neuropathic pain

[razzle51]

I HAVE JUST started Requip for NP . Has any else tried it . Dr said they are using it more to control NP. thanks

[queen]

No, I haven't even heard of it. I will ask my Neuro next I see him.

Have you taken it long enough now to see any improvement?
I'd love to stop the pain in my feet, the burning and stinging drive me
crazy as well as feeling like I'm walkin' on broken glass all the time hence,
I don't walk but short distances.

Q

[mike]

Have never heard of using this for neuro pain. The manufacturer advertises this for restless leg syndrome.

[David Berg]

I haven't heard of it myself, but keep in mind that Neurontin is an anti-convulsive that also happens to help neuro pain. Let us know if it helps.

[firesmurf]

you know,when I first started seeing those commercials on this come out like last week or the week before(out here anyways)the way it made this med sound,i was also wondering if this would be a good med for "our" type of pain too.i am really interested in your results there too razzle.please keep us all posted on how things go.thanks,and good luck,i certainly hope it does the job for you.marcia

[Broknwing]

Razzle-
Our local news station just did a report about a severe side effect of Requip and Mirapex(a similar drug) being SEVERE OCD(obsessive compulsive disorder) manifested in a few ways such as gambling, food and porn addictions....I will try to find the news report online if it's available yet. Apparently the manufacturer of Requip is refusing to put info on this side effect in the literature claiming that it's not a significant finding/side effect. As soon as I find it online, I'll post here for you.

[darkeyed_daisy]

Razzle-
SEVERE OCD(obsessive compulsive disorder) manifested in a few ways such as gambling, food and porn addictions....

Ive have never heard of any drugs causing such side effects but it doesnt suprise me. In a couple of years their will be people suing because of this and winning. I dont understand why they cant just tell the truth......Its all about money. Thats all we need is a bunch of broke, fat, porn addicted people on Carecure LOL:agog:

Sorry for the humor but i cant figure out what drug companies would gain by not telling us of the side effects....It costs them more in the long run to clean up their messes. :thinking:

Apparently this has been a known side effect. They have already been sued over Mirapex
http://brain.hastypastry.net/forums/showthread.php?t=81377

http://www.newsinferno.com/archives/894

[Broknwing]

Yes, Daisy, they talked about the suits about Mirapex, and talked to some of the people about it. It was freaky....The TV station's website doesn't have the report online yet...I'll keep looking and as soon as it's available I'll post it. The one guy they talked to that had been on Mirapex talked about how he felt like it was a differernt person controlling his life.

[darkeyed_daisy]

Thats very scary and they dont even say a thing to the patients........I think they could be held liable for whatever crime the person committed (if one ever is) by not disclosing the side effects. Dont you think?

[Broknwing]

good point...I hadn't thought of that. YIKES....you're right...

[firesmurf]

this is a huge reason when we are trying ANY new med,to let our famililys and caregivers know it.there can ALWAYS be side effects from just about any med,espescially when it is new.

my youngest son had the most godawful reaction i think ever possible to prozac.his case was part of the reason that the new black box warning went into effect with all and any SSRIs.the part about watching for any changes in behavior(he went from a really wonderful caring and really funny kid to this off the wall uncaring cold angry angry child who I did not even know,and who I was actually afraid of for six full months til we got him to the right doc who knew what was wrong)he had what I can only call 'anger explosions from hell"at every dosage raise or any switch to yet another SSRI.two weeks after the change,down to almost the 14th day,he would just lose it for some stupid reason and we would end up with a scene out of COPS playing out in my living room.unbelievable.all this from SSRIs.the day we finally got him into the 'right" adolescent mental health facility,he was to the point where he was refusing to take his transplant meds.for him,this was slow suicide.like i said,a year from hell.

now of course,i ALWAYS watch him like a flippin hawk when he tries ANYTHING new.

just an FYI here as I know that many of us are on anti Ds of some sort and once in a while also will have to take some form of a steriod?one thing my sons doc at that mental health facility told me was that because one of the normal meds my son takes for anti rejection of his liver is a steriod,prednisone?he told me,that part of my sons major major over the top anger was actually amplified by the steriod,you know,'roid rage"?I had even checked with his transplant center before i allowed him to even go onto any form of ssri to ask about any possible interactions and had been told that there shouldn't be any kind of a problem.well,obviously they had not seen this happen yet in any of their Tx patients cuz it hit my son really really hard.

i just wanted to pass this along to you guys as I know that at some point i think all of us have probably been on the two meds together at the same time.its just one of those combos that when you have to take,make sure that you are letting people know so they can keep a closer eye on you,thats all.

some meds can really create their own little hell in people.

by the by,our local news program did a segment on the mirapex too and the gambling addictions that they were seeing in people who normally had never even gambled in their lives.and these were really horrible heavy addicted gamblers who were selling things left and right to keep their addicitions going.it was really shocking what that drug did to some people.and once they were off of it,in most people,they went back to normal,but unfortunetly,some are still out there gambling away the kids trust funds.very sad.ya just gotta be very careful and watchful about any new meds that we may start taking.its a scarey world out there for us sometimes ya know?

I hope that med really works well for you razzle,i am sorry if we are freakin you out here.ya just gotta be careful thats all.good luck,marcia

[znop]

I have been on requip since Jan 06. I had a sleep study done and was found to have restless leg syndrome. As an incomplete sci I have the usual effects such as intense burning pain in feet,legs and buttocks, brutal spasticy, myoclonus(twicthing of legs and ankles)and pain in neck and back.

after 14 years I have found that nothing works for the burning, not elavil, neuronin, or lyrica.

back to the requip:
The requip works great for the RLS and to my delight works great for the myoclonus. I am on 1mg 3 times a day. No noticiable side effects. Unfortunately it does nothing to take the edge off the burning pain. I hope it works for you.
When I broke my neck in Dec 91 I would get shots of demerol for pain. I would bitch and complain and ask for higher doses because nothing was working to stop the burning It was so intense I would scream, cry and felt like I was going insane. Over time the burning has diminished a little in my thighs but the burning feet is unreal

I hope you find something that works for you

John
c-7 incomplete walking quad post 14 years
2 baclofen pumps( third one this summer)
11 surgeries in 14 years

Ponz59@yahoo.com

[mike]

I think part of the problems with the drug companies is that they get FDA approval for only one use of the drug for which they applied. Doctors then come along and prescribe the drug for other purposes and those situation may cause side effects. Doctors are coaxed into using drugs for other then FDA approved purposes by the salesmen who obviously get their marching orders from the drug companies. If you look up Neurotin on the Pfizer website, I don't think you will find any reference to it's use for Central Nerve pain, however every doctor uses it for that purpose these days.

[metronycguy]

one thing my sons doc at that mental health facility told me was that because one of the normal meds my son takes for anti rejection of his liver is a steriod,prednisone?he told me,that part of my sons major major over the top anger was actually amplified by the steriod,you know,'roid rage"?
roid rage is from anabolic steroids, not antiinflammatory steroids.
i believe they are two totally different medications.
anabolic steroids produce muscle and are derivatives of testosterone or synthetic testosterone.
prednisone is a anti inflammatory , it may cause side effects but not roid rage.

[firesmurf]

The roid rage was kind of 'my' term just trying to describe what this appeared and presented like.and he did most definitely have an ongoing increase in more aggressive type of behavior than he ever did before his transplant and starting the pred.but there IS alot of info on the net about the use of corticosteriods and a definite increase in anger episodes in patients and other mental disturbances. this happens in about 5% of patients but it IS there and can happen in certain normally healthy people with absolutley no history of any sort of mental health issues.this can also cause increased irritability which can also very easily trigger an anger "episode'

just from some of the research i had done on this way back when,there are many many different possible side effects that can occur in some people,it does appear that just like with the anti ds,this is much more actively seen in the teenage or younger populations.they stated symptoms such as euphoria, difficulty sleeping,delusions,anger,and paranoia.tho these are indeed rare,they DO happen in some patients.

there is actually quite a bit of info on the net that show a definite correlation between mental disturbances and things such as anger happening in 'normal" people who have been on the higher doses of the corticos. not just the anabolics.tho it does not happen anywhere near as much,it DOES happen.

i was rather shocked to read all of this when I started looking for info on the reaction my son had to just the pred.the change in his more aggressive behavior once his dose was cut like in half was really very very noticable.and when he went down to his current 5mgs which he has been at for over five years now,we had no problems at all til the prozac was added to the mix,and then things really hit the old fan.I don't know if what happened with the pred earlier had given him some sort of a predisposition for the extreme reaction to actually occur with the prozac or if he is just extremely sensitive to meds period.i know there were some very big changes in his body phyisiology post transplant so who knows,but that connection really IS possible.

i found an url that was in some of the old info that i have from my research from before that was rather interesting to read,it covers mental disturbances thatw ere seen in some trials they did on the effects of the corticos if you want to look at it ,the url is www.tu.edu/user_files/10/27.html this just shows a bunch of different studies they did,some were not as controlled as they should have been but some were very well documented,the thing is,after reading thru this,there was no doubt in my mind at all that there IS a definite risk/possibility for these types of personality changes to occur just taking prednisone.although they are mostly occuring at the higher doses and not so much with the smaller ones.but man,i just didn't know all of this crap before my son was placed on this right after he recieved his brand new liver.

this little episode is what really prompted me to really take an in depth look at every and any med that he or i or any other member of my family takes from that point on.you just never now,ya know?we just have to be very careful about everything we take.god only knows just what they will suddenly find out about certain meds way down the road when they have been taken by the public for like ten years.just look at vioxx?who knew?or who knew but didn't tell??marcia

[razzle51]

Not on Requip any more it was awful. I am on Keppra and all is good.

[firesmurf]

So it just wasn't the new wonder med for ya huh?sorry to hear that.I know i am getting soooo tired of trying all of the 'new and improved' meds that come down the pike only to end up with no relief or some relief but at a major price with all of those lovely side effects.i am happy things are going well on the keppra tho.marcia

[razzle51]

Thanks