there may not be much they can do..
  5. I was left with proprioception and sensory nerve damage and partial motor nerve damage, plus spasticity, with a diagnosis of "spastic paraparesis". I was able to walk with one crutch. I would be happy to answer any further questions you might have.
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    I saw a post where you mentioned you had an ependymoma removed from thoracic region. Me too had the tumor removed last year, from thoracic t5-t7. Did any symptoms remain? Did any nerve damage remain?
Showing Visitor Messages 1 to 6 of 6
About LMG

Basic Information

Date of Birth
January 15
About LMG
Date of injury (NA if not spinal-injured)?:
Spinal cord tumor (ependymoma, T6-11) removed 1977, wheelchair user since 1993 post scoliosis sx.
Location:
Western Mass
Gender:
Female
Occupation:
M.S.Rehab Counselor, currently mother/ homemaker
Interests:
art,music,theater,books,interior design
Biography:
B.S. Psych, UMass; M.S. Rehab Counseling, SDSU; married and mother of twins born in 2000.
Why did you join this forum?:
Info
What do you think of this site?:
"A"

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02-12-2012 04:37 PM
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08-11-2016 09:39 AM
Join Date
06-21-2002
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