Bryans Mom
11-12-2007, 12:25 PM
For those of you who don't know me..My 31 yr old son Bryan is a C1-2 quad on a ventilator. His accident was April 2004. Last week the Independent Living Center here has informed him that he basically is receiving too much government money! They have told him that, according to KS law, with the amount of money he has coming in is $500 over the limit!! They said he must start paying $500 of his medical expenses a month...EVEN THOUGH he doesn't HAVE and extra $500 a month to pay them!! His check is gone as soon as he gets it to cover his normal living expenses of a $500+ house payment, gas&electric, phone, cable..etc.etc. Plus..WE are already paying for all his food and other supply expenses..for instance, just last week I paid $42 for a box of sterile gloves..cuz it's not covered by insurance!!
Second thing..he has ordered a new chair since his is falling apart and he got a call last week that a $900 manual control switch is not covered by insurance..and does he want to purchase it...well..umm..HE HAS NO MONEY!! DUH!! so..he had to say no.. SO..the only way to control his chair is with his sip&puff..that means..no one else has anyway to control that chair..to move it to bring it to him or put it back where he keeps it when he's not using it...or if something happened to him while he was in it and he was unable to control it ..or if the sip&puff controls when wacky..which they have at times..so that's a pretty scary thought that we couldn't manually move him!! But..they think one control is enuf on a chair!! grrrr...!!
Third thing is since his divorce, when his wife left, so did his only means of transportation since HER parents owned the van he used. SO, I just wondered if anyone knew of any funding to get a van. Unfortunately, he's not working so voc-rehab will not fund it at all.
Pretty big disappoint mess allthogether..and if those things aren't enuf...he has also been battling pneumonia this past week!
Finally were able to get him nebulizer meds going and then this a.m. found that the aide didn't properly store the little insert hose thingy to attach to his ventilator hoses and it had fallen on the floor and the dog got a hold of it and chewed it up!! grrrr!! so now they have to wait a couple of days to get a new part for THAT!! Which means no pneumonia meds adminstered!
If anyone can help or give any suggestions on any or all of the above..I would be greatly appreciative!!
Thanks!
Sandy
Second thing..he has ordered a new chair since his is falling apart and he got a call last week that a $900 manual control switch is not covered by insurance..and does he want to purchase it...well..umm..HE HAS NO MONEY!! DUH!! so..he had to say no.. SO..the only way to control his chair is with his sip&puff..that means..no one else has anyway to control that chair..to move it to bring it to him or put it back where he keeps it when he's not using it...or if something happened to him while he was in it and he was unable to control it ..or if the sip&puff controls when wacky..which they have at times..so that's a pretty scary thought that we couldn't manually move him!! But..they think one control is enuf on a chair!! grrrr...!!
Third thing is since his divorce, when his wife left, so did his only means of transportation since HER parents owned the van he used. SO, I just wondered if anyone knew of any funding to get a van. Unfortunately, he's not working so voc-rehab will not fund it at all.
Pretty big disappoint mess allthogether..and if those things aren't enuf...he has also been battling pneumonia this past week!
Finally were able to get him nebulizer meds going and then this a.m. found that the aide didn't properly store the little insert hose thingy to attach to his ventilator hoses and it had fallen on the floor and the dog got a hold of it and chewed it up!! grrrr!! so now they have to wait a couple of days to get a new part for THAT!! Which means no pneumonia meds adminstered!
If anyone can help or give any suggestions on any or all of the above..I would be greatly appreciative!!
Thanks!
Sandy