2006 Rare Neuroimmunologic Disorders Symposium

[Sue Pendleton]

http://www.myelitis.org/phpBB2/viewtopic.php?t=1312 (http://www.myelitis.org/phpBB2/viewtopic.php?t=1312)

It's that time again! If you have TM, Devics, ADEM, MS, optic neuritis or even, ahem, a spinal infarct this symposium sponsored by Johns Hopkins University is not to be missed. Bring your doctor as CMEs are awarded (updates their medical knowledge credits). Definetely bring the spouse or kid or parent that needs to understand why no other doc understands what is going on with you.

And it is a wonderful time to meet people who actually DO know how you feel. I'll be there! And there are chepaer places to stay as the place is near light rail. Just the hotel deal does include many meals and you'll love the Inner Harbor.

I live just south of Baltimore so feel free to ask questions here or at the TMA site as they have already staged 2 in Baltimore and many members attend.

[Sue Pendleton]

http://www.myelitis.org/rnds2006/index.htm

The final agendas are in and I'll be attending the clinical side of the symposium. Anyone else going? Dr Douglas Kerr will be there to speak about clinical trials for the non-traumatic injuries among us.

[davesgirl aka anty]

I am going to talk with my family about going. I will let you know.:) anty

[Sue Pendleton]

Remember that the hotel is near the Camden Yards light rail station if you want to stay at a different, cheaper hotel. But being near the Inner Harbor is great if you bring kids. Water Taxis, The Science Center, IMAX Theater and Kid Factory all right there. And a safe area day and night.

[jlubin]

All the videos presentations from the July 2006 Rare Neuroimmunologic Disorders Symposium are now available online at not cost. A broadband connection with 500+ Kbps is recommended. Presentations can also be purchased on dvd.

http://myelitis.org/rnds2006/

The 2006 International Rare Neuroimmunologic Disorders Symposium was jointly sponsored by The Transverse Myelitis Association and Johns Hopkins Project Restore.

Many topics will be of interest to those with any type of spinal injury or disease. Topics include:
Principles of Rehabilitation: Overview
Patient-Centered Care: The Role of Self-Management
Depression and Cognitive Dysfunction
Medical Approach to Neuropathic Pain and Paresthesias
Interventional Approach to Neuropathic Pain
Bladder Management
Bowel Management
Spasticity Management
Transition in Adolescents with Disabilities
The Impact of Power Assist Wheelchairs on Quality of Life
Novel Neuroprotective Therapies
Bone Marrow Transplantation in MS
Neurorestorative Princples of Rehabilitation
Stem Cells and Neurogenesis


Jim Lubin
Information Technology Director
Transverse Myelitis Association
http://www.myelitis.org
http://www.myelitis.org/HowToHelp

[Wise Young]

Thanks Jim.

[Sue Pendleton]

Thanks Jim.

Ditto! For those with some of the rarer conditions the research side may help you with questions to ask your neurologist or physiatrist that remain unanswered here.

And yes, that really is a much more debonior looking Sandy Siegel up there speaking. :mega:

Again, thanks Jim for the work putting everything together in the new format. :applaud:

[phil99]

Is there one this year?

Classic films (http://xtrvaluedvds.com)