Welcome to the Cure Forum

[Wise Young]

As many of you know, the Cando Research Forum (http://www.cando.com/forums/topics.jhtml?GROUPID=1&x=6&y=9) was the best place to find out about the latest spinal cord injury research. There are few places where you could ask any question about research or vent your opinion about the cure (or lack of) and get dozens of knowledgeable answers back in a matter of hours. In the past year, I don't think that there was anything happening to spinal cord injury research around the world that did not get posted within hours or even minutes. I hope that this continues here. I will of course continue to visit this site daily and answer any questions that I can. Wise.

[pmh]

...for taking the initiative to continue the forums at this new site. The internet forums has become a very valuable and important source of information for SCI-people worldwide. Since Cando is shutting down will I joyfully follow the Wise man to new domains.

PMH (C4 since 1984)

[The Human Cannonball]

I second what pmh said. Thanks again for all you do for the sci community.

John Ponziano/Chicago http://sci.rutgers.edu/forum/images/smilies/cool.gif http://sci.rutgers.edu/forum/images/smilies/smile.gif http://sci.rutgers.edu/forum/images/smilies/biggrin.gif

[DA]

all i have to say is just dont make any merger deals.


also, how come its called carecure instead of CUREcare?

[KeyBored]

Thank you Dr. Young and all others who worked to keep these forums active.

Steve
keybored.net

[Jeremy]

Thanks Dr. Young and to all the others, great site, I think Melissa will like the smilies. http://sci.rutgers.edu/forum/images/smilies/smile.gif

[rdf]

Pretty cool site, Wise. I like the color schem as opposed to cando. Thanks for all that you do to help us get back up on our feet, and become independent once again.
http://sci.rutgers.edu/forum/images/smilies/cool.gif \/ http://sci.rutgers.edu/forum/images/smilies/smile.gif

[Birde]

Thanks Dr. Young! I look forward to the forums here and will pass the info. along to all!

[Curt Leatherbee]

For all that you have done to help out with our lives with SCI.

You have contributed so much, Methylprednasone, the good advice of decompression surgury whenever possible, and now the Contribution of this website. Thank you so much.

Most SCI's are living better lives thanks to all of you're efforts in the field. Curtis

[antiquity]

This site looks great Dr. Young, very user friendly! Thanks!

[pejman]

Dr. Young,

This site is much better than Cando. I appreciate your help and hard work.

b.Pejman

[giambjj]

It is a God send to my family and I. It is a light at the end of the tunnel.

[wuff]

the verry best about sci-news! i love it! thank
you wise!
HUBI

[Carl R]

testing

[pecla]

Thanks Dr.Young for all the efforts you have done.Especially the advanced search function is a big improvement.But when I understood it right only the Cando articles from you will come back..does that mean that all the postings will be lost forever after thursday? That would be a big loss! But at least we still have you and a good site to communicate.

[This message was edited by pecla on July 24, 2001 at 04:13 PM.]

[James Kelly]

Good site, Dr. Young. Thanks!!! Btw, can I have copies of your PEMF manuscripts? Work is proceeding in which Diapulse is being used as an adjunct therapy in support of additional regenerative treatments for chronic SCI. Your previous Diapulse work might therefore provide insights that could result in less delay in bringing such combinations from bench to bedside, or which may save precious funds that might be otherwise spend on needlessly going over ground you've already covered in your acute PEMF work.

Jim

James Kelly

[huck]

keep the information coming

[mikek]

Thanks for being you and again great job!!!!!

Mike

[GARYM]

thanks dr. young, you are the true champion of the spinal cord injuried. it's nice to see the rest of you freek-shows here aswell!! garym

[melliska]

very nice setup dr. young (and sam if you're around already)

i do like the smileys a lot jeremy. ahhhh... http://sci.rutgers.edu/forum/images/smilies/smile.gif http://sci.rutgers.edu/forum/images/smilies/biggrin.gif http://sci.rutgers.edu/forum/images/smilies/wink.gif http://sci.rutgers.edu/forum/images/smilies/tongue.gif http://sci.rutgers.edu/forum/images/smilies/cool.gif ...much better, but i am a lil disappointed now because i can't use the green ubb code here http://sci.rutgers.edu/forum/images/smilies/frown.gif i guess i'll never be happy...lol

i may be a freak but at least i'm not a turtle gary...lol

[FREEJ]

THANX A TON DR. WISE FOR YOUR EFFORT/TIME AND CARING. I HOPE THIS SITE HAS MUCH SUCCESS,,,,''LET'S TRY TO KEEP IT GRASS ROOTS, AND DON'T GET TO CORPORATE MINDED.''

GOOD TO SEE CARL-R, GARY-M,SENECA, CURT, OTHERS,,,,AND OF COURSE ''MISSY T.A.K.''

[Leo]

Hi All,

Thanks to everyone who made this possible!!!
Looks good and user friendly.

[Martin]

Dr Young,You are truly a compassionate & knowlegable "GURU" of the SCI community,thankyou too yourself & everyone here that makes this forum possible.It,s time too give SCI a good hard nudge,GO CURE!

[Jeff]

It looks good and is easy to use. Most important of all is that I got here soon enough to get the username "Jeff." Thanks for your efforts Dr. Young. Can't wait until we're all here talking about levels of recovery - our own.

[Duran]

Thank you for your help and efforts Dr. Young and everyone who saved this "vital" forum! Dr. Young, you are able to do a sect of us and bring us as far as the cure...

P.S. When do you mean to visit Slovakia?

[paulsask]

Greetings People

Good to see everyone back up and running.
Many thanks Dr. Young for your timeless efforts on these forums.
I very much enjoy reading the shared information and varying opinions of all involved.
God bless to all.

Paul

[Rustyjames]

Dr. Young,
New Jersey doesn't have many things to be proud of, thanks to you, now it does. Great job!

[Shaun]

This is great!
No ads,easy and very fast.Thanks to all for the hard work it's appreciated probably more than you know..
........\/PEACE
~Shaun~

[gpbullock]

Hello everyone at the CareCure forum, I have been quietly reading the forums here and at Cando for awile now and just thought I would introduce myself. My name is Mark and I am a T12, 16 months post injury. Just wanted to say thanks for all of the information and discussions, they've been really informative. Also, thanks to Dr. Young for being such an outspoken advocate for the SCI community, and being available for discussion. Mark

[Andrew K Fletcher]

Just reading about the history of this incredible resource.

Congrats, Dr Young and everyone for their hard work putting this together.

Favourite Quote:

"I believe that unarmed truth and unconditional love will have the final word. We have flown the air like birds and swum the sea like fishes, but have yet to learn the simple act of walking the earth as brothers and sisters." Martin Luther King

[This message was edited by Andrew K Fletcher on 04-07-03 at 01:05 PM.]

[Mike C]

And how. This site has come pretty far. What a success story.

[bent]

and the cure news is "if you got a complete spinal cord injury, move on with your life, this injury is permenant!"

[Wise Young]

bent, you are surely entitled to your view on the possiblity of cure but I believe that this forum gives the opposite message. Wise.

[Felps]

This is democracy at its best. I don't agree with everything here, but I do love the loyalty from the current SCI posters and the sincere dedication from WISE. If there is anything a SCI needs they can at least find help here. Keep up the good work.

KEN

bent,

I am continually offended by your posts. You write as if there is no hope. Around the first of the year, you wrote that the best thing you had done was accepting the fact that you will never get better. Yet, you continue to come to the Cure forum and discourage everybody with your negativity. If you truly believe you're "screwed," please refrain from discouraging others, especially since you are uninformed. I say this because of your mention of Carl Kao - that seemed to be the first you had heard of the doctor.

I also believe that you should count your blessings as a low level para, you could be a lot worse.

[duramater]

cjo,

You inspire me with your energy and your fantastic attitude! Despite a high and complicated injury, you have a hopeful, positive attitude of HOPE, while you are very much pointing forward in your life...Keep Going my friend...lets chat sometime OK?

Mary

...and she lived happily ever after...

[bent]

CJO-

I hear ya! I can be negative to the point of excess. But I am more informed than you could possibly realize.
- friend and neighbor to Chris Reeve-he's discouraged for lack of government funding
- I know Nick Bonacanti- Miami Project is severely long term
- I live a few miles from Acorda therapuetics- I have visited many times casually and on an informal appointment. They are realistic in their goals.
- I have lobbied directly to Senator Clinton; believe mein NY state government funding os stem cell research is on the bottom of their endless list of to dos.
- My first cousin is on the board Of Yale University Medical program.- Alexion's affiliation with Yale has stalled in zenotransplantation for SCI; they are trying to organize their MS trials in several years.
- I get up to date news on SCI research in person from Dr. Kristjan Ragnarrson at Mt. Sinai; he's a realist and his blunt opinion ain't pretty regarding cures.
- I've got a childhood friend working under Dr. Gearhardt at Johns Hopkins University; they have neither the funds or clinical setting to start SCI trials.
- Finally I have continually bothered a friend of my parents who is a Congressman down in Florida; after speaking with him he is no friend of mine; He is staunchly conservative and is 100% sure that therapuetic cloning will be banned while Bysh is in office, which is another 5 years at this point.

-I'm not listing this to show off or any kind of garbage, I'm showing you my informers for the last few years, negative I am, but the facts I've obtained show my negativity to be valid.
bent

[bent]

I forgot to mention this- when you find the time, get in touch with Dr. Barth Green at The Miami Project, he'll sure tell you what he thinks of Dr. Kao.
Again this is from his mouth, not mine-" Dr. Kao is a fugitive in this country not to be trusted!!

This is not the most appropriate place for an argument such as this.

First of all, Miami Project is about the last place that I'd listen to. I will never bother wasting my time contacting them.

All of your contacts are nice, but you don't mention anybody outside of the U.S. Chronic SCIs are being treated outside the U.S. as we live and breathe this life of SCI. What about Wise? He's been working with SCI for decades, and he believes the cure is coming.

At least Kao is operating on humans, and some members here are very happy with the results.

You don't have facts that show your negativity to be valid, you have opinions. Don't discourage newcomers by filling the Cure forum with your negativity. As far as the cure goes, I will quote mkowalski99, "Save your money and keep your passport up to date."

Like I said before, I read that you had accepted your fate. If that's the case, why do you check the Cure forum?? For the sake of your sanity, you might want to forget about the Miami Project.

[angel7]

I know I've said this before but w/o this site I would have gone stark, raving, mad or possibly something much worse. Thanks to Dr. Young, our moderators and all of you who post your thoughts on this forum.

Deb

[bent]

Well, why didn't you tell me before that mkowalski99 said a cure is coming? If I had known I would have jumped on the redeye to Mexico!?

Go to Mexico - see if I care. If that's your best argument, I'm finished with this topic. Please quit discouraging others.

[bent]

cjo- you're living on fantasy island!

I've been lobbying our Senators for 2 years non-stop, along with giving to Christopher Reeve Paralysis foundation. I have been in touch ( talking with) with every company in the country that has had SCI clinical trials on the front burner for 3 years, christ, I've visited more than half of them in Mass, Albany, NYC, and spoken with some of the directors of the proposed SCI trials!
Quit discouraging others! I am reporting what I have seen and been told for over 3 years from some of the most cutting edge scientists in the U.S. I am not gonna alter what they told me to appease newcomers and tell them what they want to hear!
These may only be opinions', but they're coming from many of the people who are dedicating their time to help!
Outside of the US, the only guy I've corresponded with is Dr. Lovell-Badge, who is very concerned with the loose "cure" terms flying around.

[mk99]

Hey I've been quoted. Cool. http://sci.rutgers.edu/forum/images/smilies/cool.gif

There are many comparisons to SCI progress one can use. I like to think of aviation. The first flights were a joke compared to commercial travel today. It wasn't pretty but it was flight. And flying got MUCH better with time.

That's where I think we are now with SCI progress. I don't need to fly on the Concord today. I'll take a Cessna for now thanks.

[Christopher Paddon]

Bent

How long have you been paralysed? - it can be a long long wait for a cure.

However, there are reputable groups who are more optimistic about the prospects of SCI treatment - what about Wise Young? The Brisbane group have started clinical trials. Geoffrey Raisman in London should be starting trials in the very near future - Lima in Portugal has had some limited positive results, and the results of intensive exercise have been proved by several places.

Paralysis is a most tedious and dreary condition to live with because so many pleasure once enjoyed are gone and those you still have are a struggle.

I couldn't live like this unless I thought a cure were possible and this forum is great for keeping up to date

bent,

your last post just solidified your ignorance. There is a world outside of the U.S. Chris2 made some very good points. There is also Dr. Huang in China, who is treating complete chronics with positive results.

I'm not saying that a complete cure is out there now, but to listen to you, a complete chronic has no hope for any functional gain in his or her lifetime. This is simply not true. Open your mind a little.

I am in no way living on a fantasy island. Exactly what statement do you believe is fantasy? Enlighten me, oh great one.

[Duran]

Information removed at request of member.

[jsellitt]

My girlfriend's 20 year old daughter has a severe spinal injury in the thorasic region due to 10 years of cheerleading. Five of her discs are compressed as flat as pancakes and it's causing unbearable pain. Doctors are telling us that surgry is too risky, pain management says she's not qualified for a nerve stimulator and everyone says that she has to live with the excruciating pain she's in for the rest of her life. She's growing tired of fighting the pain and wants to give up since no one is giving her hope for the future. Does anyone know of a proceedure that works with this region of the spine?

[Wise Young]

My girlfriend's 20 year old daughter has a severe spinal injury in the thorasic region due to 10 years of cheerleading. Five of her discs are compressed as flat as pancakes and it's causing unbearable pain. Doctors are telling us that surgry is too risky, pain management says she's not qualified for a nerve stimulator and everyone says that she has to live with the excruciating pain she's in for the rest of her life. She's growing tired of fighting the pain and wants to give up since no one is giving her hope for the future. Does anyone know of a proceedure that works with this region of the spine?

jsellitt,

I am sorry to hear of this problem. She is very young to have this problem. Presumably her problem is in the thoracic area and that is why the doctors are saying that the surgery is too risky. To reach that part of the spinal column, one would need to go through the chest. She is also very young and most surgeons would hesitate to fuse that many levels of the spine in somebody who is only 20 years old. But given the level of pain that you are describing and the fact that she growing tired of fighting the pain, she should probably go see another orthopedic surgeon who might be willing to look carefully at her x-rays, to see if there is any place where the cord or spinal roots are compressed and these correspond to the location of the pain. Some careful and selected surgery can be carried out to try to relieve the pain.

Wise.