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brina60
10-12-2003, 09:28 AM
My husband is a c5 incomplete. His accident was about three years ago and he is a walking quad. However, he soon developed central nerve pain, which has accelerated very rapidly.

I love him and want to help in any way I can. However, seeing him suffer and talk about suicide daily is wearing me down. My health is beginning to suffer.

We have tried trials, visited top specialists all over the country, not to mention the numerous medicines. He is now attending a pain clinic for alternate means of pain control. So far, no help.

I would very much welcome any suggestions or insight from other spouses.

Totally frazzeled!

Leo
10-12-2003, 12:33 PM
Hi Brina, try in caregiver forum also, some great people there, hang in there

"All you have to decide is what to do with the time that is given you."
Gandolf the Gray

Hush
06-04-2005, 08:04 AM
Brina,
You got to be strong.Never showed him that your giving up or sort of pitty for him.Because somehow it contribute to his fear.
I think your husband need full support from the family.In the first place he is in adjustment period of this pain,it will take time to lessen the pain though.Just make his self busy for something,just to divert his attention.
There are some SCI patient suffered for this consequence as what ive experience being a physical therapist.Being good listener and counselor really helps a lot to depress patient.I do great motivation and bulk of explanation regarding the condition.
I told you story,i have this patient of mine. she was diagnosed Cerebrovascular Hemiplegia;on stage of denial.she cant accept the fact that it was happening to her.She is very active employee,working at embassy.Considering the nature of her job,in denial stage.
I've handled her for almost 5 months.On the first 2 months i have really hard time to convince her for further treatment and go into rehab.
Thank God some motivational and bulk of explanation with her case help a lot to her recovery.Although i know that we are talking with SCI patient here and excruciating pain.

"Action Speaks more louther than words"