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Conversation Between Duran and keeping on
Showing Visitor Messages 1 to 5 of 5
  1. Duran
    11-23-2009 10:57 AM
    Duran
    Just found a today's announcement: http://www.genengnews.com/news/bnite...hid=4&taxid=34

    "It is our hope that this approach will one day lead to a viable treatment option for these afflicted children, and possibly also for patients suffering from other myelination disorders, such as multiple sclerosis, transverse myelitis and certain types of cerebral palsy."
  2. Duran
    11-23-2009 08:25 AM
    Duran
    Sorry, Tony. I don't keep an eye out for transverse myelitis research, but I know that Morvan's syndrome is a rare autoimmune disease which results in weakness, insomnia or even hypertension. However, you might contact Douglas Kerr, who is working in this area, for some update. Also, I think there are some people with transverse myelitis looking for any help on CareCure. Just try to join them.

    Joe
  3. keeping on
    11-22-2009 05:53 PM
    keeping on
    Duran or Joe, it seems those with cervical injuries seem to have hope thru rehab. I don't knowwhat is true or bullshit on some of these announcemnets. I'm lookin for some promise that is legit. I had an auto immune resonse to a cancer. I devoped Morvan's Syndrome(very rare) and transeverse myelits. I have some sensory below my waite and exercise everyday, but will need some sort of intervention to improve. Are you following some of these "breakthrus"?
  4. Duran
    11-12-2009 03:08 PM
    Duran
    Hi, Tony. I am a C/5 quad due to diving accident. I don't know how long it's going to take. Not too long, I hope. We'll see.

    Joe
  5. keeping on
    11-12-2009 10:41 AM
    keeping on
    Duran, what is your injury or condition? Mine is transverse myelitis post 2 years. I'm looking for a therapy to come along for human treatment that is considered proven. I'm sure many of those in wheelchairs are looking for the same. My name is Tony; Pittsburgh Pennslyvania.

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