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  • gjnl's Avatar
    Yesterday, 12:00 AM
    an In our world of trying to find what works for anyone of us as an individual, you have to go with whatever rocks your boat. Best on you.
    7 replies | 164 view(s)
  • shamrock88's Avatar
    07-16-2019, 09:20 PM
    I have a resistant Pseudomonas infection, and fortunately I'm not insensitive as some people, I can tolerate a higher percentage, and generally keep...
    7 replies | 164 view(s)
  • gjnl's Avatar
    07-16-2019, 08:13 PM
    Think you mean that MicrocynAH has .009% hypochlorous acid. MicrocynAH Wound and Skin Spray has .009% hypochlouous acid. MicrocynAH Pink Eye...
    7 replies | 164 view(s)
  • shamrock88's Avatar
    07-16-2019, 07:16 PM
    I have been using these products for many years since Leila (Suzanne), 1st started posting regarding them. I haven't kept up on the exact breakdowns...
    7 replies | 164 view(s)
  • gjnl's Avatar
    07-16-2019, 04:57 PM
    gjnl replied to a thread riding in Exercise & Recovery
    Sorry, pictures posted now...was having trouble with sizing.
    15 replies | 320 view(s)
  • gjnl's Avatar
    07-16-2019, 03:36 PM
    gjnl replied to a thread riding in Exercise & Recovery
    I don't cycle, but NL and I go for walks in our neighborhood and the scenery is pretty lovely. Here are a couple pics from our walks in April, after...
    15 replies | 320 view(s)
  • gjnl's Avatar
    07-16-2019, 02:55 PM
    Tap on the name "SCI Nurse" either from the member list or a post. You will get the page identified in the image I have posted. On the left side...
    4 replies | 117 view(s)
  • gjnl's Avatar
    07-15-2019, 10:41 PM
    Can't say I know the % of hpochlorous acid in MicrocynAH wound and skin spray. Lately, I have been using MicrocynAH Pink Eye formulation at full...
    7 replies | 164 view(s)
  • shamrock88's Avatar
    07-15-2019, 10:26 PM
    thanks! I was getting the product on subscription 15 % off, for around $22. That stopped in June, as they discontinued it in my monthly subscribe...
    7 replies | 164 view(s)
  • gjnl's Avatar
    07-15-2019, 10:20 PM
    How frequently do you find that convenient "end spot?" Not often in my experience.
    13 replies | 312 view(s)
  • gjnl's Avatar
    07-15-2019, 08:09 PM
    I'm seeing about 10 offers (https://www.amazon.com/gp/offer-listing/B00425DZTM/ref=olp_twister_child?ie=UTF8&mv_size_name=2&mv_style_name=0) for 16...
    7 replies | 164 view(s)
  • shamrock88's Avatar
    07-15-2019, 07:51 PM
    Was getting a pretty good price on Amazon on automatic shipment, but it's no longer available.
    7 replies | 164 view(s)
  • gjnl's Avatar
    07-15-2019, 10:42 AM
    gjnl replied to a thread How to do Microcyn? in Care
    Worth a try. Seems like 30cc to 60cc instilled into the bladder for at least 5 minutes. Some who intermittent cath leave it in the bladder...
    2 replies | 131 view(s)
  • gjnl's Avatar
    07-14-2019, 11:29 PM
    Our local Whole Foods Market has the same deal. There must be 8 electric car recharge parking spaces and only 3 handicapped spaces. What is up with...
    13 replies | 312 view(s)
  • gjnl's Avatar
    07-14-2019, 02:07 PM
    gjnl replied to a thread Ergo Seating in Equipment
    The rules of engagement with Medicare when ordering a new chair are quite specific. First, your doctor makes a referral to an occupational or...
    2 replies | 143 view(s)
  • gjnl's Avatar
    07-13-2019, 10:35 PM
    gjnl replied to a thread Died, now they're killing me in Life
    Personally, I keep looking forward to the new and improved Care Cure Community on vBulletin or another platform. Long promised... Not being...
    13 replies | 829 view(s)
  • gjnl's Avatar
    07-12-2019, 10:38 PM
    gjnl replied to a thread not plugged in Care
    Yes, I absolutely understand about the mitrofanoff procedure and how that may look like the next best option. That said, are you physically capable...
    32 replies | 845 view(s)
  • gjnl's Avatar
    07-12-2019, 01:59 PM
    gjnl replied to a thread not plugged in Care
    The only other thing I can think of is the regularity of flushing the catheter. If I am reading what you do correctly, I have the impression that...
    32 replies | 845 view(s)
  • gjnl's Avatar
    07-11-2019, 10:46 PM
    I've had colonoscopies done in a hospital endoscopy out patient setting and in a clinic with a full time anesthesiologist. It really all depends on...
    12 replies | 279 view(s)
  • gjnl's Avatar
    07-11-2019, 10:32 PM
    How do you know that what you source from a compounding pharmacy is the Enemeez-like solution? What "rolliniv" is asking is how you get the...
    13 replies | 722 view(s)
  • gjnl's Avatar
    07-11-2019, 07:35 PM
    One of our members wrote this a few years back: ​My special trick for using...
    13 replies | 722 view(s)
  • gjnl's Avatar
    07-10-2019, 11:01 PM
    gjnl replied to a thread not plugged in Care
    Sometimes bladder stones are so small, just like very fine grains of sand, that they can't be detected by scans, etc. What I am trying to suggest in...
    32 replies | 845 view(s)
  • gjnl's Avatar
    07-10-2019, 03:29 PM
    gjnl replied to a thread not plugged in Care
    Here are a couple more questions and things to think about. Are you leaking from around the stoma or from the urethra? Or both? What size...
    32 replies | 845 view(s)
  • gjnl's Avatar
    07-10-2019, 02:00 PM
    Here are some guidelines and procedures from the Wound Ostomy and Continence Nurses Society: ...
    12 replies | 279 view(s)
  • gjnl's Avatar
    07-10-2019, 12:28 AM
    gjnl replied to a thread not plugged in Care
    Samples are good, just know that Myrbetriq can be very expensive and there is currently no generic equivalent. So hope your insurance drug program...
    32 replies | 845 view(s)
  • gjnl's Avatar
    07-09-2019, 11:48 AM
    gjnl replied to a thread not plugged in Care
    KLD and I are asking if you are taking one of those anticholinergics for bladder spasms that can cause leakage. So if you aren't taking something...
    32 replies | 845 view(s)
  • gjnl's Avatar
    07-09-2019, 12:29 AM
    gjnl replied to a thread not plugged in Care
    There is another thing to check...if my recollection is right, I think you are using the Poiesis Duette Catheter. If my recollection is correct, you...
    32 replies | 845 view(s)
  • gjnl's Avatar
    07-08-2019, 11:43 PM
    gjnl replied to a thread permobil f3 in Equipment
    You are not locked in to the Permobil back system. You can request evaluations with the back systems that may suit your needs better. I have a Roho...
    2 replies | 1667 view(s)
  • gjnl's Avatar
    07-08-2019, 10:59 PM
    gjnl replied to a thread not plugged in Care
    Tizanidine is a medication prescribed for general muscles spasms, not prescribed for BLADDER SPASMS. I think you need to ask your urologist to...
    32 replies | 845 view(s)
  • gjnl's Avatar
    07-08-2019, 07:54 PM
    I don't care for these designs either, especially if you are talking about wearing this kind of clothing every day. I wouldn't have worn this type...
    11 replies | 508 view(s)
More Activity

8 Visitor Messages

  1. View Conversation
    Just checking in,glad to see you are also. i hope all is well with you guys, just thought i would say howdy! ignore the small letter, my left shift key doesn't work lol
  2. View Conversation
    Saw your posts from a year ago along w/Bob and JeJen etc. I'm an 'incomplete' quad 6 years now. Suddenly, chronic UTI's since Sept. 2010. Just started using Vetericyn to clear urethra and spray caths. My urologist hadn't even considered colonization in the urethra. A garage machanic would have. Leila, I'd like to know--have you made any head-way in the organization of clinical trials? I'm very interested in this on a few levels. We're a specific population... Thanks again for sharing your discoveries and for that thorough & impassioned letter (to W.Y).
  3. You are welcome. My pleasure.
  4. View Conversation
    I have started using oxum solution to spray on the urethra and catheter before cathing. Thank you.
  5. View Conversation
    thank you for the info and youtube videos. I greatly appreciate it all. Again - thank you!!!
  6. Hi Dave,

    Until you get the Vetericyn, leaving it open to the air is a great idea. Keep it clean, but not with anything harsh. When you get the Vetericyn, start applying it several times a day, letting it air dry if possible. The Vetericyn will eliminate all microbial load from the wound, plus it will reduce inflammation. It also loads the wound bed with oxygen ions, and this accelerates fibroblast formation. You can work out your own routine--some people use a thick gauze pad soaked with Vetericyn, and leave it right on the wound for quite awhile. Deb can work out what's best for her.

    Good Luck!
  7. View Conversation
    Hi liela. Its dave hear debs husband. Debs laid up with what we think is a pressure sore. Right in the groin, from to tight underwear she slept in last night.Any suggestions on how to deal with the sore what ie creams etc. We should use on it.Deb has put in an order for the vetracin and is waiting to hear back. At the moment shes in deb starkers giving the effected area some air. All the best.
  8. View Conversation
    Hi Susanne,

    You did (are doing) a wonderful job of getting the Microcyn etc. information out. I hope more people understand the usefulness of your information and start accepting and using the procedure. It's such a simple concept yet some people still refuse to see. And for their refusal are paying a heavy toll in terms of unnecessary colonizations and full blown UTIs. I'm still colonization and UTI-free after 5 years (I think it's going on 5 years in October... maybe 6) and my urine is still perfect. No antibiotics. And to think that I used to say "I've never met an antibiotic that I didn't fall in love with." Haha. The more I read about antibiotics the scarier they become. Those damn things are toxic and should only be used when absolutely necessary.

    How is John doing?

    Take care of yourself.... you've spent a lot of energy here trying to enlighten the members.

    Bob.
Showing Visitor Messages 1 to 8 of 8
About Leila

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About Leila
Date of injury (NA if not spinal-injured)?:
N/A
Location:
Eureka, Caifornia
Gender:
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Occupation:
retired

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