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  • stephen212's Avatar
    12-08-2019, 08:29 PM
    I never push a shopping cart. Instead, I shop with a basket on my lap. I sometimes bring 2 baskets and in that case request that someone carry the...
    15 replies | 612 view(s)
  • stephen212's Avatar
    12-08-2019, 08:21 PM
    I think the disability signs in the photo were photo-shopped. THAT's how much of a voting bloc we are. I'll read the article later, but I doubt...
    4 replies | 431 view(s)
  • stephen212's Avatar
    12-03-2019, 04:14 AM
    Same at Trader Joe's. The employees there will help carry things to my car, which I need when I have more than one basketful of things, and there's...
    4 replies | 855 view(s)
  • stephen212's Avatar
    11-16-2019, 02:11 PM
    stephen212 replied to a thread Colostomy? Recovery time? in Care
    Emmett, My injury level is lower than yours -- T4 complete -- I'm able to use the Peristeen independently. The Peristeen's "magic" is coupled with...
    36 replies | 3320 view(s)
  • stephen212's Avatar
    11-15-2019, 04:18 AM
    stephen212 replied to a thread Colostomy? Recovery time? in Care
    I didn't say I've been using it the longest, just the most. As Bill Maher says, "I can't prove it, I just know that it's true."
    36 replies | 3320 view(s)
  • stephen212's Avatar
    11-14-2019, 02:47 PM
    stephen212 replied to a thread Colostomy? Recovery time? in Care
    I'll take that bet. I've been using the Peristeen since 2011 having first purchased it from a supplier in Australia, which is pre-FDA approval. And I...
    36 replies | 3320 view(s)
  • stephen212's Avatar
    11-14-2019, 01:24 AM
    stephen212 replied to a thread Colostomy? Recovery time? in Care
    Some insurance covers it. Mine doesn't but I find them on eBay for not too much. The manufacturer, Coloplast, won't allow distributors to sell them...
    36 replies | 3320 view(s)
  • stephen212's Avatar
    11-13-2019, 01:19 AM
    stephen212 replied to a thread Colostomy? Recovery time? in Care
    The Peristeen is essentially an enema. Its utility is that the rectal catheter has an inflatable cuff that allows you to retain the water as you fill...
    36 replies | 3320 view(s)
  • stephen212's Avatar
    11-11-2019, 01:12 PM
    stephen212 replied to a thread Colostomy? Recovery time? in Care
    Not to talk you out of/into anything, and recognizing that our injuries even when similar on paper all behave differently, I have been using the...
    36 replies | 3320 view(s)
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    Hi Nonoise
    I can't find a way to upload images of my Magura brakes.
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About nonoise

Basic Information

About nonoise
Date of injury (NA if not spinal-injured)?:
na, see signature, Mine was not typical SCI
Location:
Seattle
Gender:
Male
Occupation:
retired
Interests:
mechanics, woodworking, landscaping
Biography:
born with genetic hypokalemic periodic paralysis, which has advanced to permanent paralysis of mainl
Why did you join this forum?:
paralysis help
How did you find us?:
don't remember
What do you think of this site?:
love it

Signature


I have had periodic paralysis all my life. I lost my ability to walk in 2011 beginning with a spinal block, which was used for a hip fracture caused by periodic paralysis.

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