Quadzila@optonline.net
04-23-2008, 04:13 PM
Hello everyone,
I may be going for some inpatient therapy for, as one doc put it "a tune up". I am a C-4 Quad with some use of my left arm and hand but that's getting weaker due to the progression of my injury. I've also lost a lot of trunk strength and my legs are so tight I can no longer straighten them. I used to have a lot of leg spasms which left my legs with good range of motion but after an intrathecal pump implant in January of '06 my legs became very tight because the pump had stopped the spasms and I didn't get myself enough physical therapy to keep them loose. I'd kick myself for this if my legs weren't so damned tight!
I spoke with an orthopedic surgeon who said the only way I could get my legs completely straight would be through some sort of tendon lengthening surgery. I don't believe this as the few hours of home PT I do get each week do help increase my range, if only a little bit. In a few weeks I'll be admitted into a hospital for a trial to have my pump medication is changed, My doctor wants to keep an eye on me during this change in medications. After that, I hope to be admitted into Burke rehabilitation in White Plains New York, Mount Sinai's rehab unit in New York City or Gaylord Hospital in Wallingford Connecticut. Can anyone provide information on these and which you feel is best? I did have a short stay at Gaylord Hospital a while back and feel it's a good hospital but am wondering how it compares to the other two.
Any info you can provide is greatly appreciated!.
I may be going for some inpatient therapy for, as one doc put it "a tune up". I am a C-4 Quad with some use of my left arm and hand but that's getting weaker due to the progression of my injury. I've also lost a lot of trunk strength and my legs are so tight I can no longer straighten them. I used to have a lot of leg spasms which left my legs with good range of motion but after an intrathecal pump implant in January of '06 my legs became very tight because the pump had stopped the spasms and I didn't get myself enough physical therapy to keep them loose. I'd kick myself for this if my legs weren't so damned tight!
I spoke with an orthopedic surgeon who said the only way I could get my legs completely straight would be through some sort of tendon lengthening surgery. I don't believe this as the few hours of home PT I do get each week do help increase my range, if only a little bit. In a few weeks I'll be admitted into a hospital for a trial to have my pump medication is changed, My doctor wants to keep an eye on me during this change in medications. After that, I hope to be admitted into Burke rehabilitation in White Plains New York, Mount Sinai's rehab unit in New York City or Gaylord Hospital in Wallingford Connecticut. Can anyone provide information on these and which you feel is best? I did have a short stay at Gaylord Hospital a while back and feel it's a good hospital but am wondering how it compares to the other two.
Any info you can provide is greatly appreciated!.