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View Full Version : Desperate for Help, L6 Deformity & PAIN


TraciLeigh
08-20-2006, 12:26 AM
I've got a 6th lumbar vertebrae. It was discovered after I was in a terrible auto accident 25 years ago. Since that time, I have had a "bony protrusion" growing on the left side of my lower back. It has been surgically removed three times, but continues to reoccur.
I've suffered severe back pain for the last 25 years. Recently I found a new pain management doctor, who has actually studied my problem (gasp/ a real doctor who wants to know WHY I hurt, instead of one telling me that I don't hurt at all).
New x-rays I had done last week show that the "bony protrusion" is actually the L6 vertebrae, and it is growing sideways to the left. It is a huge plate of bone that has actually partially fused with my illium (hip bone). It appears that I have broken this bone multiple times during the normal course of daily motion. It explains why my pain is so very intense at times that I can't breathe, and why after about 2 months I feel better for a while. Then it seems to break again, at the place where it wants to grow to the illium. Then I have two broken bone edges that rub against each other until they begin to knit again. And then it breaks again.
My doctor doesn't know how to fix this. He is contacting surgeons, but not having any luck so far.
Has this happened to anyone else? If so, was it fixed? How?
At this point I am living my life on pain pills which only help a little. I am in almost constant pain and now afraid to do simple things like walk or sweep a floor.
Any help or suggestions would be most appreciated. I would be happy to provide links to the X-rays if it would help. (I'll get them scanned or something, just let me know).

bob clark
08-20-2006, 09:11 AM
TraciLeigh,

I'm not a neuro/orthopedic surgeon but can't they screw or affix a titanium plate to either your L6 vertebra or your illium so the bone fusion can't take place?

Then I have two broken bone edges that rub against each other until they begin to knit again. And then it breaks again.

And the same with these two broken bone edges?

I guess the question that I have is why your L6 vertebra "insists" on growing into your illium necessitating three surgical "trimmings" of it?? It sounds like a form of HO (heterotopic ossification) but on your L6 vertebra.

Hopefully Dr. Young or the Nurses here can help you.

Best wishes.

TraciLeigh
08-20-2006, 12:59 PM
Thanks for your reply Bob. I see my doctor next week to hear treatment options. As I reflect on all of this, the thing that scares me the most is the fact that this thing has been operated on three times, and I we only JUST found out that it is the L6 grown wild. I wonder if my former surgeon knew? And I wonder why the string of injectionists, chiropractors, and orthopedic specialists I have seen for the last 25 years never mentioned it. It terrifies me to think that I have had people messing around in my back who either didn't know or didn't report the situation to me.

Ok, venting done :)

I'll update this thread as new information become available.

janacv
08-21-2006, 11:10 PM
I actually have 6 lumbar also. Discovered when i fractured the L-2 in a horse accident. Although i dont have bad pain at the sight (i have lots of burning, pins and needles and just plain misery from neuropathy) i do have a huge bone spur growing at the injury sight. Surgery being the only option, i'm not going to get it until it becomes an issue.