Standing Frame

[Rustyjames]

How many use one, how often and for how long?

[zaziwe]

I try to stand once a day for about thirty minutes.

[JayHarn3]

every other day for an hour

[ll64260]

Once everyday from 30 minutes to an hour. It helps to eliminate spasticity for one thing.

[davecarl]

I use the standing frame once a week for 30 minutes at the Rehab Hospital. Due to other therapy and distance it would be difficult to go more frequently at this time.

[Mike C]

I try to stand everyday, at least 1 hour.

[harper]

i stood once a day for an hour...then my spacticity made it to hazardous for me and those who were helping me,,,that was over 18 years ago,,,consider your daily stand a respite from the norm and enjoy it...tedEbear

[Cynthia]

I am curious if there is a time limit to how long one can tolerate standing up in a standing frame? I hope to be able to get one soon, but I hoped to be able to stand up in one longer than sitting in my wheelchair. Am I dreaming, or what? http://sci.rutgers.edu/forum/images/smilies/confused.gif

Cynthia

[jnags]

a hour, sometimes longer, 3 to 4 times a week.

[et]

During weekday, I stand twice a day, 45 minutes each time. Once once a day in weekend.

[Rustyjames]

Cynthia,

To answer your question, how long can one stand, I've stood for two hours and could of gone longer, but that was when I was in therapy so I had to get down. I'm in the process of getting my own standing frame and plan to stand as long as I can. I think it's probably important to watch your blood pressure when you stand for long periods of time.

[bruce]

It sounds like some of you have standing frames at home. Can anyone give me info on the cost and sources for them?

Thanks.

[Rustyjames]

Bruce,

Here's a few,

http://www.altimatemedical.com/

http://stand-aid.com/

There's many types and prices vary, I've seen plans for home-made versions I'll try to find and post later.

BTW, some insurance companies will pay for one.

[SCI-Nurse]

Bruce - Passive standing has many benefits; the most immediate is that it stretches your muscles, especially those that enable range of motion at the hips, knees, and ankles. It also improves range of motion; stretching and ranging are particularly important to prevent contractures of these joints. (A contracture occurs when the muscles shorten, a natural occurence from disuse.) Of equal importance is the fact that weight bearing on the long bones of the legs helps prevent osteoporosis. The above noted benefits can be achieved by using a standing frame, braces or braces in combination with Functional Electrical Stimulation (FES), a standing wheelchair or a cycle ergometer. The latter device actually enables active stimulation and contraction of the quads, gluts and hamstrings.

The above devices are considered durable medical equipment. Insurance companies do reimburse for such devices, however, it is important to know whether one's insurance provides/includes such benefits. Some insurance companies may have a 'lifetime cap' on DME's. Depending on your goal, i.e., is it medical (e.g. improve cardiovascular/circulatory funcion), functional (e.g. brace walking) or psychological (e.g. enjoy the feeling of being completely upright), insurance may reimburse for such a device. If you and your doctor agree that this is a medical necessity for you as a spinal cord injured person, he should write a prescription for the device. It would be most important to include an extensive and detailed certificate of medical necessity to accompany the prescription that would then be submitted to your insurance.

For information on standing frames, go to: http://www.spinalcord.uab.edu/show.asp?durki=21880

For information on FES, go to http://feswww.fes.cwru.edu/info/index.htm

For information on cycle ergometers, go to: www.musclepower.com (http://www.musclepower.com) and www.electrologic.com (http://www.electrologic.com) CRF

[etexley]

Hey everyone...It is my understand that the SCS actually will sell plans for a standing frame. I know that they also sell "stand-n-go." The more I read, the more I recognize how essential it is to us to stand...everything begins to work right when I stand, from my bowel function, to sleeping at night.

Eric Texley

[SCI-Nurse]

Eric - It is the end of a long day....define SCS please as I cannot. Thanks, CRF

[SCI-Nurse]

Just a note to suggest that those of you who expressed interest in standing, read Dr. Young's posted abstract on the benefits of standing. Most of the participants reported standing for about 40 min, 3 to 4 times per week. When engaging in deliberate muscle activity, it is important to allow a day of rest in between, i.e. about 48 hours between sessions. CRF

[Carl R]

which one works best? What brands are using and the cost if you know?

[Rustyjames]

Carl,

I posted a few on this thread, my insurance is paying for an Easy-Stand 5000:http://www.altimatemedical.com/ There're all about the same, some you can propel by yourself. I would assume they cost a few thousand, when I find out, I'll post it.

SCI-Nurse, you took some wind out of my sail, only three times a week? I had hopes of using it every day, no good?

[SCI-Nurse]

Rustyjames - Muscles do fatigue from activity, even in the presence of SCI. Since you do not have the usual means of recognizing stressed or fatigued muscles, it is important to follow a recognized routine. You would need to go through the same conditioning process as the non-disabled person who is on an exercise program. Generally, for the person who chooses to exercise daily, it is recommended that one alters the activity so that differing sets of muscles are doing the greater work. e.g. run/jog every other day and bike/swim/weights, on the alternate days, etc. When the muscles are deliberately exercised, there needs to be a day of rest in between. I am sure that many do not follow this approach, but certainly for the person with SCI, you increase the risk of increased spasticity and pain if muscles are over-worked; you can, also, experience muscle strain. CRF

[chasb]

Very nice links everyone. Thank you very much!

[foster]

my son Ryan stands 3 to 4 hours a day. t-9 injured 9-15-01 and has been doing since jan.

[~Patrick~]

RustyJames, I dont mean to step on your thread but this deals with standing also,

I am T-10 with no spasms. I am in the process of getting RGO's. I plan on standing in these as much as possible. From what I have read here should I limit my standing? walking? I was looking forward to getting these and now I thing maybe I should look into a standing frame. Give me some pro's and con's of the two. Does anyone have RGO's??????

...act like a survivor not a victim.

[vl_gyurov]

This is my handmade Standing Frame.

It costed my family to make it about 50 USD.

In my opinion Standing Frame is a prerequisitive regulation for people in our condition (I'mT3-T4 two years post).
After one week of use I can already stand twice a day for 30-40 minutes.

Take Care
Vlady
http://free.top.bg/vl_gyurov/snimki/DSCN0418.jpg

http://free.top.bg/vl_gyurov/snimki/DSCN0416.jpg

http://free.top.bg/vl_gyurov/snimki/DSCN0411.jpg

http://free.top.bg/vl_gyurov/snimki/DSCN0417.jpg

www.vladi-g.hit.bg (http://www.vladi-g.hit.bg)

[This message was edited by Vladko on Oct 11, 2002 at 02:14 PM.]

[angel7]

Rusty,

Everything I have gotten back has been by utilizing a standing frame or tilt table. I highly recommend it.

Good luck.

Deb

[chasb]

I am considering a frame. Its comes down to the easystand 5000, and the econo stand by stand-aid. For those of you who use standing frames, do you have any thoughts on this? Also, any of you who have drawings or plans to build it yourself(standing frame), I would be interested in looking at that option also. btw- Vlady, couldnt get your page to load. Would like to see a pic of your frame. Erin, have you modified your standing frame (yet) so you can get upright?

[This message was edited by chasb on Oct 11, 2002 at 03:23 PM.]

[nevada]

I am a C6,C7 incomplete six months post. I am in the process of purchasing the easy stand 5000 my insurance company will pay for about half of it. I ask my pt therapist and my doctor where to spend my money braces or frame they both agreed the frame would be the best.

[vl_gyurov]

Originally posted by chasb:

btw- Vlady, couldnt get your page to load. Would like to see a pic of your frame.


I don't know what's the problem. Here it opens without any problems.
Do You mean that the pictures I've attached here can't be seen from you?

Vlady

www.vladi-g.hit.bg (http://www.vladi-g.hit.bg)