HBO special - Paralysis Cure

[Chris Chappell]

On May 19th, 8:00pm EST there will be an HBO special concerning a cure for paralysis.

Although the show is focused on three sisters (title: 3 Sisters) and their quest to cure ALS (one of the sisters is paralyzed from above the shoulders - C1-2 equivalent) I believe that the content will be very relevant to the sci community.

There is quite a bit of Hollywood buzz and support. Be sure and watch. Dates and times can be found here: www.hbo.com (http://www.hbo.com)

[jimnms]

I don't get HBO, can somebody record it and upload it? I can host the file(s) if somebody can record it.

_____
Learn from the mistakes of others, you won't live long enough to make all of them yourself.

[antiquity]

Thanks Chris.

[giambjj]

Wasn't this directed by CR?

JJG

[spaceboy]

"THREE SISTERS: SEARCHING FOR A CURE tells how she and her sisters Valerie and Meredith fought the disease by creating Project A.L.S., a nonprofit organization that has raised $18 million and has catalyzed ALS research by bringing together a dream team of scientists from Columbia University, Johns Hopkins University, Harvard University and the Salk Institute to find a treatment and cure for the disease."

18 million?!! Why can't we do that?

"The essense of Greatness is the Perception that courage is enough." R. Waldo Emerson

[Chris Chappell]

spaceboy, great point.

Personally, I think that there is too much dilution of effort scattered amongst too many organizations, factions. If we stayed with and focused on one or two groups, such as CRPF, I believe we would make faster progress.

Also, this collaboration by three sisters is very personal, profound, rare. Getting three people to commit as they have is obviously difficult and unique.

This story reminds me of Lorenzo's oil. I admire, respect and applaud the singular almost maniacal approach to accomplishing a sought out goal with unflinching and relentless effort.

And, as fragmented as we are, I find it still pretty amazing how far we've come in a relatively short period of time (4-5 yrs).

It's a shame that the sister with ALS has died (Dec, '03) but a wonderful testament to the spirit of love, true human compassion, and a never give up attitude. Hope is powerful, powerful emotion when put into action.

Onward and upward.

[-scott-]

Originally posted by Chris Chappell:

Personally, I think that there is too much dilution of effort scattered amongst too many organizations, factions. If we stayed with and focused on one or two groups, such as CRPF, I believe we would make faster progress.
excellent observation Chris. This may be a shot in the dark, but is there any resource out there that lists the majority of them?

[Curt Leatherbee]

I had done a post about this show a while back on this forum. Looks like it should be interesting, I plan on watching it. Jimmms, If I had the capability of recording it, I would for you, anybody else know how to do this?

[PN]

Jim: I will try to remember to watch this HBO special, along with recording it on my VCR. Send me an email and maybe we can figure something out.
I have cable internet.

PN

[antiquity]

Scott Pruett, they can be found here. (http://carecure.org/forum/showthread.php?t=19191)

[rdf]

Great link, seneca. Thanks for compiling all that important cure info.

-peace http://sci.rutgers.edu/forum/images/smilies/smile.gif

[-scott-]

thanks seneca http://sci.rutgers.edu/forum/images/smilies/wink.gif

[Schmeky]

Was wondering if anybody else saw this? At the end of the program, it was stated ALS research would benefit Parkinsons and SCI as well.

The narrator also said significant progress had been achieved in the research realm and that clinical trials would begin in a year or two. They showed recovering mice that had been treated, pretty impressive.

[PN]

Originally posted by Schmeky:

Was wondering if anybody else saw this? At the end of the program, it was stated ALS research would benefit Parkinsons and SCI as well.

The narrator also said significant progress had been achieved in the research realm and that clinical trials would begin in a year or two. They showed recovering mice that had been treated, pretty impressive.

I also understood it to mean that this technology could be used for SCI. I remember channel surfing and ended up on C Span and I recall her testimony, along with CR.

PN

[Curt Leatherbee]

It is on again Sunday at 11:30 am, and then thursday at I believe 7pm, better double check.

[Christopher Paddon]

I know this is a cliche but I wish I were a mouse or a rat