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  • Mac85's Avatar
    Yesterday, 06:53 PM
    Mac85 replied to a thread New catheter. in Equipment
    21 replies | 4800 view(s)
  • Mac85's Avatar
    08-21-2016, 04:50 PM
    thanks
    6 replies | 1074 view(s)
  • Mac85's Avatar
    08-21-2016, 04:41 PM
    Mac85 replied to a thread Quads living alone. in Caregiving
    As long as you have a good wrist control you should have no problem
    19 replies | 3257 view(s)
  • Mac85's Avatar
    08-17-2016, 09:30 PM
    thanks i'll check it out
    6 replies | 1074 view(s)
  • Mac85's Avatar
    08-17-2016, 09:27 PM
    no i didn't i will put it on my list to ask the doctor
    6 replies | 1074 view(s)
  • Mac85's Avatar
    08-17-2016, 09:24 PM
    Mac85 replied to a thread Quads living alone. in Caregiving
    i have three of them so i will pick it up with at least one of them
    19 replies | 3257 view(s)
  • Mac85's Avatar
    08-15-2016, 09:32 PM
    I have been struggling with BAD spastisity for the past three months, my ankle and thighs go nuts - oral baclofen doesn't really seem to be working...
    6 replies | 1074 view(s)
  • Mac85's Avatar
    08-15-2016, 08:52 PM
    I got a faucet water filter some time ago and I have been using two 22 ounce water bottles but it takes me about five minutes to close it after a...
    0 replies | 454 view(s)
  • Mac85's Avatar
    08-15-2016, 08:40 PM
    Mac85 replied to a thread Botox for legs? in Care
    Nurse, how about ankles? Mine spasm like crazy
    3 replies | 736 view(s)
  • Mac85's Avatar
    08-15-2016, 08:30 PM
    Mac85 replied to a thread Quads living alone. in Caregiving
    This is my friend doUg, he lives by himself in Florida he is a C5/6 He only gets help three days a week for shower and bowel care, guy is a...
    19 replies | 3257 view(s)
  • Mac85's Avatar
    08-14-2016, 12:28 PM
    Mac85 replied to a thread Quads living alone. in Caregiving
    not to bash on you but I'm the same level as you and why would you need someone overnight? I don't live alone but I only need someone MON-WED-FRI...
    19 replies | 3257 view(s)
  • Mac85's Avatar
    08-14-2016, 12:10 AM
    Mac85 replied to a thread Excessive sweating in Care
    So it turned out that it was the protein shakes that made me sweat. I was taking about a 100 milligrams of protein a day
    4 replies | 1493 view(s)
  • Mac85's Avatar
    08-13-2016, 10:46 PM
    Mac85 replied to a thread Percocet Withdrawal...? in Pain
    I remember that I couldn't sleep when I was on prednizone - Dr. told me to slowly come down I was on 40 mg a day and I was coming off 5 mg each week....
    6 replies | 1455 view(s)
  • Mac85's Avatar
    08-13-2016, 10:40 PM
    Mac85 started a thread Any vegans out there? in Food
    Hey guys, I have been a vegetarian for about 4 years, my bowel care and health really improved since I changed my diet and I am thinking of going...
    4 replies | 1238 view(s)
  • Mac85's Avatar
    08-13-2016, 10:28 PM
    I have one that is like brand-new, only used twice. It doesn't have the attachment for the folding chair since I got a rigid chair. I haven't had...
    3 replies | 1197 view(s)
  • hlh's Avatar
    08-13-2016, 02:08 PM
    hlh replied to a thread K0005 in Equipment
    Very helpful! So you are quite similar to my Dad. His seat depth is only 18" and that is clearly too short for him and now I wonder why they didn't...
    24 replies | 2918 view(s)
  • hlh's Avatar
    08-13-2016, 11:26 AM
    hlh replied to a thread K0005 in Equipment
    I am so sorry if I distressed you Bonnette!! You are a great source of support, and we are grateful for that.
    24 replies | 2918 view(s)
  • hlh's Avatar
    08-13-2016, 11:13 AM
    hlh replied to a thread Folding wheelchair - light in Equipment
    Anyone using a folding chair? The brand our provider was suggesting was one I had never heard of - Motion Composites. Any thoughts about their...
    8 replies | 1579 view(s)
  • hlh's Avatar
    08-13-2016, 11:06 AM
    hlh replied to a thread K0005 in Equipment
    Thanks for your advice ancientgimp. How tall are you? Yes, I need to start doing some measurements.... I would be too uncomfortable choosing...
    24 replies | 2918 view(s)
  • hlh's Avatar
    08-13-2016, 10:53 AM
    hlh replied to a thread K0005 in Equipment
    Oh yes Bonnette, I understand completely. My Dad will just hear the words in a negative way. That's also his way!
    24 replies | 2918 view(s)
  • hlh's Avatar
    08-12-2016, 05:24 PM
    hlh replied to a thread K0005 in Equipment
    I really appreciate this information. Thank your husband for me. 20" is 2 inches longer than my Dad's chair, and he might really benefit from that...
    24 replies | 2918 view(s)
  • hlh's Avatar
    08-12-2016, 05:22 PM
    hlh replied to a thread K0005 in Equipment
    Good point. We really need the help of the Seating Clinic to help us think through chairs/determine measurements since my Dad's frame/needs are...
    24 replies | 2918 view(s)
  • hlh's Avatar
    08-12-2016, 05:16 PM
    hlh replied to a thread K0005 in Equipment
    Thanks Bonnette. I always appreciate your input. It is very difficult to have conversations about walking/wheelchairs with my dad. He is...
    24 replies | 2918 view(s)
  • hlh's Avatar
    08-12-2016, 05:12 PM
    hlh replied to a thread K0005 in Equipment
    It's good to hear a folding chair is working well for you. Thanks.
    24 replies | 2918 view(s)
  • Mac85's Avatar
    08-11-2016, 03:10 PM
    I see that this is an old post, but any other users here with a pump? Oral baclofen just doesn't seem to work for me, I take 100mg a day
    7 replies | 1912 view(s)
  • hlh's Avatar
    08-11-2016, 12:40 PM
    hlh replied to a thread K0005 in Equipment
    Really appreciate those links KLD. Thank you. Thanks for your input triumph. Glad to hear you think this doesn't sound right. My Dad is...
    24 replies | 2918 view(s)
  • hlh's Avatar
    08-10-2016, 11:29 PM
    hlh replied to a thread K0005 in Equipment
    Thanks KLD. That's what I thought - Medicare only cares about inside the house. But he actually does use the chair primarily in the house. He...
    24 replies | 2918 view(s)
  • hlh's Avatar
    08-10-2016, 08:38 PM
    hlh started a thread K0005 in Equipment
    My Dad (walking para) went to Seating clinic to talk about getting a new chair. He still has his original 8 year old Tilite ZRA, and now he wants a...
    24 replies | 2918 view(s)
  • hlh's Avatar
    08-09-2016, 09:44 AM
    hlh replied to a thread Procrit in Care
    I would definitely see the Hematologist, and then decide what to do with their input. One step at a time. The Hematologist needs to do some...
    12 replies | 2214 view(s)
  • hlh's Avatar
    08-07-2016, 11:11 PM
    My Dad uses his wheelchair indoors (Tilite ZRA) and walks with forearm crutches outdoors. His chair is his original chair, and is both too short and...
    8 replies | 1579 view(s)
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About hlh

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About hlh
Date of injury (NA if not spinal-injured)?:
My father factured T11 in 2007 - he was 65 at the time. Currently, he is L3 ASIA C (incomplete)
Location:
US
Gender:
Undisclosed
Biography:
Moved back to my hometown to help my parents after my father's injury.

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