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  • ejl10's Avatar
    Yesterday, 12:44 PM
    ejl10 replied to a thread Just got a Suprapubic. in Care
    1. I use a statlock device to hold the tube in place at the junction. The main benefit is that it helps prevent the tube from accidentally getting...
    5 replies | 108 view(s)
  • ejl10's Avatar
    01-22-2020, 07:15 PM
    ejl10 replied to a thread Clinical trials for quads in Cure
    Of course. I'm not expecting anything from this Phase 1 safety study, but I want to do my part pushing the science forward.
    8 replies | 636 view(s)
  • ejl10's Avatar
    01-22-2020, 11:13 AM
    ejl10 replied to a thread Clinical trials for quads in Cure
    I have wrists but no hand function. They passed me through the initial video screening and I'm heading down to Philly next month for my in-person....
    8 replies | 636 view(s)
  • ejl10's Avatar
    01-22-2020, 12:26 AM
    ejl10 replied to a thread Power Chair in Equipment
    Here in Boston, most of the local quads went through Spaulding Rehab and the therapists there have been advocating for the Permobil F5 Corpus at...
    3 replies | 673 view(s)
  • ejl10's Avatar
    01-18-2020, 11:21 PM
    Thanks so much for the quick reply. Glad to hear I'm on the right track at least. Fortunately, my PCA knows how to properly install both an SP and an...
    9 replies | 683 view(s)
  • ejl10's Avatar
    01-18-2020, 08:52 PM
    So... an unfortunate little thing just happened! As usual, my balls felt like I was sitting on them, so I decided to reach under and try to pull them...
    9 replies | 683 view(s)
  • ejl10's Avatar
    01-17-2020, 08:52 PM
    Great advice throughout here, thank you all.
    6 replies | 731 view(s)
  • ejl10's Avatar
    01-17-2020, 12:05 AM
    Thanks for the tip. Clearly I'd prefer to see a doctor, but it's a bit of an arduous process to make that happen and I was hoping I could do...
    6 replies | 731 view(s)
  • ejl10's Avatar
    01-16-2020, 09:30 PM
    I have a caretaker help with my bowel program by performing digital stimulation and disimpaction. This morning she told me that i was bleeding...
    6 replies | 731 view(s)
  • ejl10's Avatar
    01-03-2020, 11:13 AM
    ejl10 replied to a thread Urine bag tubing problem in Care
    I've used the Deroyal tube holder before. It doesn't last as long as the Bard, but it's cheap and uses Velcro that won't come undone when you roll on...
    8 replies | 1005 view(s)
  • ejl10's Avatar
    01-02-2020, 08:18 PM
    I've had one of these for the last ten months or so. I don't use it all that much, but when I do it seems to have some kind of effect. Nothing...
    5 replies | 313 view(s)
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About ejl10

Basic Information

About ejl10
Are you::
A person with SCI/D?
Date of injury (NA if not spinal-injured)?:
Charlestown, MA
Consulting and Client Management
Rock and ice climbing
I've spent a career as a business professional and my free time as a mountain explorer. I was injured while climbing and survived only by miracle. Now I find myself learning the ropes as a new middle-aged C5-C6 quadriplegic.
Why did you join this forum?:
To learn from fellow paralyzed individuals as well as those in the field
How did you find us?:
A paralyzed friend referred me to the SCICurecast podcast and the forum was referenced there
What do you think of this site?:
It's very informative, I just wish it worked better on my phone!


C5/6 complete (maybe) circa June 2018


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