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  1. I understand, Dr. Young. I know a lot of people have had unsuccessful surgeries. Thank you for the clarification on the syrinx. I asked for the input and I truly appreciate everyone's comments. This site is a blessing for all of us. Thank you for your tireless dedication to helping us.
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    pgatlin, I understand. I also have a lot of respect for Carl Kao and his abilities as a surgeon, as well as his compassion, insight, and bedside manners.

    I think that you may be misunderstanding what a syringomyelic cyst is. It does not cause a "gap" in the spinal cord. It is an enlargement of the central canal. More important, there is no evidence that placing a sural nerve graft into the cyst will close the gap, enhance regeneration, or improve functional recovery in patients.

    Sorry that I did not see the mention of your son's chronic pain earlier. If the chronic pain is the reason for the surgery, it is a rationale for the surgery. However, shunting and collapsing of the syrinx may not reduce the pain.

    Please do understand that many people on CareCure have had operations by Carl Kao and they have not seen improvements in their function. They are not just saying negative things because they don't like him. They have become disillusioned.

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