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  • Fly2Lo's Avatar
    07-24-2019, 11:02 PM
    Fly2Lo replied to a thread New Wheelchair Time! in Equipment
    I think because I put a link into my other reply to this, it maybe didn't get approved. I had linked to my service dog's facebook. He is a golden...
    12 replies | 949 view(s)
  • Fly2Lo's Avatar
    07-23-2019, 12:56 AM
    Fly2Lo replied to a thread New Wheelchair Time! in Equipment
    Jnanda, Actually perfect amount of info. I'm glad to hear it. Also happy to hear about your back height. I definitely want a lower height of...
    12 replies | 949 view(s)
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About Fly2Lo

Basic Information

Date of Birth
July 16, 1985 (34)
About Fly2Lo
Are you::
Date of injury (NA if not spinal-injured)?:
Space Coast, FL, USA
Travel Agency Owner
Sewing, Crafting, Traveling
I do not have a spinal cord injury; my disability is a genetic connective tissue disorder called Ehlers Danlos Syndrome, a degenerative syndrome which affects nearly every part of one's body. Mine is particularly bad on my joints and spine.
It is complicated by a condition called dysautonomia, which is my autonomic nervous system malfunctioning.

Both of these conditions mean I'm in a wheelchair about 80% of the time.
Why did you join this forum?:
To talk with like-minded individuals and because I'm in the middle of choosing a new custom chair.
How did you find us?:
Web Search
What do you think of this site?:


I do not have an SCI; I have a genetic connective tissue disorder [Ehlers-Danlos Syndrome] It is degenerative and has affected my spine most of all, as well as most of my joints, causing them to degenerate, subluxate and dislocate VERY easily due to my body making defective collagen.

I also have a disorder of my autonomic nervous system, Dysautonomia, which causes tachycardia at random times, and hypovolemia among others.
I'm in a wheelchair about 80% of the time due to these.


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07-24-2019 11:02 PM
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