mission connect foundation

[Curt Leatherbee]

Anybody heard of this foundation? http://www.missionconnect.org/contact.php

A Woman from this foundation gave a speech at a Shake a Leg meeting the other night and it sounds like a really good concept in trying to bring ideas together from different research facilities rather than just having everyone doing their own thing.

"Life is about how you
respond to not only the
challenges you're dealt but
the challenges you seek...If
you have no goals, no
mountains to climb, your
soul dies".~Liz Fordred

[Tim C.]

It appears to be a collaborative research facility. Is this not what Wise Young's lab is for??

[DA]

these ppl in the past hasn't been pro-cure.
dr clifton told me their was nothing wrong with living my life with a compressed cord. he also said he never heard of oeg. i knew he was lieing but i didnt tell him i knew. another doctor from utmb told me all about him 3 years ago. i dont understand why they feel they have to lie to us.

[Schmeky]

Texas version of Miami Project, so sad.

[Wise Young]

Let us not tar and feather just yet. Mission Connect is a group of Texan scientists and physicians who are trying very hard to develop spinal cord injury therapies. It is a good development that scientists and physicians are trying to collaborate. Let us encourage and work with them. The goal is to educate people.

Wise.

[member412678]

Sorry Dr. Young, but I have to say, a huge problem is that many of these scientists and doctors don't care to listen to the people that are living it. As for education, what better source than someone who is living it?
Money talks, people listen. Sad, but true.

[Schmeky]

In a prior thread concerning Mission Connect, Dr. Clifton stated, "we hope to be able to make a paralyzed muscle move in the next 10 years". Dr. Clifton is probably a good person, but I found this totally unacceptable. Seems as though he needs educating on world developments in regards to SCI.

[DA]

dr young...dr clifton still think your at nyu. talk about outdated on you and research.

[Chris Chappell]

redneck, others - I believe that Mission Connect was started by a family of a young woman (19) who is paralyzed.

They are highly motivated, and fairly well funded, to make progress towards an sci cure.

DA, schmeky - What is it again that you two have done to help further sci research?

...oh yeah - nothing.

A couple of real winners, I mean whiners.

[DA]

wcrabtex we are not attacking them. look up my post on mp, now that is attacking. we were merely yeah yeahing at them because of their past history of bullshitting.



.Maybe we should contact Mission Connect and ask for a meeting with their board to discuss their mission and express the concerns of people with SCI.


i met with dr clifton already. i was polite and he was very negative. a loser mentality which will not help us get to a cure.



Let me remind you Geron ( a biotech cooporation) has announced plans to begin a clinical trial using human ESC's in the treatment of acute SCI in 2 years.

wow 2 years. i heard that before. wcrabtex remember i was around when utmb and houston announced this union waaaaaaaaay back in the 90's. all these years wasted and one of the researchers told me back in may that they may finally start research later this year. whoaaaaaaaa, they are moving way to fast.


Maybe we should help these people rather than offer non-constructive criticism.

anything we say short of mission connect you are so godly like is considered non-constructive criticism to you.


They are highly motivated, and fairly well funded, to make progress towards an sci cure.

DA, schmeky - What is it again that you two have done to help further sci research?


seeeeee, once again forum members can attack other forum members but can't demand better of a systems that screws us in both care and cure.
slaves to the system.
fiddler gonna play a mighty fine ho-down for the massa.

[Schmeky]

wcrabtex,

I was under the impression the upcoming Geron human trial was for chronics. I may be wrong.

ChrisD,

Read the prior posts about Mission Connect (MC) to verify what I have stated. Didn't want anyone to think I was "attacking" MC. However, 10 years and we might get a muscle to move bothers me, doesn't that concern you as well? It would be most helpful if we could get someone at MC to post here periodically to achieve a positive exchange. Other than Dr. Young, no other research organization shares with the CC members. We could potentially be a source of funding.

[antiquity]

There's more about Dr. Clifton's work below.

http://carecure.org/forum/showthread.php?t=17540

http://carecure.org/forum/showthread.php?t=17749

[member412678]

I thought I had read somewhere that TIRR was big into "quality of life" research, like, people that cath get more bladder infections(DUH)
I was speaking from personal experience with the "traditional" minded medical community in Texas. Many dinosaurs are alive and well in the medical community of Texas, and I'm not talking about their age. I'm talking about their attitude.
Sorry to sound negative. I hope that Mission Connect is different and will move forward with positive results in the near future...but I agree, the 10 years to move a paralyzed muscle does make you wonder.

[member412678]

thanks for the info Senaca

[Rick1]

Mission Connect is a research effort led by TIRR Foundation. A portion of the funding comes from the TIRR Emily Endowment, which was established by the TIRR Foundation and the Thomas R. Conner family to honor now 26-year-old Houstonian Emily Conner, who injured her spinal cord in a diving incident in 1996.

Most of the local publicity concerning Mission Connect is focused on fund raising efforts; but so far, nothing definitive about "affecting the biology of the injured nervous system" (they avoid using the term "cure").

[Schmeky]

Rick,

Thank you for your observation and comments. 6 years is a long time to fund raise.

WCR,

I have a call in to "Mac", waiting for a return call, thanks for the info.

ChrisD,

As a moderator, I find your name calling and chastising attitude unusual. If your objective is to insult board members and selectively attempt to run them off, I feel you may be succeeding. The way talk to Debbie7 about her book, the names you call me and others. . . . well I think I'll stay away from the CC Forum for a while. Adios!!

[member412678]

I couldn't agree more. Chris D./Phebus? you can really be mean at times.

[Leo]

DA, Schmeky and anyone, IMO opinion keep hammering reaserchers, facilities keep their feet to the fire. If they don't have a thick enough skin to come here, hey their problem. The FACT is we have researchers, facilities, and foundations who's priority is not cure but staying in business. I do things other ways as do other members but unless we have people hammering them, it will take longer. History tells us this, look how far the ADA and other stuff got and a great part of it was because of the more in your face attitude of ADAPT. I tagged along with them once and got my butt kicked out of the capitol building. What a rush!! If not us who?

[Curt Leatherbee]

Thanks for the information everyone, they sound like a fairly objective/conservative organization as far as their attitude about Cure, which sometimes I think can be a good thing.

"Life is about how you
respond to not only the
challenges you're dealt but
the challenges you seek...If
you have no goals, no
mountains to climb, your
soul dies".~Liz Fordred

[mk99]

Curtis how is being conservative about a cure a good thing for us? I agree it's a good thing for people who want to sell wheelchairs and maintain the status quo. I also understand the dangers of a premature and poorly executed human trial but the dangers of NOT doing one are far greater... for us not them.

Being objective is not the same thing as being conservative in my opinion.

[rbyrd49100]

I was excited at first when TIRR announced this new "Cure" research program. Especially since they are located here in Houston. But now I worry that they make take funding away from organizations that have a more positive outlook about a cure. All we ever encountered there was negativity. Maybe they have changed their ways?

Russ Byrd

[angel7]

Schmecky,

Please don't leave this forum. I enjoy and find your input informative. I only read the first paragraph of Chris's post about my book and I basically don't read his posts or just ignore what he has to say. Thanks for being positive about what I'm trying to do. Don't let the Chris' on this board chase you away. We need each other if we are to survive this SCI.

Deb

[Chris Chappell]

bump - Concerning Guy Clifton.