Blog Comments

  1. SCI-Nurse's Avatar
    This is exactly why we need universal health care in the USA, such as is proposed in the House Bill 1384 "Medicare for All Act of 2019", primary sponsor Rep. Pramila Jayapal (D). I am not a fan of that name, as the program will be much better than Medicare (for example, covering dental, vision, and hearing services, as well as long-term care, no prior authorizations, no premiums, no need for supplemental insurance, etc.) but I am an active volunteer in the campaign to get this for the USA.

    https://www.healthline.com/health/wh...e-in-america#4

    (KLD)
  2. Spitzbub's Avatar
    Thanks, will act on your suggestions. My neuro comes off poorly the way I wrote him. But he's turned a lot of things around for me so I'm going to bring up my concerns again on our next visit.
  3. Spitzbub's Avatar
    I saw entirely too much of Rush (as a patient) but 10 years too late. I would love to have heard her speak.
  4. SCI-Nurse's Avatar
    It is very common to develop some degree of cognitive dysfunction with MS over the long run. How much will differ from person to person, and generally is directly related to the location of large plaques in the brain. If you neurologist is not assessing this with you on a regular basis, ask to be referred to a neuropsychologist who can assess, and suggest compensation and remediation techniques to help manage this. A speech pathologist may also be a good option, as they are very involved in remediation of cognitive deficits. You might want to find a different neurologist who is more responsive to your needs, and has a less defeatist attitude toward the management of your MS.

    (KLD)
  5. SCI-Nurse's Avatar
    I was in graduate school in Chicago, at Rush University (her alma mater) in 1981 & 1982, right after she started Access Living Chicago. She was a guest lecturer for our classes, and I also met her at RIC, where I had my clinical. She was also active at a number of disability rights conferences and even on the Phil Donahue show (filmed in Chicago) during the time I was there.
  6. Spitzbub's Avatar
    Thanks for reading. How did you know her?
  7. SCI-Nurse's Avatar
    Thank you. She was an amazing woman. I am honored to have known her.

    (KLD)
  8. Spitzbub's Avatar
    I don't know much at all about taxes, but compared to other industrialized countries we spend twice as much per capita on medical and get worse results (tens of millions uninsured, falling life expectancies, higher drug prices, etc.). We are richer than these other countries too, so … ???

    of all countries with national healthcare, not one has ever tried to repeal it. : good point.
  9. Gearhead's Avatar
    Bush 43 made student loans and medical except from bankruptcy. You can still file for bankruptcy but will still fully owe these debts.
    Obamacare fixed the pre-existing clause but this is under attack.
    With our current tax system, I don't think we can afford Medicare for all but it's possible.
    I saw in an interview, a British doctor was asked what was the difference between him and an American doctor. He replied, "British doctors live in $1m homes, American doctors live in $2m homes". Also, the interviewer made a point that of all countries with national healthcare, not one has ever tried to repeal it.
  10. Spitzbub's Avatar
    Good point, I have a habit of using the two interchangeably. Thanks.
  11. SCI-Nurse's Avatar
    You should change the title to mechanical lifts. Hoyer is a brand name and doesn't make the lifts used at these hotels, which are actually ceiling track lifts.
    (KLD)
  12. Spitzbub's Avatar
    You're exactly right, KLD, and I didn't. 17 years later and I've learned that nothing changes without follow-up.
  13. SCI-Nurse's Avatar
    Did you file a complaint with the owner? With the DOJ? Did you contact Access Chicago for advocacy help? This kind of thing continues because too few people follow up with complaints.

    (KLD)
  14. Spitzbub's Avatar
    Thanks.
  15. Spitzbub's Avatar
    Oh thank you! Looking at your list, you and I would get along fine. (I just rolled in from a long road trip and we were hitting Little Steven's Underground Garage hard.) Saturday afternoons from 1-5 central, you can find Those Were the Days, vintage radio shows on WDCB which was referenced in my blog. I know that it streams online. Thanks again and let me know if you want to trade more programs.
  16. Crashbang's Avatar
    What a good post, you should think about writing a regular column for New Mobility magazine! I?m home alone with my radio/computer for company, too, and I feel the same pain when favorite shows and announcers, hosts, broadcasters retire or move elsewhere. I?m including the links to shows I enjoy and hope they?ll maybe add some enjoyment to your list and to other CC members. I?m wishing you and all a happy new year and hope to contribute more in the months ahead. Thanks, Spitzbub, for your excellent post and reminder of the joys of streaming radio shows and music. Here are some of my faves:
    Legends radio, classic jazz, mainly with vocals:
    http://theoriginalgasstation.com/mobile.php
    Replays of Garrison Keillor?s Prairie Home Companion shows:

    http://www.garrisonkeillor.com/radio/
    Replays of radio humorist Jean Shepherd?s broadcasts from station WOR, NYC:
    https://archive.org/details/JeanShepherd1965Pt1
    Vintage rock curated by Little Stephen Van Zandt, with current and archived shows:
    http://undergroundgarage.com/shows-8...g-to-town.html
    Celtic music show, The Thistle and Shamrock:
    http://thistleradio.com/
    Metropolitan Opera radio:
    https://www.siriusxm.com/metropolitanopera
  17. SCI-Nurse's Avatar
    This kind of post will get more attention in on of the News forums rather than a blog page, which few members read.

    (KLD)