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  • stephen212's Avatar
    12-03-2019, 04:14 AM
    Same at Trader Joe's. The employees there will help carry things to my car, which I need when I have more than one basketful of things, and there's...
    4 replies | 786 view(s)
  • stephen212's Avatar
    11-16-2019, 02:11 PM
    stephen212 replied to a thread Colostomy? Recovery time? in Care
    Emmett, My injury level is lower than yours -- T4 complete -- I'm able to use the Peristeen independently. The Peristeen's "magic" is coupled with...
    36 replies | 3192 view(s)
  • stephen212's Avatar
    11-15-2019, 04:18 AM
    stephen212 replied to a thread Colostomy? Recovery time? in Care
    I didn't say I've been using it the longest, just the most. As Bill Maher says, "I can't prove it, I just know that it's true."
    36 replies | 3192 view(s)
  • stephen212's Avatar
    11-14-2019, 02:47 PM
    stephen212 replied to a thread Colostomy? Recovery time? in Care
    I'll take that bet. I've been using the Peristeen since 2011 having first purchased it from a supplier in Australia, which is pre-FDA approval. And I...
    36 replies | 3192 view(s)
  • stephen212's Avatar
    11-14-2019, 01:24 AM
    stephen212 replied to a thread Colostomy? Recovery time? in Care
    Some insurance covers it. Mine doesn't but I find them on eBay for not too much. The manufacturer, Coloplast, won't allow distributors to sell them...
    36 replies | 3192 view(s)
  • stephen212's Avatar
    11-13-2019, 01:19 AM
    stephen212 replied to a thread Colostomy? Recovery time? in Care
    The Peristeen is essentially an enema. Its utility is that the rectal catheter has an inflatable cuff that allows you to retain the water as you fill...
    36 replies | 3192 view(s)
  • Gordy1's Avatar
    11-12-2019, 07:49 AM
    Gordy1 replied to a thread Zero answers for core injuries in Care
    Our son has pretty bad scoliosis, but no issues with muscles pulling - it’s due to poor support, so different to your situation by the sound of it. ...
    8 replies | 715 view(s)
  • stephen212's Avatar
    11-11-2019, 01:12 PM
    stephen212 replied to a thread Colostomy? Recovery time? in Care
    Not to talk you out of/into anything, and recognizing that our injuries even when similar on paper all behave differently, I have been using the...
    36 replies | 3192 view(s)
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2 Visitor Messages

  1. Hi Sandra,

    Yes, I think there are only 4 of us with similar aged kids here, and two of you are from Ireland!

    We've seen some of Sean's videos on Youtube - keep up the good work! We might post some of Lochan doing his Project Walk / Walk On exercise, just to keep you guys inspired too!

    Cheers,
    Gordon
  2. View Conversation
    Hi Gordy1

    There are so few parents on young kids with SCI on Carecure, I find we can good source of info for each other. Sorry about your son. Sean was injured at 4 in 2006
    Sandra
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About Gordy1

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About Gordy1
Are you::
A family member of or other caregiver of a person with SCI/D?
Date of injury (NA if not spinal-injured)?:
NA
Location:
Perth, Western Australia
Gender:
Male

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Gordon, father of son who became t6 paraplegic at the age of 4 in 2007 as a result of surgery to remove a spinal tumour.

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