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  • twistties's Avatar
    Yesterday, 11:54 PM
    Fingers crossed! At least if it does they can load me up with Zofran and whatever else and I won't be home alone trying to deal with it. That in...
    5 replies | 264 view(s)
  • twistties's Avatar
    Yesterday, 11:30 PM
    twistties replied to a thread Mutant infection, heeelp!!! in Care
    Well, since it's not always the same bug, you technically don't have a mutant infection but actually just many infections, or an infection that isn't...
    4 replies | 264 view(s)
  • twistties's Avatar
    Yesterday, 02:52 PM
    I thought it was the med too at first so maybe you're right. They warned me last minute, I had to decide on the spot but they were pretty insistent....
    5 replies | 264 view(s)
  • twistties's Avatar
    Yesterday, 01:49 PM
    I'm set to get bladder Botox again in a few weeks, as usual they'll be doing it under spinal anesthesia because of spasms/pain. I just have some...
    5 replies | 264 view(s)
  • twistties's Avatar
    11-22-2017, 08:38 PM
    I hope a nurse can chime in as I'm not a quad but... That sounds like a high dose of Baclofen already? For me anyway weird sudden increases in...
    5 replies | 352 view(s)
  • twistties's Avatar
    11-21-2017, 07:04 PM
    twistties replied to a thread Discussion about Megacolon in Care
    I know you posted this a few months ago but...I had a similar experience with a GI doc and a colorectal surgeon umf, and my GP was just as equally...
    21 replies | 1575 view(s)
  • twistties's Avatar
    11-12-2017, 09:01 PM
    That's a good idea actually. Could you try to put the leg bag on the inside of your leg maybe? Or in the back like suggested. You'd have to twist it...
    10 replies | 1358 view(s)
  • twistties's Avatar
    11-09-2017, 03:57 AM
    Yes I'm aware it's for prevention! I just wanted to make sure she knew that, her question was a little vague on how she would be using it. My...
    21 replies | 1892 view(s)
  • twistties's Avatar
    11-07-2017, 08:28 PM
    Is it cheaper in the US? Gentamycin (which was good for 10 days refrigerated?) cost me 68$ per bag (204$/month). And Tobramycin cost a bit less at...
    21 replies | 1892 view(s)
  • twistties's Avatar
    11-06-2017, 01:54 AM
    I suppose it would depend on the antibiotic. Some (if not most?) oral antibiotics have to be metabolized or "activated" by CYP450 enzymes from the...
    21 replies | 1892 view(s)
  • twistties's Avatar
    10-29-2017, 06:12 PM
    twistties replied to a thread Ratio-citolapram in Care
    Haven't had much luck with antidepressants so can't really help there - but I do know that some do stop working and some people have to try different...
    8 replies | 1494 view(s)
  • twistties's Avatar
    10-28-2017, 12:18 AM
    twistties replied to a thread Using Peristeen in Care
    Good to know thx! I tried unscrewing it but it wasn't budging and I didn't want to force it/rip the bag, now I know. I'll report when I do get a new...
    41 replies | 13688 view(s)
  • twistties's Avatar
    10-27-2017, 11:17 PM
    twistties replied to a thread Using Peristeen in Care
    Apparently there's a way to remove the lid to change the bag but I can't find the instructions and I don't want to try it until I have extras. - I...
    41 replies | 13688 view(s)
  • twistties's Avatar
    10-26-2017, 11:47 PM
    twistties replied to a thread Bladder Spasms! in Care
    As said above, try different catheters? Do you have a urologist? Usually they have all kinds and you can try them (coude, larger, smaller, even...
    10 replies | 1324 view(s)
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