post myelitis

[Dee's House]

I was diagnosed with transverse myelitis in 1995. I was able to recover my walking but have chronic pain and stumble and fall quite often. Does anyone have these same type of syptoms???

[metronycguy]

dee you may want to post this in care forum,
i just noticed that you posted this in the research forum

[Dee's House]

Originally posted by metronycguy:

dee you may want to post this in care forum,
i just noticed that you posted this in the research forum

How do I do that????????? Dee

[metronycguy]

on this screen click on the http://carecure.org/ above.
anfd that will bring you to a bunch of forums, click on the care forum, and under NEW u can post the same message.
much more traffic over there in care, this is where they post the research papers and stuff

[Dee's House]

Thanks for responding. Dee

[SCI-Nurse]

Dee's house - Transverse Myelitis can result in minimal or significant loss of function. It seems that you have enough residual loss that it is affecting your functional ability. You may want to consider an evaluation by a doctor with SCI expertise and ask for a referral to an OT. An OT can help you make the necessary adaptions to your existing functional ability so that you are safe when walking. It also sounds like you are experiencing some neuropathic pain.

The following resources may offer more information:

Transverse myelitis: NINDS (http://www.ninds.nih.gov/health_and_medical/disorders/transversemyelitis_doc.htm)

Johns Hopkins (http://www.hopkinsmedicine.org/jhtmc/)

Neuropathic pain: UAB - pain (http://www.spinalcord.uab.edu/show.asp?durki=21605&site=1021&return=21874)

UAB - pain management (http://www.spinalcord.uab.edu/show.asp?durki=21607&site=1021&return=21874) CRF