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6 Visitor Messages

  1. View Conversation
    Hi Lola Wheelie,

    I saw that you are from Candia, New Hampshire. I am from right outside of Portland, Maine. I have been reading the forums for several months and haven't seen anyone on here from Maine, but New Hampshire isn't too far away!

    I also saw from your profile that you have Hereditary Spastic Quadriplegia. Is that related to Hereditary Spastic Paraplegia? I am undiagnosed, use a wheelchair, have severe pain from my lower back down, along with issues like contractures and spasticity. This has been progressive since age nine. My neurologist suggested I might have HSP, but due to the unaffordable cost of testing for two HSP mutations ($16,000), I still don't know for sure.

    I thought it was interesting that we live near each other and may have similar issues. I would like to talk with you online sometime, if that is something that you are up for. Just send me a PM if you would like to talk!

    All the best,
    Nikki
  2. hola toto

    te hable en ingles porque no sabia si eras espanol o si eras norteamericano viviendo en espana.

    yo he vivido en USA por 7 anos y hablo muy poco espanol aqui. vivo con una familia de muy buenos amigos, pero ellos no hablan espanol, solamente ingles.

    a mi me encanta granada la directora de donde bailaba flamenco ( yo era profesional... bailaba y enesaba flamenco tambien ) es granaina

    soy gitana y hecho muy de menos el baile

    y tu que haces?

    saludos, toto!
  3. View Conversation
    Hola Lola, yo soy de Motril(Granada), ¿si eres española para que me hablas en inglés?
    Estuve en tu ciudad el año pasado, muy bonita.
    ¿Tú vives en USA o en Jerez?
    Saludos.
  4. View Conversation
    Just answered your bladder bowel question then noticed your from candia, nh, so am i!!!! i'm in louisville now but will be back in candia in a couple months. small world, huh?
  5. View Conversation
    :-) hi
  6. View Conversation
    ty, lolafu! ilu. joyful -
Showing Visitor Messages 1 to 6 of 6
About Lola_wheelie

Basic Information

Date of Birth
December 2, 1975 (43)
About Lola_wheelie
Date of injury (NA if not spinal-injured)?:
7 and 1/2 yrs ago ~ hereditary spastic quadriplegia
Location:
Candia,NH,USA
Gender:
Female
Occupation:
unemployed
Interests:
photography ,music, computers, my friends, my kitty
Why did you join this forum?:
meet other people , get more info on my condition
How did you find us?:
internet
What do you think of this site?:
its very nice

Signature


"All that is necessary for the triumph of evil is that good men do nothing" ~ edmund burker

c4-5 quad

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http://sci.rutgers.edu/forum/member.php?3355-Lola_wheelie&s=6ff23c7f7153cd08092afcdead229cad
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Join Date
04-11-2005
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