Need Info, Which Hosp, Midwest IL

[Lee555]

Well I need to travel out of town to get the tests done to find out what exactly is going on. I personally sent info to a clinic in town to one neurologist and he declined to assist, then the nurse prospected another with the info I sent and they declined. Obviously this is something that is beyond the scope of the medical environment here in Springfield. Sad, really sad.

So, to get something done it will most likely be Barnes Jewish Hospital in St Louis. Does anyone have experience there? A special doctor they've seen?

[ladybyrd043@hotmail.com]

Our experience at Barnes Jewish has been very good so far. The doctors and staff that we have dealt with there have been respectful, explained everything to us--why they want to do certain things and how they are done.
Our son has an entire team of doctors working with him on a variety of different issues. Depending on the type of doctor you need we might be able to tell you which one we've seen.
Debby, Troy's mom

[SCI-Nurse]

You might also want to consider Northwestern Hospital in Chicago, or the University of Chicago Hospital.

Moving this to Doctors and Clinics forum.

(KLD)

[darrel]

Well I need to travel out of town to get the tests done to find out what exactly is going on. I personally sent info to a clinic in town to one neurologist and he declined to assist, then the nurse prospected another with the info I sent and they declined. Obviously this is something that is beyond the scope of the medical environment here in Springfield. Sad, really sad.

So, to get something done it will most likely be Barnes Jewish Hospital in St Louis. Does anyone have experience there? A special doctor they've seen?
have you tried "associated University Neurosurgons" in Peoria? that is who I go through, if you want their number you can send me a pm through the sight or "myspace.com/naturalbornklutz"

[Lee555]

Our experience at Barnes Jewish has been very good so far. The doctors and staff that we have dealt with there have been respectful, explained everything to us--why they want to do certain things and how they are done.
Our son has an entire team of doctors working with him on a variety of different issues. Depending on the type of doctor you need we might be able to tell you which one we've seen.
Debby, Troy's mom

Thanks Debby. I am not sure what type of doctor, although I suspect it will have to be a neurologist, or neurosurgeon. Just not sure. Someone who deals with head trauma as well as spinal injury. I have

1. Spasticity. This might be an upper motor neuron problem???
2. Paralysis of muscles in shoulder, arm and hand, back muscles, some butt muscles, leg to foot. The extensors.
3. Muscle spasms in the back, left side. This I beleive is the cause of the intense spinal pain when the muscles that support and hold the spinal column up. What it may be doing is compressing the nerve roots and/or wrenching the facet joints as the muscle contracts. I say this because tonight I sat outside and the left hip was a little tight so I popped the hip a couple of times, and moments later my back muscle went into spasm and as it came up the neck into the skull area, I could hear the pops and snicks of stuff moving. Uhh, I am going to be careful about doing this in the future, cause it like uh, hurt me bad.

[Lee555]

have you tried "associated University Neurosurgons" in Peoria? that is who I go through, if you want their number you can send me a pm through the sight or "myspace.com/naturalbornklutz"

Never heard of them Darrel. But I'll look into it. I looked at their web site, are they a teaching facility? I'm getting a bit pooped here, and didn't get all through the site. Need some sleep soon.

[Lee555]

You might also want to consider Northwestern Hospital in Chicago, or the University of Chicago Hospital.

Moving this to Doctors and Clinics forum.

(KLD)

Oh man, slap my hand for not looking through the site for the right place to post. Sorry. LOL! Guess I was a bit too focused. It's been a very stressful week for me.

I would kinda like to avoid going to chicago. My hubby finds it the worst city to drive it. And since he'd be the driver in this situation, I would have to defer, even simply because it would also be less stressful to me. Hahahaha! Would hate to arrive at an appt all stressed out just because of the drive.

[chick]

Both Northwestern and UC hospitals are East along/off of lakeshore Dr. Northwestern is downtown, but UC is off of southshore and right into Hyde Park. It's only 15 min or so drive further down LSD to downtown, and hardly any traffic if you avoid rush hour. I think the Dan Ryan just finished construction, so traffic should be even lighter now. But, if coming in from the south, UC hospital is pretty far south of city.

[darrel]

Never heard of them Darrel. But I'll look into it. I looked at their web site, are they a teaching facility? I'm getting a bit pooped here, and didn't get all through the site. Need some sleep soon.

they may be a teaching facility ,but they are the ones that did my lapenectomyC3-C6 at OSF and that is who I am going through to have my baclefen pump put in. My G/F had to have coiling done for an anurism and her Dr. was from the same office. as old as the Dr.'s look I don't think that they are learning/ more like teaching

[Lee555]

they may be a teaching facility ,but they are the ones that did my lapenectomyC3-C6 at OSF and that is who I am going through to have my baclefen pump put in. My G/F had to have coiling done for an anurism and her Dr. was from the same office. as old as the Dr.'s look I don't think that they are learning/ more like teaching

By teaching hospital I mean they have medical students that are basically doing an internship at a facility. I've kinda had my fill of barely dry behind the ears Residences, you know what I mean? The current PCP is one and I got a horrible gut feeling she's going to balk at doing any referral for the required tests. If she does, I do have a back up plan in going back to the walkin clinic doctor who prescribed the Tizanidine. I can't do that though before I go to the PCP and get the refusal of service, otherwise I bet he would point me back to her. Politics in Medicine. Ridiculous.

[Lee555]

Well I have made a decision, I am going ot go to Barnes Jewish. They are listed as 7th or 9th best Hospitals in the nation for neurology procedures, so that's my goal. Wish me luck.

[Lee555]

Well went to the PCP appt today, and it went badly. I tried to tell her about the new problems, leg and foot now a similar problem to the arm, jaw tight and grindy, and she was deaf to it. Tried to tell me it was trauma stress and somehow I was doing this to myself. Sheesh. And she only beleives 'half' of me. Which half I wondered, the good side or the messed up side? LOL! Seriously now, she didn't have the report from the latest neuro doctor (although I'm not sure how much good it would do) nor the letter from the physiatrist who said to get all the tests done. It took 40 freakin' minutes to get the info across about the neuro doc. and that she wasn't going to do anything and who the physiatrist was and that he couldn't refer me to Barnes. At last though she said yes to the referral and went out for a minute or so to talk to someone, came back in started to write it up and she was called out of the office and when she reentered, said the referral was going to be followup testing to an accident I had 18 months ago. Huhhhh? I told her it had been resolved, but she was like, we have to have something to base these tests on. The accident I say. No way was she going to relent. So I told her to stop the process, I had to leave for an office meeting and left.

Reason why I walked out was because doing it that way would negate any claim my injuries had on the accident. 100% of it. In addition, they had not filled my painkiller script yet by 5 pm. Figured that was it, she was history. Buuuutttt, she called my cell and asked if I still needed it, yes. And we talked a bit more about the referral, told her after PT in early 06 I never sought medical care for that particular problem again. It had gotten 100% better. Ohhhhh, she says, well that makes a difference. She said she'd call the physiatrist on Weds. and I told her I would drop off a copy of his letter in the morning. I hope she is having doubts about where she wants to lead me or she doesn't want to be known for the first resident in her class to be dragged into court for a serious error.