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tegdirb
12-07-2003, 06:44 PM
This is an article i wrote about my mom for the PVA, who is also my caregiver...


The Definition of Love

Hello readers of the Desert Oracle! My name is Bridget Bauer and last month I wrote the article MITROFAWHAT?! This month I would like to introduce you to someone very special to me. I think almost anyone with a spinal cord injury or cares for someone with a spinal cord injury can understand and relate to this article. Thanks for reading and take care! Bridget

When I first started getting over pneumonia after being in the hospital for about a month after my spinal cord injury, I wanted to die. Anyone that has ever been told by doctors that they were going to live the rest of their lives in a wheelchair can certainly understand the way I felt. While I had pneumonia, I didn't think about the extent or seriousness of my situation because all I could think about was how scary it was not being able to breathe. So when I was first transferred to rehabilitation, I cried my eyes out and seriously wanted to die. I wasn't exactly sure how I should have felt. I kept thinking I don't want to live like this and why did this have to happen to me? This shouldn't have happened to me; after all I was young, smart, pretty, and healthy. Terrible things like this just don't happen to people like me, but then who should they happen to?

The only person that took the whole situation harder than I did was my mother. She was devastated and didn't want to believe I wouldn't be able to walk again, but she didn't show it. Instead of having a nervous breakdown, she hung in there for me. Every time I woke up in the ICU she was there holding my hand and telling me I would be okay. She would rub my fingers because I couldn't move them and wet my lips and mouth because I wasn't allowed to drink. I had all kinds of tubes going in and out of my body, which would make any mother's heart break.

The nurses in rehab kept referring to me as a quad which concerned me quite a bit because I had no idea what it meant. They talked about me like I wasn't even in the room. I was just another patient as far as they were concerned. This was the first time I had ever been hospitalized and so far it wasn't the best experience of my life. I didn't like this word quad, especially because it seemed to define me as a person in this place. The rehab room was so impersonal and cold that just being there could make a person sad. Between being called a quad and the whole rehab setting, my anxieties and fears were escalating. I had a roommate too, which made matters worse because I had always been a very private person and really didn't feel like seeing anybody. Family and friends came to visit when they heard the shocking news, but one by one they started making themselves scarce. That didn't help the situation either.

Even though in the beginning of my rehabilitation my mother was as scared and nervous as I was, she was much stronger than me. As I laid there crying in the hospital bed wanting die, she held my two hands within hers and said with tears in her own eyes, "I'm your mirror, when you are sad, I'm sad; when you're happy, I'm happy." Then she gently touched my face and wiped my tears away. I've never forgotten her words and never will. I finally understood how much I meant to her. From that day on, I had decided that I was going to give this rehab thing a try and get through this. She had saved my life that day (and many days since) and without her I don't know what I would have done. I am not going to say that since that day everything between us went smoothly, but if they didn't it was because of me.

Although my mother was the only one there for me, I would still get very angry at her. The truth of the situation was that I wasn't angry with her, but rather my anger was displaced. It was with me. She took my fears and anxieties away that night, but nobody could have taken away the anger and frustrations I had with myself. I was in a different body, one that I did not want to be in, but I had no choice. I couldn't move like I did before. It was as if I had been in a cocoon and I was so afraid.

Since my mother was the only one there, I had no one else to take my aggressions out on, which of course was not fair to her. My father had just passed away from lung cancer nine months before. We were still getting over that tragedy. My mother was also the only one who took care of my father. He went through radiation and grueling chemo therapy treatments; his whole right lung even had to be removed. It was often very difficult for him to breath and he would get very ill. Through it all, my mother was there without complaint. My father never wanted to admit how sick he really was; I guess he was scared too. On April 9th, 2001, at 9:10 p.m., my father past away. The cancer came back and had spread too quickly to treat. He was the best father a girl could have had. My mother and father were happily married for twenty-six years.

Every time I was upset with my mother in the hospital, she would never become angry with me. Instead, she really didn't say anything. This is very unusual for her because she loves to talk. She remained very calm and always patient. She would leave my hospital room for a little while and come back after I cooled off. The only time she left the hospital was to sleep and shower. Quite often she stayed over night at the hospital, sleeping in the hall or on one of the therapy mats. We didn't live in Phoenix at the time, so she stayed with relatives until she found an apartment to rent. As soon as she found out I was injured, she decided to sell her business and house in Prescott to move down to Phoenix. She wanted to be closer to me. She also thought that after I got out of the hospital, I would receive better therapy in Phoenix. She gave up everything for me.

Through a lot of difficult times, my mother has never left my side. I know that in this lifetime, I will never be able to repay her. Some people have not been blessed to have a mother as loving, wonderful, and extraordinary as I do, which is very unfortunate. Sometimes I look at my mother and I wonder how she can still remain so beautiful after all she's been through. She's not only kind to me, but is kind to anyone she comes in contact with. Her strength and hopes have kept me alive. I truly know the definition of Love because of my mother. Thanks, Mom.

Even if your body cannot move, you can still think and meditate ~Dalai Lama~

metronycguy
12-07-2003, 07:11 PM
very good letter, you put very well into words what real love is , something anybody would be blessed to have.. nice

john smith
12-07-2003, 08:21 PM
a wonderful post bridget. thank you for sharing the heart wrenching traumas your family has experienced beginning with your father's ordeal.

your mother speaks for many of us parents who must endure their child's life being so suddenly and completely altered by sci. parents are not accustomed to feeling helpless about their children. it is their job to know what to do, how to point in the correct direction, how to fix what is broken, and how to right the wrongs. sci strips us of that ability and we must become the mirror of empathy in order to demonstrate our love. ever so slowly our ability to assist returns and we make many mistakes along the way. the kind that come from trying too hard and the kind that are part of the learning process of what sci means. often there is a sense of being in the way as we realize the child has a clearer understanding of the realities of their situation. we cry for our child but we cry also for our uselessness against the tyranny of sci. we, too, like our child, long for someone to tell us what to do. we arm ourselves with information, (thank you care/cure) and we get ready for the battle ahead. that battle is mostly emotional and demands a heroic degree of patience and mental fortitude from everyone. we just wait for the opportunity to be needed.

i am happy for you that your mom is so supportive. thanks!

john smith

Karen'sMom
12-09-2003, 07:10 PM
Hi Bridget,

What a lovely tribute to your Mother you wrote. I am sure she feels very proud of you for being mature enough to understand and appreciate what she went through when you had your spinal cord injury. She sounds like a very caring and loving mother, but then you sound like a very caring and loving daughter too.

I love the mirror part.......and it is SO true!

You are lucky to have each other. Good luck on your recovery.

Darlene, another mother of a SCI daughter

poonsuzanne
12-09-2003, 09:32 PM
Hi Bridget,

First of all, I want to express my sincere and warm regards to you and your mom!

Since my son's injury, I always try to pay more attention to news concerning tragedies happening daily, especially when someone died. I found that tragedies frequently tend to fall on people who are very hardworking and dedicated to their jobs, very responsible for their families, very considerate to other people... They are the unfortunate group of sufferers chosen by the universe to be sacrificed during the circles of life, how unfair!!

Like yourself, your mother and my son, I strongly believe, are the toughest and kindest persons who had unfortunately been chosen to endure the utmost pain in life.

Finally, I want to tell you your mom's dedication to you and your dad is well paid off to have a daughter like you!

Suzanne

CowboyCrip
12-10-2003, 10:46 AM
Great article.

I used to think (still do actually) that they should just let us die. As hard as it is on us -It's just as devistating to our loved ones. Parents in particular.

I thank God for having such a wonderful Mom and Dad. I don't know what I'd do without them. I don't know how people manage that aren't blessed with a supportive family.

Friends come and go. Family is forever. As most of us have seen, even the closest of friends drift away after SCI. Even extended family. But parents, grandparents, brothers and sisters are always there for you.

marmalady
12-10-2003, 01:07 PM
From all the moms everywhere, thank you Bridget!

Ya made me cry, ya know! Hope your mom knows what a fantastic daughter she has - can you get her to join in the site?

_____________
Tough times don't last - tough people do.

Chris Chappell
12-11-2003, 11:29 AM
bridget, a wonderful post. Thank you for sharing.

Suzanne, how very true.


Peace everyone.

Spazway
12-14-2003, 05:25 PM
Well-written and very heart-felt Bridget.

He is able who thinks he is able. - Buddha

SCI-Nurse
12-15-2003, 04:21 PM
Bridget, your mother is so lucky that you appreciate all that she has done for you. I would recommend making a nicely printed copy of this on fine paper or parchment (not just from the newsletter) and have it nicely bound (try Kinko's) and present it to her for Christmas. If I were your mother, I would cherish this always!

(KLD)