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BobbyB
03-03-2006, 12:03 PM
hello fellow pals n cals,
i have a week off so i thought i would drop in for some tea or beer and a few shots.
im 12 yr now with als/mnd 6 yr in wheelchair, wife becky 2 kids betsy 22, rusty 17.
i started the National Registry for Amyotrophic Lateral Sclerosis [ Lou Gehrig
Disease ] ALS. at braintalk last summer and wanted to let yall know its open to everyone to sign on it, world wide.
it is more for awareness like the roll call here.
als/mnd is at the top of our list and its up to us to make it at the top of everyones list.
so please come sign on or email me your info.
let the world know we are here.
we all need to come together and raise the roof to where they can see us.
if we dont do it, it wont get done.
thanks
bobby b
dx/94
National Registry for Amyotrophic Lateral Sclerosis [ Lou Gehrig
Disease ] ALS.
To Add Your Name if You are a Pals [ Person with ALS ]
reply to post or email me your info
robertb@mitchell.main.nc.us
Name, Age and when you were dx, limb or bulbar onset and state and
zip code.
+female, -male, and if you a vet
-Bobby Brannigan, 51, dx/94 limb , 28777

you can help by passing this info on to other pals.
the link to this page is at
BrainTalk.org
ALS Forum
http://brain.hastypastry.net/forums/...splay.php?f=77)
or my email
robertb@mitchell.main.nc.us

ALS is a fatal neurodegenerative disease.
As many as 30,000 Americans have ALS, and an estimated 5,600
Americans are diagnosed every year.
About every 90 minutes someone dies from ALS
more than 120,000 cases of ALS are diagnosed worldwide annually.

National Registry of Veterans with ALS
http://www.va.gov/durham/alsregistry.asp

LaMemChose
03-03-2006, 12:07 PM
Hi, Bobby. It's nice to meet you. Thanks for the information.

I'm Mem or MaryEllen (your choice) and have an incomplete SCI at C-6/7 circa 1993 and mild CP from birth.

Sorry you had to find us, but glad you are here.