View Full Version : Pain problems of course...
Toppchef
01-15-2005, 12:41 AM
Isn't it quite unlike cp to get significantly worse over a very short period of time. Say for example a couple months, weeks, even just days because this is simply out of control. My abdominal pain has become a monster and my back pain is not far behind it. The only relatively new issue that I can attatch to it is this Bronchitis that came about around the 1st of December. Due to the increase in pain I was unable to sit up in the chair at all and as a result this Bronchitis has just never left. However over the last few days I've been toughing it out and staying up all day. Even though my chest is clear as it could be the pain still seems to be getting worse just about every day. As they up the Methadone it seems to work, however after a couple days it's just like it was before. I'm totally lost without a clue of what to do...
Toppchef
01-15-2005, 12:48 AM
The only other thing I can think of is this MRSA that's colonized in my bladder for the last 6 months. I'm reaching for any ideas guys...
dejerine
01-15-2005, 12:55 AM
Sheck,
It's not in the literature, or if it is, I have missed it, but I kept seeing the posts here of worsening. I didn't pay too much attention until I had extensive dental work and the increased burning in mouth occasioned by the dental work never left. Still there after nine months. I am convinced that CP people are capable of hypersensitization from some event, like your bronchitis, that stays until something quiets it down. Hope your meds get you back to where you were. Sorry you are having this.
Lindox
01-15-2005, 02:56 PM
Originally posted by RSheckells:
The only other thing I can think of is this MRSA that's colonized in my bladder for the last 6 months. I'm reaching for any ideas guys...
RSheckells,
Sounds like you need a good urological work up here..the Methadone is only treating the symptoms PAIN. I have no idea about the continued bronchitis. Hope your doctor can find out why you are having this extensive abdominal pain and treat the cause.
Best of luck..and so sorry.
metronycguy
01-15-2005, 10:30 PM
can you change doctors or go to more specialized in central pain practice
you shouldnt be suffering like this
Toppchef
01-15-2005, 11:36 PM
Metro,
That's part of the problem! The doctor I'm using nowis drug testing me to make sure that I'm not smoking weed. Interestingly enough besides Methadone Marijuana is the only thing that seems to help. He's very concerned about the fact that pain doctors are being thrown in jail so that's how he justifies this shithead behavior. Changing doctors is such a pain in the ass that it makes it near impossible. I don't know what the hell to do, it seems that once I feel like I've hit bottom I realize that things can only get worse. I don't know what the hell to do. My doctor, Justin Wasserman is suppossed to be about as good as it gets. He was recommended to me by a number of people on the Neuro Board at NIH. But with this BS I don't know what the hell to think and thus what to do? http://sci.rutgers.edu/forum/images/smilies/frown.gif
metronycguy
01-18-2005, 08:05 PM
rsheckells that is pretty incrediable ,testing for
marijuana..
the one drug that is known to help with pain and has probably much less side effects than all the fda approved drugs .
so let me get this right . if the test show that you have weed in your system , a drug that is legal in quite a few states for this kind of pain, he wont treat you for pain?...
Toppchef
01-18-2005, 10:27 PM
It's part of the "agreement" that you sign into in order to become a patient of his. Absolutely no illegal drugs. As benign a drug Marijuana is it still fits into that ridiculous category. The irony of all of this is that Marijuana has been more or less decriminalized for medicinal purposes in Maryland, where I live MD Medicinal MJ Law (http://www.norml.org/index.cfm?wtm_view=&Group_ID=4542)
cameron887
01-19-2005, 07:09 PM
RSheckells, are the prescription medications Marinol and Cesamet legal in the US? I know they are not as effective as Cannabis, but maybe worth a try?
Marinol is legal, as I've tried it.
I read of a new marijuana-derived med called Sativex that's being developed by a (I believe) British company.
Alan
There's a fungus among us, and I'm not lichen it!
cameron887
01-20-2005, 09:21 PM
Sativex has recently cleared Health Canada's first hurdle, and may be available as a prescription in Canada this year for MS. Hope the US follows suit, for the sake of those with CP.
Toppchef
01-26-2005, 10:08 PM
This is still getting worse regardless of what I do. WHAT THE HELL IS GOING ON? You know I've been trying to think real positive here lately and I think it's made a real difference. However every forward step I take I feel like I end up moving backwards. I can only eat a few things now and it seems like everything else reacts poorly with my system. I'm down to avacados, chicken, beans, rice, cheese, and tortillas. However the last two nights I've even started to have trouble with the basics. It's the exact same reaction I have to sugars. Interestingly enough I react the same way to sugarless sweets (for diabetics). The one common denominator for me is once the pain increases it never seems to back off. I'm at 120mg of Methadone a day and just as soon as we increase the dosage I feel better for a few days and then the pain takes over. I feel like someone has taken a vice-grip around my lower back and abdomen and is squeezing the life out of me. I think I might have a clue as to why some of us simply can not continue to deal with this. I myself am terrified of death however at times, especially lately, wonder if I'm going to find any real relief from this any time soon. I'm sorry for running on and on as I usually do. I just desperately need some help http://sci.rutgers.edu/forum/images/smilies/eek.gif
metronycguy
01-26-2005, 10:59 PM
i wonder what these foods have to do with your pain? can it be referred pain, as others had said gall bladder,kidney stone, gall stone...
some kind of stone they have missed
Toppchef
01-27-2005, 12:35 AM
They have looked again and again finding absolutely nothing. I mean I don't understand why it still seems to be getting worse. Especially when just two months ago 60mg of Methadone a day was kicking ass and now 120mg a day isn't even close to dealing with this. I'm terrified about not knowing where this is headed and how bad it can get. Just the act of drinking water and not having much of a clue any more of what is safe for me to eat.
I wish I had some answers for you. I know all about the squashed gut and back feeling, and others, and the effect it has on mental outlook. I go to bed at night hoping to fall asleep and not wake up. If I do get to sleep, when I wake up, I face another day of misery and suffering, and it just gets worse. It's no way to live.
Alan
There's a fungus among us, and I'm not lichen it!
[This message was edited by alan on 01-28-05 at 08:19 PM.]