Tab Content
  • SCI-Nurse's Avatar
    Yesterday, 11:46 PM
    Medicare does not pay for any expensive for health care outside of the USA. Hope you are planning to move someplace where there is universal health...
    8 replies | 101 view(s)
  • SCI-Nurse's Avatar
    Yesterday, 11:42 PM
    SCI-Nurse replied to a thread Cystoscopy in Care
    I don't know of many places that still use nitrous oxide or "laughing gas" for anesthesia except for dental procedures; it has been replaced by many...
    11 replies | 199 view(s)
  • HACKNSACK44's Avatar
    Yesterday, 09:32 PM
    HACKNSACK44 replied to a thread Cystoscopy in Care
    I might get it just for the hell of it.
    11 replies | 199 view(s)
  • SCI-Nurse's Avatar
    Yesterday, 05:11 PM
    SCI-Nurse replied to a thread Stage 2 sacral question in Care
    Can you be on your side with the HOB elevated? Otherwise, this is really a position to be avoided for long periods of time. (KLD)
    11 replies | 160 view(s)
  • SCI-Nurse's Avatar
    Yesterday, 04:01 PM
    SCI-Nurse replied to a thread Stage 2 sacral question in Care
    Sitting up in bed with your head higher than 30 degrees significantly increases both sacral pressure and shear. (KLD)
    11 replies | 160 view(s)
  • SCI-Nurse's Avatar
    Yesterday, 03:54 PM
    SCI-Nurse replied to a thread Cystoscopy in Care
    yes No (KLD)
    11 replies | 199 view(s)
  • HACKNSACK44's Avatar
    Yesterday, 12:24 PM
    HACKNSACK44 replied to a thread Cystoscopy in Care
    Do they have to remove the sp catheter if they go in through the penis? Would laughing gas help with AD?
    11 replies | 199 view(s)
  • SCI-Nurse's Avatar
    Yesterday, 11:27 AM
    SCI-Nurse replied to a thread Cystoscopy in Care
    If that is the case, definitely take one of yours. Most unlikely that they will have these in stock. (KLD)
    11 replies | 199 view(s)
  • HACKNSACK44's Avatar
    Yesterday, 09:58 AM
    Yes using my Molift. I usually have my brothers with me and they get me ready. There isn't a lot of room to work with. Yes it's mine but it is sold...
    17 replies | 876 view(s)
  • HACKNSACK44's Avatar
    Yesterday, 09:52 AM
    HACKNSACK44 replied to a thread Cystoscopy in Care
    I use a Duette catheter. Definitely calling the office.
    11 replies | 199 view(s)
  • SCI-Nurse's Avatar
    Yesterday, 01:39 AM
    SCI-Nurse replied to a thread Cystoscopy in Care
    The urologist would not reuse the old catheter. They will replace it from one in their office supplies. (KLD)
    11 replies | 199 view(s)
  • MikeC's Avatar
    01-27-2020, 09:59 PM
    MikeC replied to a thread Just got a Suprapubic. in Care
    JJ5389 what was the procedure like for the suprapubic? How long did it take, how long was your activity limited, was driving limited, etc. I?ve...
    16 replies | 1178 view(s)
  • MikeC's Avatar
    01-27-2020, 09:46 PM
    MikeC replied to a thread Sudden Urination in Care
    Thanks nurse. I take 6 docusate sodium daily (2 at each meal) and fibercon daily. I’ve had an enlarged prostate for many years. Thanks for the...
    18 replies | 1218 view(s)
  • HACKNSACK44's Avatar
    01-27-2020, 09:16 PM
    HACKNSACK44 replied to a thread Cystoscopy in Care
    It is being done to ''take a look''. He said that he would go through the sp. I usually don't get AD but if the sp tube has to be removed then a...
    11 replies | 199 view(s)
  • SCI-Nurse's Avatar
    01-27-2020, 08:29 PM
    One of my favorites is 3M Cavilon No-Sting Protective Barrier. (KLD)
    7 replies | 999 view(s)
  • SCI-Nurse's Avatar
    01-27-2020, 08:26 PM
    SCI-Nurse replied to a thread Cystoscopy in Care
    What is the purpose of your cystoscopy? Do you know if they are planning to do it through your stoma or through your urethra? Both are options for...
    11 replies | 199 view(s)
  • HACKNSACK44's Avatar
    01-27-2020, 08:15 PM
    HACKNSACK44 started a thread Cystoscopy in Care
    I'm having one done next week. I have a sp. What is the procedure consist of? I had one done years ago but can't remember how it was done.
    11 replies | 199 view(s)
  • SCI-Nurse's Avatar
    01-27-2020, 01:20 PM
    SCI-Nurse replied to a thread wound vac for ischeal sore? in Care
    We often used NPWT (negative pressure wound therapy) for ischial pressure injuries of stage III or IV. Properly applied, it should stay in place for...
    1 replies | 104 view(s)
  • SCI-Nurse's Avatar
    01-27-2020, 01:09 PM
    SCI-Nurse replied to a thread Blister on my heel in Care
    "Heal the heel!" This does not look like a burn. It is a common blister seen from friction (shoe rubbing, foot dragging on bed with spasms, etc.)....
    16 replies | 933 view(s)
  • SCI-Nurse's Avatar
    01-27-2020, 12:56 PM
    SCI-Nurse replied to a thread Just got a Suprapubic. in Care
    Do you mean pink drainage or pink lumpy tissue around the stoma? The former is common with a new SP, and usually decreases with time. The latter is...
    16 replies | 1178 view(s)
  • SCI-Nurse's Avatar
    01-27-2020, 12:53 PM
    SCI-Nurse replied to a thread Just got a Suprapubic. in Care
    Maintaining a closed system has been shown in numerous studies to reduce the risks of UTI in those with both indwelling and SP catheters. The same...
    16 replies | 1178 view(s)
  • SCI-Nurse's Avatar
    01-27-2020, 12:45 PM
    Zinc oxide ointment such as Baza is an old skin barrier which helps to prevent moisture, not pressure, injury to the skin. We stopped using it years...
    7 replies | 999 view(s)
  • SCI-Nurse's Avatar
    01-27-2020, 12:39 PM
    Creams and ointments can sooth the pain of hemorrhoids (and decrease AD problems due to them), but they cannot cure hemorrhoids. If you are unable to...
    9 replies | 1089 view(s)
  • SCI-Nurse's Avatar
    01-27-2020, 12:36 PM
    Irrigation is rarely used any more, but if it is, it is really only used for those with distal (sigmoid or descending colon) colostomies, where the...
    5 replies | 187 view(s)
  • SCI-Nurse's Avatar
    01-27-2020, 12:32 PM
    SCI-Nurse replied to a thread weeping yellow fluid in Care
    I have also seen these fistulas or tracts develop in the perineum (the name for the area between the scrotum and anus in men). They can easily tract...
    11 replies | 650 view(s)
  • SCI-Nurse's Avatar
    01-27-2020, 12:26 PM
    Triumph, as I said above if there is no automatic tie-down system (like the EZ-lock) installed, then the only option for the wheelchair driver is...
    14 replies | 892 view(s)
  • SCI-Nurse's Avatar
    01-27-2020, 12:19 PM
    This is not a SCI care issue. Moving it to the Health News forum. Here is CDC information about this outbreak: ...
    7 replies | 254 view(s)
  • SCI-Nurse's Avatar
    01-27-2020, 12:15 PM
    SCI-Nurse replied to a thread Stage 2 sacral question in Care
    I have not been impressed by studies using barriers or pads like this to prevent sacral or coccyx pressure ulcers. All the studies I know of are done...
    11 replies | 160 view(s)
More Activity

50 Visitor Messages

  1. View Conversation
    Sorry I have not been on in a very long time I am covered with blue cross blue shield and my Manuel chair is a colours Razorblade.
  2. View Conversation
    hi, I don't know if I returned your message. yes, I am still in SC, It is a nice place.
    I hope you are well, and had a nice summer. Mine could have been better.
    Thank you for your note, and Im sorry it took so long to notice it.
    Take care, I am sure trying too.
  3. View Conversation
    your mail box is full man
  4. View Conversation
    I am a polio case, I wear my first KAFO since 13, after the hip bone surgery. Before that I was just using crutches.

    I can't remember how many KAFO I have wore. I think around 8 or 7. I only wear on my right leg.

    I only started to use wheelchair since 3 years ago, where I have shoulder tear, doctor advised me to rest my shoulder, not to walk too much on my crutches.

    After so many KAFO I have wore, only the very last 2 KAFO is really fit me and give me good support and the most comfortable one.

    I design the last two KAFO, base on some sample I read on website.

    You can see this in youtube:
  5. View Conversation
    Your mail box is full, so I reply you here.

    I really hate leather and all the straps, it can't really support me well. If the strap is too tight, my leg feel painful, if it is not tight enough, support is not enough too.

    I hate the technician in my country too, they just want to make money, and never willing to listen to what I want. Not until I insist my design, they won't do anything really fit me. But I am still not satisfy with their workmanship.

    Hopefully getting something even better. Have you heard of the Stance Control KAFO? And also some other new design?
  6. View Conversation
    Hey Bob I tried to respond but it said your mailbox is full...
  7. View Conversation
    VKL profile thì đừng có ăn chung, đã thấy người khác ăn vui lòng tìm chỗ khác, FAIRPLAY

    After a Vietnamese style breakfast we take you to one of the wonders of nature; Halong Bay. During our way we pass magnificent green rice paddies tended by peasant women with conical hats
  8. View Conversation
    low rate credit cards
    Indianapolis Home Builders
    After breakfast in our hotel we will climb up to Ham Rong Mount. From here, we have a fantastic panoramic view over Sapa Town, which is often covered in dense mist. The setting is extremely beautiful with its mysterious character.
  9. View Conversation
    Wholesale Graphic Supplies
    best home business opportunity
    . Tonight we have dinner in a tranquil restaurant where we taste some typical local specialties like the ‘Sapa Peach Wine’. We spend the night in a hotel in town.
  10. View Conversation
    text message
    dedicated to Confucius and his disciples. This temple used to be Vietnam\'s first university founded in 1076. After visiting this historical sight the we invite you to visit the Ho Chi Minh Mausoleum and the house of the hero Ho Chi Minh, who lives in the heart of every Vietnamese
  11. View Conversation
    Promotional Wallets
    lip balms
    You will be welcomed by our guide by arrival at Hanoi Airport. We transfer you with a comfortable vehicle to the city center of Hanoi to check-in in your hotel.
  12. View Conversation
    free psychic reading
    homes for sale louisville ky
    After dining in a local restaurant, we will catch the train towards Lao Cai. We overnight in our wagon to sleep out the journey that will lasts for at least 10 hours
  13. View Conversation
    best wrinkle cream
    data room
    who lives in the heart of every Vietnamese. We also bring a visit to the Tran Quoc Pagoda and the Quan Thanh Temple. We finish our city-tour by participating in an one-hour ride in a traditional rickshaw (bike) around Hanoi’s old quarter.
  14. View Conversation
    Bankruptcy Attorney Denton Texas
    All Natural Aloe Cream
    You will be welcomed by our guide by arrival at Hanoi Airport. We transfer you with a comfortable vehicle to the city center of Hanoi to check-in in your hotel.
  15. View Conversation
    It was created as part of a program designed to standardize the small arms inventory of the Red Army, where it replaced the 7.62x39mm RPD general purpose machine gun. The RPK continues to be used by the armed forces of countries of the former Soviet Union and certain African and Asian nations. The RPK was also manufactured in Bulgaria and Romania.

    water solar heating
    Ferienwohnung Usedom
  16. View Conversation
    While its diet consists almost exclusively of medium-sized birds, the Peregrine Falcon will occasionally hunt small mammals, small reptiles or even insects.

    international payments
  17. View Conversation
    We leave for Hoi An by following the Mandarin Road in the morning and passing the Ocean Cloud Pass where we can glimpse Da Nang's panorama. On arriving in Danang city we visit theChamMuseum and climb the MarbleMountains to get a panoramic view of the Beach.

    View More : HUẾ - ĐÀ NẴNG - HỘI AN or Hue - Danang - HoiAn
    Coral Calcium
    Pergola building
  18. View Conversation
    yo man... hows florida?
  19. Good to see you post, Bob, had me wondering. Hope you are ok.
  20. View Conversation
    Hey Bob,

    Thanks...I don't think I've been on this site for a few years so thanks for binging me back.

    Take care,
  21. WOW! Tons of family in NJ!! I used to live in Freehold also. Nice town!
    I dont love being this far south. I really want to head back up central/north!
    They have nice schools here but the towns are far to slowwww for me
    Guess I wouldnt survive the south!
  22. WHere on the Jersey shore? I grew up with a summer house on LBI! I currently live in Tuckerton UGH ..Its a rough town, but I will make it!! LOL
    Thats great you made friends to socialize with. I always manage to only like people who live across the board HA HA HA !!!
    Jim moderates the ...HMMM..I have to ask him HA ...I forget!!!
  23. No worries, bf/husband...same thing
    He posts under Jim Hes a moderator around here. Pretty much the reason I came. Glad I did!
    We have one pit mix. I would have TONS more but my landlord would probably kill me HAHAHA
    One day I want 10 pits (jokes)
    What state are you in? Im in NJ
  24. BOB,
    I updated my stats! Thanks for reminding me! Im AB the BF is SCI C 5/6. Met about a year and a half ago. Going strong since...THanks for the compliments....
    Have children?
    Rescue work is fun...draining and at times sad...but we enjoy it
  25. Thanks for the request! How are you ?? Im Andrea. Nice to meet you
  26. View Conversation
    Hey bob how is it going? Dont call tonight I have a friend visiting from Florida and he is sleeping
  27. Hey, Bob, your PMs are full and you can't receive new PMs until you delete some.
  28. View Conversation
    hey bob how are you doing
  29. View Conversation
    Hope you had a great Thanksgiving. My wife and I are 9 weeks pregnant and told our families yesterday for the first time. I don't have very much experience handling babies and now I have to do it from a chair but i'm sure I can adapt : )
  30. View Conversation
    It looked like you hand cycle? If you do what kind do you have and do you enter races? My doctor wants me to race. I was a marathon runner and a daily runner prior to my accident. I just loved to run. I have to get some kind of hobby and thought of the hand cycling. Hope you had a great day today. Take care,
    Best Regards,
  31. View Conversation
    I want to wish you and your family a very Blessed holiday season. Have a great day. I will keep in touch.
    Best Regards,
    Joe Monte
  32. View Conversation
    you can send a message through aim toda...but sooner than later
  33. View Conversation
    i have a set of braces but it is to hard to walk in them
  34. View Conversation
    no i dontuse leg braces thank god!
  35. View Conversation
    Good talking to you on the phone last night. You're the first person from this forum that I have spoken to outside of it. I'll be in touch.
  36. View Conversation
    I hope you and yours are in good health for this years memorial day! We know more than anyone about what this holiday really means. Send a prayer out for one of my best friends SSG Ryan Maseth who went into the ARMY with me and died in Iraq and also my recruiter Seargent Nyron who also lost his life in Iraq. Take care and remind people to "NEVER FORGET"
  37. View Conversation
    Hello, I have had my SP CATH for 2 years now and hate it!! i hate MS, it hurts and the docs said there is no reason for PAIN AROUND MY VAGING but urine is leaing trogh. so I AM URING when I should not.
  38. View Conversation
    Hey Bob, Can't come on the 23rd. Sharon is having surgery on that day. Lets get some lunch before that though. Pick a day next week. Thanks, Steve
  39. View Conversation
    Hey RAFS. Just wanted to say hi and see how your doing. You doing anything special for Memorial Day coming up?
  40. View Conversation
    Thanks for the friend request. This site seems to be wonderful so far, and I really enjoy it. You don't happen to know anything about TiLite wheelchairs do you?
  41. View Conversation
    thank you for making a friend request. My problem is that I am politically active in trying to get NIH to spend more money on central pain. However, at CareCure I tend to sound off. I think it would be best if I were anonymous so I can do what has to be done. Hopefully, the NIH will get a little money out of the trilliions the govt is spending.
  42. Hiya - I got your PM but when I replied it says that your inbox has exceeded capacity, so I can't PM you. Can you clear out some space for me?
  43. How about you? Do you play? What do you enjoy?
  44. Hey RAFS. Thanks, the more friends the merrier, I always say!

    The guitar in the background is a 1967 Jose Ramirez "Blue Label", Segovia model. One of my most prized possession, if there is such a thing! It is in poor repair, unfortunately, and needs a neck reset and fret work.

    I play mostly steel string acoustic and classical music. Folk, bluegrass, Bach, and some acoustic stuff (e.g. Crosby Stills and Nash, Neil Young, Jim Croce, Leo Kottke, Ben Harper, etc).

    The chair is a Lasher Sport BT-MG. Custom made, one of a kind type chair. It's the best chair on the planet, IMO! Saved for ever to get it, but its been worth every penny.
  45. Hey Matt,
    I see there's a bunch of us night owls still lurking around here on CC. Your welcome. I only speak the truth. I'm portly to & have a gut from failed abdominal reconstruction years ago after my umbilicus was removed because of post-op infection from umbilical hernia repair. Glad to hear that your new uniform is much better quality then the old standard.
    You have every right to be damn proud of your girls. If you don't have bragging rights no one does.
    You take care too ! & Happy New Year. I hope it's a great year for all of us.
    Oh, one thing. Are you bye chance going to the Veterans Wheelchair Games in Spokane this coming July? I don't know how far away Spokane Washington is from you. I hope to get to go this year for the first time. Keep your fingers crossed for me that I get to go. If you go that would be neat for us to get to meet.

  46. Hey Bob,

    Thanks for your kind words. Yeah I had to purchase a new uniform some time ago - "portly" for my quad gut. Much better quality than the old standard.

    My girls are all grown now, damn proud of them.

    You take care, and Happy New Year. I hope it's a great year for all of us.
  47. View Conversation
    I think I finally pushed the right buttons to get you on my friends list!
    Have a good new year.
  48. View Conversation
    Hey Bob, I will give you a call after the holidays, probably friday I'll get some privacy, lol.
  49. What's news there Bob, VA taking care of you? Hope you got my PM regarding a forum for veterans, get back at me.
  50. View Conversation
    I am sorry that I did not answer earlier. The moderators are still discussing the situation and I will let you know as soon in a day or two. Wise.
Showing Visitor Messages 1 to 50 of 50
About RAFS

Basic Information

Date of Birth
May 19
About RAFS
Date of injury (NA if not spinal-injured)?:
Spring Hill , Florida
hand cycling wallyball(volleyball in wheelchair) travel dining out classical music theatre plays
Moderate to severe lumbar spinal stenosis
Trached 2/98
Vent User for Sleep 12/98
Wheelchair User
Why did you join this forum?:
To commucicate with others who have sci as I have friends with sci
How did you find us?:
From another website
What do you think of this site?:
I think it is fantastic


This Page
Instant Messaging

Send an Instant Message to RAFS Using...


Total Posts
Total Posts
Posts Per Day
Visitor Messages
Total Messages
Most Recent Message
04-05-2014 05:32 AM
General Information
Last Activity
09-20-2013 01:49 AM
Join Date

234 Friends

  1. patecatl patecatl is offline

    Senior Member

  2. Patrick Madsen Patrick Madsen is offline

    Senior Member

    Patrick Madsen
  3. pattherat pattherat is offline

    Senior Member

  4. Peders Peders is offline


  5. petemancw petemancw is offline


  6. pumpingiron pumpingiron is offline

    Senior Member


    Junior Member

  8. quadvet quadvet is offline

    Senior Member

  9. randomryan007 randomryan007 is offline

    Senior Member

  10. redroc2 redroc2 is offline

    Senior Member

Showing Friends 151 to 160 of 234