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antiquity
11-17-2001, 09:47 AM
Friday November 16 1:59 PM ET
Thalidomide May Relieve Rare Pain Disorder: Report
By Merritt McKinney

NEW YORK (Reuters Health) - In a chance discovery, doctors at the Mayo Clinic have found that thalidomide--a drug banned in the 1960s for causing severe birth defects--may be an effective treatment for a mysterious form of disabling nerve pain.

Based on a case of a woman with the condition whose symptoms disappeared soon after she started taking thalidomide to treat blood cancer, the Mayo physicians recommend that clinical trials of thalidomide in reflex sympathetic dystrophy (RSD) patients be considered.

RSD causes pain, swelling and limited movement, most often in the limbs. It may develop after an injury, such as a broken bone, but the severity of the pain is out of proportion to the injury and continues even after the injury has healed.

Therapy for RSD is often ineffective and many people with the condition have a poor quality of life. That was the case for a 43-year-old woman seen by Dr. S. Vincent Rajkumar and colleagues at the Mayo Clinic in Rochester, Minnesota. After injuring her hand, the woman developed a severe case of RSD that confined her to bed or a wheelchair most of the time.

Three years after developing RSD, the woman was diagnosed with a type of blood cancer called multiple myeloma. Rajkumar and his colleagues started the woman on thalidomide, which has shown promise for treating the blood cancer.

The change in the woman's condition was ``astounding,'' Rajkumar told Reuters Health in an interview.

Within a month, the woman experienced an unexpected improvement in RSD symptoms, which nearly disappeared, Rajkumar and his colleagues report in the November 12th issue of the journal Archives of Internal Medicine (news - web sites).

Ulcers and swelling on her legs healed completely, and she was able to abandon her wheelchair. During the following few months, the woman was able to use her left hand again, and she stopped all treatments for pain.

The woman's blood cancer also improved, although the benefits of thalidomide were more gradual for the cancer than for her pain, according to the report.

Rajkumar and his associates are not sure how thalidomide improved RSD, although they suggest that the drug's ``remarkable benefit'' may result not only from its effect on nerves but also its ability to reduce inflammation.

``There's really no good treatment for these patients,'' Rajkumar said. ``We would recommend that people start doing some clinical trials'' of thalidomide in patients with RSD, he said.

Rajkumar's team is currently planning such a trial, which will include 15 patients with the condition.

So far, the patient in the report has not experienced any major side effects of treatment, Rajkumar said. She continues to take a low dose of the drug. According to the Mayo researcher, there is ``no evidence that the RSD is coming back.''

SOURCE: Archives of Internal Medicine 2001;161:2502-2503.

calico
11-18-2001, 07:51 AM
This is a mind-blowing article. It does make one wonder if with an effective drug delivery system it could ease the inflammation that causes pain from the spinal cord.

What are your thoughts, Dr. Wise?

Thanks!

Calico

David Berg
11-18-2001, 07:20 PM
I'd also be interested in any opinion that Wise might have. Right now I have to take a skeptics approach after doing a little searching on my own. I came up with other information on the web that mentioned possible side effects such as making pain meds ineffective, and causing burning, tingling, or numbness in feet and hands. There is also a long list of other meds that cannot be taken with thalidomide.

Part of my concern with this article is that, in spite of how promising it sounds, it is all based on a case study of a single patient.

David Berg

calico
11-19-2001, 08:39 AM
Coincidentally, there is a book review on Medscape today about a new book on the history of thalidomide.

"Dark Remedy: The Impact of Thalidomide and Its Revival as a Vital Medicine" by Trent Stevens and Rock Brynner, Published by Perseus Publishing

I got this info from a Medscape newsletter. I expect you could find the review at

http://www.medscape.com

Leave it to us with chronic pain to fall upon another drug class with potential benefits swamped in controversy. At least this one doesn't make us "feel good" or have addictive qualities (that I've heard of). Then it would definitely be illegal and out of the scope of reputable medical research!

Maybe there's a future here, maybe not, but any encouraging avenue of research is OK by me. The way I see it, even studies that show that something doesn't work are valuable.

Calic