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alan
10-09-2005, 07:19 PM
Is there anything I can do for my sitting balance so I don't feel like I'm falling sideways all the time? I've tried all sorts of seat backs and braces, but they haven't helped. Is there anything non-seat back or brace related I can do?

SCI-Nurse
10-09-2005, 08:15 PM
Alan - You have mentioned seat backs and braces. Have you had any lateral wedges (attach on the sides of the chair back) attached and/or any wedges placed under your w/c cushion? I had a former patient with balance issues and this seemed to help. They were attached with velcro so they could be moved as was needed to get just the right support.

Have you had a pressure mapping done, that would show where you have greater weight emphasis, that could help determine exactly the location for support? CRF

bob clark
10-09-2005, 09:33 PM
Hi Alan,

A cushion like the Jay2 is filled with a substance called "Flo-Lite". It's just like a puddy or caulk (but lighter) so it forms to the shape of your butt and stays that way. You can adjust yourself in the cushion and you stay there even if your butt is "out of kilter" so to speak. It kind of feels like you're glued in there. It's different than those cushions filled with air or gel.

It's best if you get pressure mapped and ask the professionals there. But inquire about the Jay2 cushion and see if you can try one out. You can special order them "overfilled" if you find yourself bottoming out.

alan
10-10-2005, 08:26 PM
I've had all the tests - pressure is fine on my Roho (both my older Enhanced and newer Quadtro.) Haven't tried a Jay2 cushion yet - I'll discuss that with my seating person. I do have laterals on my chair.

My scoliosis is the source of the problem. Besides the torquing forward of my right side caused by it, there's an area between my shoulder blades where the curve really takes off and the spine juts to the right, which makes me tip to the left. I'm always trying to pull myself straight. It feels like my spine is broken in half there (it isn't, I know, but my brain tells me otherwise, as it does with all the other pain sensations that shouldn't be there.) The orthopedist I saw this past spring was not impressed by the curve or my rubbing shoulder blades. Of course, he doesn't have to live with them, nor is his function limited by them.

bob clark
10-11-2005, 08:49 AM
Hi Alan,

I was just at Jeff Sirko's Live Well Medical Supplies (http://www.livewellmedical.com/index.php?main_page=index&cPath=160) website and noticed their Jay2 back support options. Have you tried any other those? Maybe a combo of the Jay2 cushion and back support would help.

Best of luck.

alan
10-11-2005, 07:51 PM
The Jay2 back, I've tried. But I'll check that site, anyway.

Thanks.

alan
02-17-2006, 04:42 PM
Is there some type of sitting exercise I could do to improve the off-balance feeling? I realize the scoliosis can't be helped, but perhaps my perception can.

fuentejps
02-17-2006, 04:47 PM
more dump alan. then adjust your backrest forward a tad

SCI-Nurse
02-17-2006, 05:01 PM
HI,

You have hit on a very tough problem!

I wish here was a great solution to this because I've run across many people who have this issue.
I am not aware of any specific exercises except to keep your upper body and back as exercised as possible. Braces have not been really effective and the lateral supports and seating adaptations you've already done.
I will keep my ears open and letyou know if I hear of anything else.

AAD

alan
02-20-2006, 09:13 PM
After almost 25 years of practice, I ought to be able to sit without toppling. The lack of balance, combined with the upper back trouble, really makes using my arms difficult.

teesieme
02-21-2006, 01:34 AM
You can special order them "overfilled" if you find yourself bottoming out.

Hmmm, ty bob, I didn't know that, thinking the kid could use as such next time around with cushion.

maryonwheels46
02-22-2006, 06:17 PM
Alan, I have scoliosis also and I never feel really comfortable in my chair. I have no balance. If I move a little sideways or bend forward I better hold on to the chair. I got a back with lateral support and it was ok but to much trouble to put in my car. It really did help and it did poke me in my ribs. I had trouble after I transfered in and out the glue velco and cover just keeps coming apart so I took the dang thing off and I only had it on for 3 months. More shit the put on the shelf. I know the Roho don't help with balance, like sitting on a ball but I haven't had break down so can't change.
Sorry I have no suggestions but wanted to let you know your not the only one. If you ever come up with an idea let me know.
Mary

alan
02-25-2006, 08:14 PM
Mary, It's a real pain in the ass, that's for sure. I don't like the fact that I have to make myself get out of bed because sitting is so uncomfortable and bothersome.