View Full Version : Please spread the word about this forum
Wise Young
07-30-2001, 02:38 AM
The Spinalnurse forum was getting about dozen or more postings per day when it was at the Cando site before the shut down. We are getting much fewer postings and viewings. I think that many people who visited the SpinalNurse forum were not "hard core" internet users. The same is probably true of the General Forum as well. We must have lost many people who use to visit and post regularly on the SpinalNurse forum. Due to the last three weeks during which the front page of Cando shut down, many people probably think that the site is completely gone and have stopped looking for it. In the coming weeks, we will be publicizing the CareCure Forums more. But, in the meantime, if you know of anybody who need answers to their care questions, please direct them to this site.
Thanks.
Wise..
SCI-Nurse
07-30-2001, 07:21 PM
I have posted the new link on pretty much every forum I can think of including the Quad Bulletin Board, New Mobility, Circle of Friends, the Self-Help Bulletin Board and the MGH SCI and MS forums. Please post it in other places that other users are also familiar with. Links from your private websites (when appropriate) would also be appreciated. (KLD)
SCI-Nurse
07-30-2001, 07:38 PM
Many thanks to Wise and others for there persistent and diligent efforts to have these forums and this site "arise" and be available! The NSCIA Resource Center Staff has been advised of the return of our Carecure forum. CRF
Curt Leatherbee
07-30-2001, 09:02 PM
>That if you just hit in Carecure.com you are brought to another site. Whereas on Cando you could just hit in www.cando.com (http://www.cando.com) and you were brought directly to the site. Is there anyway to rectify this, or even change the name of the site to something like "Spinal Cord Injury Infonet" or something like that? I just think some people may be having trouble getting into this site. Just a thought.
Just for kicks, I tried the Cando website and there is now a note saying that they may re open, interesting.
Another suggestion, would it be possible to use the Old "Spinewire" name?, that is a very recognizable name. I notice now when I hit in www.spinewire.com (http://www.spinewire.com) I get nothing.
Curtis
[This message was edited by Curtis on July 30, 2001 at 11:27 PM.]
Wise Young
07-31-2001, 08:06 AM
Thanks for your comments. They are very useful. As you may know, we have been trying to buy the spinewire.com and spinewire trademark from Cando. Even though we (the founders of spinewire) invented the name and Cando did everything that they could to suppress the name and turned it off, Cando would not sell us the URL and trademark back. Until we do so, we cannot use the spinewire name. When cando shut down, I had to scramble to create a site and the easiest one to use was carecure. You are absolutely right. We need to have a better URL and name.
We have not been publicizing this site at all, other than word-of-mouth via email. Despite this, over the past week, we have gotten 169 registrations, a daily average of over 500 visitors generating 4000 page views and making about 50 postings. That is not bad for a site that is only 6 days old. This is probably a die-hard core of spinewire/cando users who came to rely on the forums as a source of community and information.
We have not yet put a full-court press for public exposure of the site for two reasons. First, it is important to have an attractive site that is full of really good information so that people will come back. If people come and find an inactive site that is in construction, they won't even bookmark it. Second, we were in the midst of negotiating with Cando for access to the community material and we did not want to jeopardize the discussions. Those negotiations have broken down. As you see from their web site announcement, they are proceeding now to try to sell the entire site to another company.
In any case, we will be choosing a name and a URL for this site. What would you suggest for a short snappy name that will stick to your hippocampus forever? Spinewire was such a name but unfortunately we can't use it, at least for now.
In the meantime, I just want to make sure that the people who need to know about us can get to us. The SpinalNurse Forum was really the best place on Internet to get advice on care. There was nothing else like it, where you will get the undiluted and direct opinion of the most experienced spinal nurses in the United States, as well as many experienced people in the community who have faced the same kind of problem.
Wise.
Curt Leatherbee
07-31-2001, 10:15 AM
How about "Spinalnet"? or maybe "Spinenet" or "SpineCure" or "SpinalCure" I kind of like "SpinalCure.com" myself. It is easy to remember and it separates itself form the other sites that are mostly interested in "Care". Curtis
[This message was edited by Curtis on July 31, 2001 at 12:37 PM.]
stephen212
07-31-2001, 03:07 PM
SpinalNexus.com
Shaun
07-31-2001, 03:42 PM
SpinalCure.com is good or how about SCI SUCKS SO LETS STOP PISSIN AROUND AND CURE THE BASTARD.COM, what do ya think?
.......\/PEACE
~Shaun~
stephen212
07-31-2001, 04:34 PM
SpinalSource.com
SpineCentral.com
SpineTimes.com
SpineSight.com or SpineSite.com
SpineMeister.com
SpineDoctors.com
Curt Leatherbee
07-31-2001, 05:25 PM
Sciwire.com it could be pronounced Skywire, that would really stick in peoples memories.
SCI-Nurse
07-31-2001, 07:30 PM
As much as we loved SpineWire, over emphasis of the SPINE word will tend to attract a lot of people who have no paralysis, but primarily have "failed back" syndrome or low back pain, slipped disks, etc. etc. I think that will tend to dilute our focus on SCI...staying healthy and working toward a cure from neurologic (not just bony) injury.
I would suggest something like these:
SCINet.com
SCICommunity.com
Some of Stephens ideas below could be changed from Spine to SCI as well.
I like Nexus (the name of my late, and missed "dog niece", a beautiful Dalmation/Black lab mix!)
I also like SCIWire (if we can get away without any copyright infringement with this). (KLD)
SCI-Nurse
07-31-2001, 08:41 PM
I agree with KLD re: using spinal rather than spine. At the NSCIA Resource Center we frequently receive calls from persons with Spine/Back problems who tell us that they have a spinal cord injury; it takes very few questions to know they do not understand what SCI is.
I like Stephen's suggestion of SpinalSource....or SCI-Source that would address the intent of the site, i.e. a comprehensive source of SCI information. CRF
Sue Pendleton
08-01-2001, 09:34 PM
On a bad day like, say today, I like something like this:
http://www.scisucksratpoop.org
rybread
08-01-2001, 11:05 PM
scihelp.com
scisupport.com
spinalnet.com
scinet.com
scitalk.com
Shawn
08-02-2001, 04:12 AM
Why not be positive and go for - spinalhope.com? http://sci.rutgers.edu/forum/images/smilies/cool.gif
Wise Young
08-02-2001, 04:43 AM
After conferring with the founders of spinewire, who thought that sciwire is great, I just reserved sciwire.com, sciwire.net, and sciwire.org. Wise.
I think sciwire.com is a bit clumsy - hard to remember.
Even though it's probably too late to bring this up again, why not something catchy like:
Spinalrap ?
Wise Young
09-30-2001, 01:10 PM
ip, I like spinalrap. Yes, I agree that sciwire is perhaps not the best. It is hard to pronounce and I would have much preferred to have been able to use spinewire which is known and slips off the tongue. Unfortunately, Cando will not sell us the URL or the brand, even though they are doing nothing with it. I continue to hope that someday they will realize that they are simply doing a disservice to the community by not letting it go. In the meantime, we have already reserved (and paid for) the sciwire.com, sciwire.net, and sciwire.org names.
Wise.
etexley
10-01-2001, 03:40 PM
To start with, I think that Cando should post a link this THIS SITE!
Eric Texley
X-racer...
10-01-2001, 04:25 PM
how about "Spinalrewire"????
it kind of reflects the sentiments of what people with SCI want
LIVE IT UP AND LIVE IT LARGE!!!!
Wise Young
10-01-2001, 04:50 PM
X-racer. I like scirewire... We actually thought long and hard about scicure. On the other hand, we thought that sciwire would retain just enough of the spinewire name so that people could recognize the relationship.
Word is spreading about sciwire. It is going at about the pace that I had hoped. I have been afraid that if we had a huge influx of new people, this site would lose its close community feeling. We are continuing to accrue registrations at about 6-8 people a day.
The quality of postings in this site remains high. Unlike commercial sites, we do not under a great deal of pressure to expand rapidly and having a large volume of postings is not as important as having very high quality information.
We are now trying to get together the team and structure to develop very high quality articles that would attract scientists and clinicians to this site as well.
Wise.