Wise,Dave,Nurse,anyone

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Dr Young Jeff Dave
My pain is not described as anyone else has I feel like I am being shot LOTS of drugs keep it down most time & me do you all OFF THE RECORD see anything here that my be causing these horrible shooting pains please help if you can, anyone I think I have attached the report?(*&^%
Debbi

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I don't see my attachment I e-mailed it to Dave perhaps H can accomplish it for me
Thanks all
Debbi

[Wise Young]

Debbi, I can't read your attachment. It does not open in Word or any other program that I have. Wise.

[David Berg]

Here's a copy of the report in MS Word format. The formatting of a text is a little funky because of the text recognition software that was used after scanning, but it is pretty readable.

Debbi, I hope this helps.

[duramater]

Debbi,

I am working on your report. So far all I can say is that you need a whole new approach to managing your pain. I believe it is definately caused by the damage you suffered, but there needs to be a better way to combat this than the drug list that you shared with me. I will write more soon.

Sorry it is taking so long...its a bit of a juggle lately...

Mary

...and she lived happily ever after...

[marmalady]

Mary, with Debbi's permission, could you post her report?

I think it's important that Wise and the SCI nurses have input into this also, rather than just your opinion.

Thanks

_____________
Tough times don't last - tough people do.

[Wise Young]

Marmalady, Mary has talked to me about this situation. David posted an OCR version of the document and I was able to read it.

Debbi's, I read the report and your previous postings. As I have indicated previously, I don't know what to suggest. There are multiple reasons for pain but you also have had multiple surgeries that aggravated the situation. I am not sure that further surgery would help.

Wise.

[duramater]

Rest assured, I do not have the habit of rendering "just my opinion" to anyone here when it is a question of a medical issue. I am a licensed medical professional and I have at my disposal some very good professional resources who have made themselves available to lend a hand when I review the requests that I get for help on this website. They are also licensed professionals namely several nurses, several doctors,a certified midwife a few scientists and a doctor who is also an attorney. I also have the ability to consult with a few psychologists and therapists. I take my time and you will also note that when I am sent files I generally discuss them with Wise via e-mail or in the chatroom in the middle of the night when all the sane people are sleeping. I have on occasion copied these posts to the Care Forum for the sci nurses to have easy access to the questions. I believe in Collaborative Medicine. No one person has all of the answers and people in pain deserve the best possible treatment.

Thank you,

Mary Greene, R.N.

...and she lived happily ever after...

[marmalady]

Mary - I apologize if I misread your post. you do have to admit that from your wording, it sure sounded like you were taking the reins in your own hands. "Nuff said.

_____________
Tough times don't last - tough people do.

[David Berg]

Marmalady,

If you would care to see Debbi's report, see the attachment to my post below. I posted it (at Debbi's request) the day before you asked Mary to post it to the forum. I'm sure that Debbi would welcome any suggestions she might receive.

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http://sci.rutgers.edu/forum/images/smilies/confused.gif
Hey, ya all,
Thanks for your efforts
I am just very depressed, so very tired of the pain, & the pills
This pain is very different than I've heard anyone explain. I am simple minded I guess but Dr. Young, I feel if surgery did this to me can't surgery undo this?? its not like a disease we need to stop & want to know if my doctors statement of....
" no nothing is wrong with you its just swelling"I said the nurses dropped me yesterday, could something from this drop be why & can it be fixed if so ? his quote was "OH NO nothing happened from the drop & you'll be fine its just swelling"!!
so I know he lied But I don't know what for sure happened, or why every specialist I've been to said had the surgeon just went right back in, well I understand the hospital did not communicate to the surgeon what they did to me, he found out the next morning 19 hours later, but the doctors have all stated had he done a new surgery that day, the next day , next week but even that month but to wait 12 months to let me know the truth, its to late to reverse anything now.
yes I have very wonderful; attorney's whom have their specialist who all have their startling thoughts.
I just would like someone's thoughts on what honestly happened
I have only had 1 operation only 1 on my spine
I ran Olympic laps previous to my surgery & only had 1 pinched nerve, I was to get 2 cages places in my spine I recently found out I have 3 cages in my pine 2 at L3-L4, 1 placed at L4-L5, 2 placed at S1. what I understand is there is always to be 2 titanium Bak cages at every level side by side, not to have more than 2 in a back & not consecutive I have 3 levels place consecutively in my spine & the cage place in the middle only has 1 at this level which weakened the above & below cage level.
what is the FDA's position ? does the FDA mean "we suggest this but go ahead & do as you please??
I dun't know because I'm ignorant I just would welcome someone's educated thoughts & mostly uninvolved ya know??
in addition to this I feel we are all at this site because of the honest opinions & to be educated I don't need any legal assistance,Thank God, I need a educated brain on my loss, so I can make decisions knowing the truth & being educated

I thought I would receive this here.


"The greatest thing I'll ever be is a Grandmother"

[This message was edited by Debbi on 03-20-03 at 09:53 AM.]

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Dr Young, I have only had 1 operation only 1 on my spine.
Originally posted by Wise Young:

Marmalady, Mary has talked to me about this situation. David posted an OCR version of the document and I was able to read it.

Debbi's, I read the report and your previous postings. As I have indicated previously, I don't know what to suggest. There are multiple reasons for pain but you also have had multiple surgeries that aggravated the situation. I am not sure that further surgery would help.

Wise.

[Wise Young]

Sorry, Debbi. I don't know what to suggest because it is such a complicated situation. You need to find an experienced and good surgeon who will be willing to take on the case and spend a lot of time to see if there are any surgical corrections that may help. Often surgery cannot correct the problem of pain. I know many people who have serious pain that led to repeated surgical procedures that have only aggravated the pain. Wise.

[maryonwheels46]

I am t9,10,11,L1L2 I had 30 degree scolioses be accident. They put herring rods up to t7 all the way down. Now I feel the rods all the way down and I am having very few good days. The rods are causing so much pain. Every time I move it sends surging pain all over my body.I wish they were out. I think. It hurts to twist, bend and even raise my shoulders. I am only on medicaire and I don't think a DR. will touch me because of this. I'm a real active person but my life is so bad now because of this. I think it is rare to have 30 degrees plus being a para.

Mary Sibley

[Wise Young]

maryonwheels, it really sounds as if you need to have your rods revised. There must be a surgeon who would be willing to take your case. Wise.

[maryonwheels46]

Originally posted by maryonwheels:

I am t9,10,11,L1L2 I had 30 degree scolioses be accident. They put herring rods up to t7 all the way down. Now I feel the rods all the way down and I am having very few good days. The rods are causing so much pain. Every time I move it sends surging pain all over my body.I wish they were out. I think. It hurts to twist, bend and even raise my shoulders. I am only on medicaire and I don't think a DR. will touch me because of this. I'm a real active person but my life is so bad now because of this. I think it is rare to have 30 degrees plus being a para.

DR. Wise, when you say revised, do mean replaced or adjusted by an ortho-surgion.Also, could you tell me what to expect. thanks
Mary Sibley

Mary Sibley

[duramater]

maryonwheels: I am sorry it took me so long to get to this answer. It is hard to say what you can expect until you have had an evaluation by your surgeon. It is rather common for spinal surgeries to require some form of revision but impossible to predict the extent of the work that is required. The best bet is to consult your doctor about your pain, and see what is suggested then. Be sure to report all aspects of your pain, when and where and how it hurts and if anything you have done on your own brings any relief. Good Luck,

Mary

...and she lived happily ever after...