Do you take Gabapentin/Neurontin

[Cherry]

Just wondering how many people do as you get kind of ploughed with it in the UK. I swear I got lots of return after drastically cutting my dose too :thinking:

[keps]

Cherrylips, I think you are right. In the spinal unit, it seemed everybody was on neurontin.

Although, to be fair, after a few months, they did stop it - although I asked for it again when I began suffering more chest pain (I now think this was pyschological - stress-induced pain).

I stopped it some months ago, and noticed no difference with anything - pain, return.

[justadildo]

when i got up to 3600 mg a day (1200 x 3, morn/noon/nite), i decided enough was enough, got off it and have'nt been sorry...

[rollin64]

i recently started 900mg's a day. it seems to help the burning....sometimes. not going any higher. i been tryin to downsize my pill intake. i will probly quit it soon since theres not a major increase in relief.

[Bspill1]

my vote was no. I did just switch to Lyrica though. Taking as little of it as I can tolerate.

[addiesue]

I did but was tired all the time and trying to eliminate meds. I quit about a month ago and notice no differences. I have a little more of the burning tingling in my feet but not enought to justify taking it. I am sleeping a little less since I quit but still not up to my old energy level. Maybe I never will be?

[cljanney]

I've tried just about everything except Lyrica.

Was on 4x900mg/day of neurontin, along with methadone, cymbalta, amitriptyline, oxycontin, etc etc.

Wish something worked w/out making me a depressed zombie, but nothing does, so bring on the pain. Now I'm just a depressed whiner! Oh well...

[razzle51]

Was on it . It is a big time weight gainer . Didnt need that along with depression

[David Berg]

I'd be even more interested to hear how many people take more than 3600mg vs 3600mg or less.

[bob clark]

I take 400mgs 5 times a day for a stabbing pain in my right flank. Liver area and around towards my back. It's the only drug that I've tried that works...opioids don't have any effect at all on the pain. The gabapentin usually takes all the pain away but sometimes only 70 to 90% of it.

It was after 23 years that I started getting this pain so I find it kinda strange that the gabapentin works for me. I have a feeling that my bad posture or all the pressure put on the vertabra just below my Harrington rods for all these years is responsible for the pain. I'd like to have an MRI done and see if there's a syrinx there or some nerve being crushed or pinched just below my Harrington rods where the pressure or weight bearing is the greatest. Maybe some metal fixation hardware can be installed there to take the pressure off the nerves.

I'm just guessing at the above "diagnosis" but it seems as though I'll be needing to take higher doses of gabapentin as times goes by so hope that I can find a physical problem that can be fixed with surgery. I'm already at the "safe" halfway dosage point of gabapentin.

Glad the stuff is cheap.

There's no way I could live with this pain forever. Someone stabbing me in the side with a knife constantly isn't living.. it's torture. I'm glad the gabby is working as well as it is. At least so far so good. Now excuse me while I pop another 400mgs!

[Kendell]

Debbie's been trying to wean herself off Neurontin for about three months now, with hopes of trying Lyrica instead. Her max dose of Neurontin is 4000 mg/day. She's only been able to cut back as far as 2400, and then her phantom pain kicks in so bad she ends up taking more and going back to max dose.

She does not like being reliant on any kind of meds, and this frustrates her. She knows such a high dose of Neurontin is not good, but she's hitting her head against a brick wall thus far trying to quit. Anyone else had that problem?

[wayne keller]

I've been on neurontin for 3 years. Doses from a low of 900 mg daily to a high of 1600 mg. Since my pain varies from little to max. I've tried to find a dose that provides a consistent result. Hasn't happened yet. Listening to others, I'm wondering why I'm taking the stuff. No magic pills seem to be out there.

[Deemaxxi]

Hi
I take 1800mg daily,have i missed something why is everyone trying to get off gabapetin.
Steve.

[WADDiE]

i just stopped taking gabapentin monday. i was taking 600. i dont have any pain now and i stopped taking cuz i think it was the cause of my hair thining out...

[doingtimeonmyass]

I used to take 900 mg three times a day for years, but now take 1200 mg three times a day. My doctor had me up it at one point to 1200 mg four times a day, but felt little relief and I did not like the spacing of meds taken four times a day. So I'm back to 3600 mg a day and feel terrible if I miss a dose. No other side effects noticed since I've started taking it probably nine years ago.

[suesman]

I take 900mg now, but was up to 1800mg a day for a while. The doctor always says to take more, but I absolutely refuse to. I don't care for the way it makes me feel ( kinda distant ) & while Im taking it I really don't see where it helps at all, but if I stop altogether I can see a massive difference then. It blows chunks. Take it & don't see alot of relief, stop taking it & the pain is simply too much.

Honestly I'd rather be in pain, than to take something that only serves to make me stupid. I've been on a ton of different pain pills which do absolutely nothing, but make me stupid. Seems I can sometimes deal with the pain a bit more when I'm on pain killers, but I truely believe that is only because I could care less about anything. Not that they are helping to ease the pain.

I have RSDS ( Reflex Sympathetic Distrophy Syndrome ) & been dealing with severe pain since 1989, although over the past 4 years it has just gotten worse & worse. I've also come to the conclusion that doctors really have no clue about this condition. All they want to try is to over medicate me.