Larsen
08-16-2008, 01:44 PM
so, I've been fighting off the neuropathic pain for almost 9 years... it will be nine years in September, the beginning of the injury.
My doctor down at MaGee tried almost everything he could think of when I was there as a patient last year from August to November as an inpatient with a bed sore problem. After I left he even tried a couple more things with me, and he believes that any pill form of medication won't work. So, he sent me to a neurologist to talk to me about a spinal cord stimulator. I went there, the neurologist said that spinal cord stimulators do not have the success in treating the type of pain that I have, so he had suggested I go for a baclofen pump, that way you can run pain medicine through it, and they've had more success treating neuropathic pain that way..
So, I tell my doctor that and he said he only does baclofen for the pump, so I should go see a doctor at Moss rehab who does other medicines with the pump. I go to see him, and he tells me that there are benefits for it, but first they would set up a trial, but before the trial I get a psychological evaluation.
This is what really gets me mad. I go for the psychological evaluation, and a week later the psychologist told me that I am very depressed (which I already know I am), and that I have a lot of anxiety (which I already know.). To me these findings were not new to me, the spinal cord injury depresses me, but living with this pain severely depresses me.
So, I go back to see the doctor at Moss rehab, and he tells me that he is not going to work with me because I am too depressed. I tried telling him that the pain depresses me, but he said that he will not work with me unless I seek psychological help, and if that does get better maybe we could try things 6-12 months later.
For me... that is too long. What should I do? I already called my doctor at Magee and set up an appointment for the first week of September to see if he can find me another doctor who can do the procedure for me.
I just wanted to know if anybody has had this happen to you, and what did you do? I thought I was finally getting close to getting this pain under control, and now I'm back to square one.
Any suggestions? Also, I am mad at the doctor. He said I need to get some help, but that's why I was at his office. For help with my pain.
I'm trying to get over my anger and frustration at, but should I be mad at?
To anyone who reads this and gives me some info... thanks
My doctor down at MaGee tried almost everything he could think of when I was there as a patient last year from August to November as an inpatient with a bed sore problem. After I left he even tried a couple more things with me, and he believes that any pill form of medication won't work. So, he sent me to a neurologist to talk to me about a spinal cord stimulator. I went there, the neurologist said that spinal cord stimulators do not have the success in treating the type of pain that I have, so he had suggested I go for a baclofen pump, that way you can run pain medicine through it, and they've had more success treating neuropathic pain that way..
So, I tell my doctor that and he said he only does baclofen for the pump, so I should go see a doctor at Moss rehab who does other medicines with the pump. I go to see him, and he tells me that there are benefits for it, but first they would set up a trial, but before the trial I get a psychological evaluation.
This is what really gets me mad. I go for the psychological evaluation, and a week later the psychologist told me that I am very depressed (which I already know I am), and that I have a lot of anxiety (which I already know.). To me these findings were not new to me, the spinal cord injury depresses me, but living with this pain severely depresses me.
So, I go back to see the doctor at Moss rehab, and he tells me that he is not going to work with me because I am too depressed. I tried telling him that the pain depresses me, but he said that he will not work with me unless I seek psychological help, and if that does get better maybe we could try things 6-12 months later.
For me... that is too long. What should I do? I already called my doctor at Magee and set up an appointment for the first week of September to see if he can find me another doctor who can do the procedure for me.
I just wanted to know if anybody has had this happen to you, and what did you do? I thought I was finally getting close to getting this pain under control, and now I'm back to square one.
Any suggestions? Also, I am mad at the doctor. He said I need to get some help, but that's why I was at his office. For help with my pain.
I'm trying to get over my anger and frustration at, but should I be mad at?
To anyone who reads this and gives me some info... thanks