pain pool

[adi chicago]

pain pool
which pain is the worse in the world?
1.neuro pain?
2.cancer ?
3.aids ?
4.others.

[sjean423]

Only people who have personally experienced more that one of these can compare. It is too subjective.

[Broknwing]

i agree with sjean

[JenJen]

Adi, focus on something positive for a change.

[adi chicago]

Adi, focus on something positive for a change.
was just a simple question....i wish i can be pain free.i just wonder which pain is the worse one.

[JenJen]

The pain you're in at the time, regardless of its origin is the worst kind of pain. Now, focus on something positive. :)

[sjean423]

Adi, I think you are just tearing yourself up hear dwelling on this. Truthfully, what ever is hurting YOU, or me, or whomever, is at that point in time seems the worst because it is personal. Yes, we can always find someone who is worse off, but that doesn;t make us feel any better. Just like thinking about the starving children in Africa didn;t make you any hungrier as a child.

Let it go for a bit. FOcus on something else for a while. Make it an experiment! Tell yourself that for 1 DAY you will only focus on the positive things in your life. Just 1 day. Your family. Or the fact that your pressure sores are better, Beer. Something. Whatever you can come up with. The next day you can go back to feeling bad for your self. Then do it again.

I tell you what. I will do the same thing. Lets meet back here tomorrow night and compare notes!


edited to add: reread my second sentence, yea, what Jen said! She posted while I was.

[adi chicago]

neuro pain sucks...
http://www.sciencedirect.com/science?_ob=ArticleURL&_udi=B6WF3-4N55TTK-2&_user=10&_coverDate=11%2F30%2F2007&_rdoc=5&_fmt=summary&_orig=browse&_srch=doc-info(%23toc%236783%232007%23999889991%23667012%23F LA%23display%23Volume)&_cdi=6783&_sort=d&_docanchor=&_ct=13&_acct=C000050221&_version=1&_urlVersion=0&_userid=10&md5=07bcae5224d9eae07e6cb8f898689b92

[lynnifer]

I've noticed that I develop an 'uncomfortable' feeling in my feet prior to that time of the month lately (a few months now). My description is 'feet stuck in cold heavy lead.' I can't imagine being in pain 24/7. It does occupy my mind and I seem to notice it more when I'm at work and it's noticeably difficult to concentrate but nowhere near the point where it's intrusive on my life. I've been blessed to live painfree for more than two decades.

Does stretching or building up muscle (regular exercise) or massage help? Would you have access to a heated pool adi - ?

[darrel]

the pain that you are in at the moment is the worse who thinks of the pain you were in yesterday and who knows what pain you will be in tomorrow ... I know that you were asking of the different desease type pain but this is all I have...

[adi chicago]

since my injury no ab can understand my pain level....is sad but true.i was ab before and i know what pain means ...neuro pain and sci ?..........i push myself to stay alive and to keep my mouth quiet.
neurophatic pain.........agrrrr..........

[David Berg]

FWIW, I've heard end-stage AIDS is capable of causing central pain. I can't recall the explaination for why this can occur.

[rollin64]

Adi, I think you are just tearing yourself up hear dwelling on this. Truthfully, what ever is hurting YOU, or me, or whomever, is at that point in time seems the worst because it is personal. Yes, we can always find someone who is worse off, but that doesn;t make us feel any better. Just like thinking about the starving children in Africa didn;t make you any hungrier as a child.

Let it go for a bit. FOcus on something else for a while. Make it an experiment! Tell yourself that for 1 DAY you will only focus on the positive things in your life. Just 1 day. Your family. Or the fact that your pressure sores are better, Beer. Something. Whatever you can come up with. The next day you can go back to feeling bad for your self. Then do it again.

I tell you what. I will do the same thing. Lets meet back here tomorrow night and compare notes!


edited to add: reread my second sentence, yea, what Jen said! She posted while I was.

it's a lost cause sjean, you see the response ya got. ;)

[quad79]

Adi,neuro pain is the worst pain ever, you have the worst case, it's slowly killing you and as you cry in pain, nobody will ever understand.

Happy?

[Le Type Français]

quad79,

That dog is beautiful!!

[sjean423]

it's a lost cause sjean, you see the response ya got. ;)

yea, i know. :(

[jerryblt06]

I notice I notice pain more when I'm lieing down. or not moveing much. I know its not funny ,Adi. but, right after I had my acident, I tried to zippen up a zipper on a pair of jeans, and caught my willie in my zipper. I sreamed so loud, it shook the windows. I wouldn't want to go through that everyday.

[Le Type Français]

Aww! Jerry, I love your dog as well. That's one beautiful canine.

[quad79]

quad79,

That dog is beautiful!!

Thanks bud. That's Eubow, my male Siberian Husky. He's been very protective of me since my injury . That's his sleeping pal, Puss Potato beside him.They're both mama's boys!

[Le Type Français]

How do you say Eubow? Like oo as in boo and bow as in beau?

[dejerine]

adi,

I am sorry you are suffering.

I might ask your "pool" question a little differently. Which NEURO pain is the worst.

The answer is that every person has it a little different, which means until we have some way to quantify, it is in the realm of the unanswerable. There is a very thoughtful piece on the imponderable measure of pain at David's site, painonline.org, written by Carl Saab. Anyone would long for the end of perpetual severe pain, at any cost. Giving in to this longing is not the same as having the longing. Not giving in is mostly what we do. This is not anyone's choice for life, but we take the hand we are dealt and try to do the best we can, which mostly means to stay alive, in really terrible cases. Anyone who has watched the little lab rats be given central pain and then desperately try to chew their limbs off does not question that central pain is severe enough not to worry about quantifying it.

When I was sitting waiting for deep brain surgery which I was told had a forty percent chance of turning me into a "vegetable" I knew that I and the others in that miserable clinic were at the very bottom of humanity--who else gives up their brain willingly except severe pain cases. The doctor had done his 150th deep brain implant the prior day and when he got to me he said he wasn't going to do it because his series was complete and because he thought it was too risky for high cervical lesions in young people, who would need many repeats. I was willing however to go home with wires coming out of my skull and a battery. I think this craziness is about as good a measure of central pain as anything else. The loss of human dignity and the giving in to ANYTHING with any possibility of helping.

Neuro pain is just a word. It can be peripheral (limited area) or central (possibilty of very extensive pain area). There are people for whom it means a slight sunburn, a jolt. a muscle spasm pain, and there are those who cannot stand clothing, laying on the bed or touching sheets, eating food, having the bladder fill, the rectum distend, or using muscles, or even just sitting still. It can be in the mouth, on the corneas, on tender genitalia, the tip of the tongue or lips, around the brain in the dura, any tender place. It can also be constant or intermittent.

These neuropathic pains cannot be fit into one word. To me, that is an important thing about neuropathic pain. It is just not equivalent from person to person.

I can tell from reading your posts that you are in a great deal of pain. It is more than you know what to do with. That is enough to tell you that, for you, it is very bad.

There used to be a book of comparisons which I forget the title. It had one hundred choices. The only one I remember was "Would you rather slide down a hundred foot razorblade into a pool of alcohol or drink a barrel of monkey snot?

You see, it cannot be answered. I think if that could be the end of it, no more pain, we would nearly all rather do either of these awful things than face a life of unending burning dysesthesia. It is in fact a moral failure to think what we would be willing to do to be free of pain. I am glad the choices are not presented to me. I remember a POW in Hanoi who said after they tied his arms together behind his back for 48 hours, cramping his shoulder blades, and deprived him of sleep, he would have cast his child into the fire to stop it. One of our blessings is that we are not asked to make such choices. For this, we weak humans can be grateful. We never know our breaking point. However, we now know we have one, and it makes us wonder how we could ever face the Almighty and straightfacedly claim to be good people. With severe CP, one can feel closer to worms than upright, morally sound, right thinking people.

The amount of misery is a function of stress in life, how much of the body is neuropathic, and how many neuropathic pains one has. Just my opinion. What more can one say? You wouldn't be asking these questions if you weren't having some kind of crisis inside. My two cents is, you must avoid stress. Nothing else works, IMHO. Stay away from toxic others, from doubting others, from critical others. Try to make peace with yourself and say "I can do this. It doesn't seem like I can, but I did it yesterday, and I can do it tomorrow." It is always worse in the quiet of the night. Day dawns and somehow you manage to feel a little more able to go on.

[lynnifer]

Ironically I attended a seminar on aging with paralysis today. A gentleman in the audience admitted that he 'self-medicated' his pain for a number of years but had been clean & sober for six.

He turned to marijuana and tried to tout the benefits of it to the audience and the presenters. I have no experience with his as I've never suffered a great deal of pain, but it comes up at every conference I attend .. have you tried MJ for it adi?

[quad79]

How do you say Eubow? Like oo as in boo and bow as in beau?

More like You-beau, means wolf in some sort of Indian language.Came from his grandpa.

[adi chicago]

Ironically I attended a seminar on aging with paralysis today. A gentleman in the audience admitted that he 'self-medicated' his pain for a number of years but had been clean & sober for six.

He turned to marijuana and tried to tout the benefits of it to the audience and the presenters. I have no experience with his as I've never suffered a great deal of pain, but it comes up at every conference I attend .. have you tried MJ for it adi?
i never tried marijuana ...is illegal here.when i ask for morphine my family and docs says ....adi is crazy ...quads dont have pain and morphine is use for patients with real pain...cancer.hmmmmmmmm.....some ab simply dont understand how neuro pain works ....torture .:2guns: :2guns: :2guns: :beer: :beer: :beer: :frypan: :frypan: :frypan: :hissyfit: :hissyfit: :hissyfit:

[darrel]

hello adi, how are you today?

[adi chicago]

hello adi, how are you today?
still a lot of pain and i argue with my sister and her son...daily.....i am a burden for them ...i ruined their lifes.. ...being a quad....they need some corporal punishment.....they forget who is the boss in the house ...i must remaind them....lol.

[darrel]

I'm sure you do adi,lol..sorry to hear your hurting, and feel that you are a burden..have you thought about visiting other members of your family or friends?

[adi chicago]

I'm sure you do adi,lol..sorry to hear your hurting, and feel that you are a burden..have you thought about visiting other members of your family or friends?
i stay in my room since november last year .....life is a bitch...is hard ...i was a gold mine always ..they will miss me soon.

[darrel]

you never answered, have you thought about visiting other family or friends for a while? it might be what you need...a change of scenery..

[adi chicago]

you never answered, have you thought about visiting other family or friends for a while? it might be what you need...a change of scenery..
i always was the blacksheep ...regarding my family mentality ...but i always helped them...money....i worked hard [usa]....and i never asked them to return my money back...ab or quad......i helped them a lot ....if a cath ,bowel or transfer is too much for my sister after 5 years since my injury .....my answer to them ...let me die and never touch me again.
damn depression and neuro pain.

[lynnifer]

Are you eligible to live in the USA again?

[adi chicago]

Are you eligible to live in the USA again?
yes but alone ....i will end in a nursing home ....no members of my family have the visa to work and live in usa.i am the only one .

[darrel]

would you be happier over here? some times one needs to take a chance to help them selves..if you are not getting the care that you feel you should, then take a chance..why would you have to go to a nursing home? don't you qualify for better housing with a PA

[alan]

I haven't experienced the other pains, so I can't compare. I can only say that central pain has ruined my life, and is much worse and more disabling, in my case, than the quadripliegia that led to it. These sensations are incredible and can't be fully described. This is torture.