A blog about living with a spinal cord stimulator..

[Danimal]

Hi everyone:

I am a 29 yr. old woman with severe chronic back and leg pain (neuropathic pain). It started when I was 16 and, after having 2 surgeries, I developed significant epidural fibrosis and the pain got worse. I've been on all sorts of pain meds. but, after one of them was causing me a scary heart problem, I decided to trial a neurostimulator. I had the perm. implant put in on 1/16/2009 (it is helping but I am still on methadone and morphine).

When I was trying to decide whether to do the surgery, I looked for as much information as possible but wasn't able to find anything that really talked about a patient's experience, without it being a patient who represented one of the companies. So, I decided to start my own blog that has nothing to do with any of the medical companies. I wanted to share the link with anyone on here who is going through the same decision making process. I hope it is ok for me to post this!!

The blog is called Chronic Stimulation and the link is:

http://www.chronicstimulation.blogspot.com/

I'd love for you to visit if you think it may help you. I've posted pics. of my back post-trial and post-surgery and try to update on my status as much as I can. I also discuss issues pertinent to living with a stimulator.

Hope everyone is having a low pain day. :zombie:

Best,
Danimal

[David Berg]

Welcome to CareCure. I hope you find some useful info. There are other threads here about stimulators if you do a search, just to gain some different perspectives.

[Danimal]

Hi David,

Thanks for the welcome! And thanks for the suggestion. I'm def. still in the learning process myself so it helps to talk with other patients who are farther along than I. But I def. want to reach out to those patients who are just embarking on the whole process.

Do you have a stim??

[David Berg]

Hi David,

Thanks for the welcome! And thanks for the suggestion. I'm def. still in the learning process myself so it helps to talk with other patients who are farther along than I. But I def. want to reach out to those patients who are just embarking on the whole process.

Do you have a stim??
Not I, I mostly just try to learn from those who post. ;)

[mccarthyd]

I got a stimulator in March 2009, so I am learning how to live with it. I think I get about 30-40% relief. What is yours? I will check out your blog.