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  • twistties's Avatar
    Yesterday, 08:38 PM
    I hope a nurse can chime in as I'm not a quad but... That sounds like a high dose of Baclofen already? For me anyway weird sudden increases in...
    4 replies | 141 view(s)
  • twistties's Avatar
    11-21-2017, 07:04 PM
    twistties replied to a thread Discussion about Megacolon in Care
    I know you posted this a few months ago but...I had a similar experience with a GI doc and a colorectal surgeon umf, and my GP was just as equally...
    21 replies | 1431 view(s)
  • twistties's Avatar
    11-12-2017, 09:01 PM
    That's a good idea actually. Could you try to put the leg bag on the inside of your leg maybe? Or in the back like suggested. You'd have to twist it...
    10 replies | 1315 view(s)
  • twistties's Avatar
    11-09-2017, 03:57 AM
    Yes I'm aware it's for prevention! I just wanted to make sure she knew that, her question was a little vague on how she would be using it. My...
    21 replies | 1806 view(s)
  • twistties's Avatar
    11-07-2017, 08:28 PM
    Is it cheaper in the US? Gentamycin (which was good for 10 days refrigerated?) cost me 68$ per bag (204$/month). And Tobramycin cost a bit less at...
    21 replies | 1806 view(s)
  • twistties's Avatar
    11-06-2017, 01:54 AM
    I suppose it would depend on the antibiotic. Some (if not most?) oral antibiotics have to be metabolized or "activated" by CYP450 enzymes from the...
    21 replies | 1806 view(s)
  • twistties's Avatar
    10-29-2017, 06:12 PM
    twistties replied to a thread Ratio-citolapram in Care
    Haven't had much luck with antidepressants so can't really help there - but I do know that some do stop working and some people have to try different...
    8 replies | 1481 view(s)
  • twistties's Avatar
    10-28-2017, 12:18 AM
    twistties replied to a thread Using Peristeen in Care
    Good to know thx! I tried unscrewing it but it wasn't budging and I didn't want to force it/rip the bag, now I know. I'll report when I do get a new...
    41 replies | 13647 view(s)
  • twistties's Avatar
    10-27-2017, 11:17 PM
    twistties replied to a thread Using Peristeen in Care
    Apparently there's a way to remove the lid to change the bag but I can't find the instructions and I don't want to try it until I have extras. - I...
    41 replies | 13647 view(s)
  • twistties's Avatar
    10-26-2017, 11:47 PM
    twistties replied to a thread Bladder Spasms! in Care
    As said above, try different catheters? Do you have a urologist? Usually they have all kinds and you can try them (coude, larger, smaller, even...
    10 replies | 1308 view(s)
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