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antiquity
06-17-2002, 10:05 AM
BOOK REVIEW
Forging on after a spouse's fall changes life forever
By Karen Campbell, Globe Correspondent, 6/17/2002

Like Jill, who goes ''tumbling after'' Jack when he ''falls down and breaks his crown,'' Susan Parker went into a complete tailspin when her husband, Ralph, had a freak bicycle accident that left him a quadriplegic. Her new memoir, based on her award-winning columns about life with Ralph for The San Francisco Chronicle, takes up where that one tragic moment left off, as she adjusts to the aftermath of the accident and figures out how to make sense of a life totally changed.

''Tumbling After: Pedaling Like Crazy After Life Goes Downhill'' could easily have been one of those maudlin, life-affirming tomes that make us cringe and weep in sympathy, admiring the courage of the victim and the saintliness of the caretaker. However, Parker talks about coping with the trials of her new life with such darkly mordant wit and an almost complete absence of self-pitying whine that it makes her tale of survival more than palatable. It is a compelling page turner that is vividly descriptive, achingly moving, and surprisingly laugh-out-loud funny.

Parker charts the rhythm of her days with a straightforward, almost detached tone that is devoid of melodrama and tinged with irony. Even so, the first several chapters are tough going, as she describes the details of her new life as constant caregiver. And as the book unfolds, there are constant setbacks with which to contend - boils and bedsores, infections Ralph can't even feel until they invade his pulmonary system, making it hard to breathe, and all the little wheelchair accidents, from going over curbs to getting stuck in vans and elevators.

The couple's daily traumas put the vagaries of ordinary life into blazing perspective. However, little sparks of humor reassure us that Parker is going to be OK. This is, after all, a tale of dogged perseverance and cagey optimism.

Through accounts of Parker's therapy sessions we learn a little about Ralph himself, who surprisingly remains a bit of an enigma throughout, adjusting to his condition with good humor and flexibility while Parker sometimes feels she is ''dying inside.''

We learn about their life before the accident - the passion, the fights, their love of entertaining, bonding over the intense physical activity of biking, climbing, skiing, hiking - all of it devastated by a split-second tumble over the handlebars of a bicycle.

A major part of what gets Parker and her husband through the day is the eccentric collective of new friends that steps into their lives after old friends abandon them in their gravely changed circumstances. While this colorful cast of characters helps fill Parker's new needs, they have a whole host of needs of their own. They criticize and control, shamelessly mooch and sponge off Parker's limited funds (the extraordinary expenses of Ralph's care are a constant concern), and generally take advantage of her trusting nature. At times, the reader wants to shake Parker and say, ''Get a backbone, girl!'' Yet they give so much more than they take, providing comfort, support, levity, and love. The circus-like swirl of their comings and goings provides distraction from morbid preoccupation with Ralph's condition. They become her new family.

Parker's chief supporter is Mrs. Gerstine Scott, a generous, garrulous, 300-pound neighbor from down the street who shows up at the back door one day wearing ''a sequined pink beret and rings on each of her plump, large fingers.'' A formidable woman of unwavering faith and enough love to mother the entire neighborhood, she bulldozes her way into Parker's life, bringing with her a world of sweet, elderly women with good hearts and empty pocketbooks. Parker derives solace and courage from their attention. In return, Parker is ''the one with the car and some spare change.''

The hilarious and heartbreaking search for a caretaking attendant turns up Jerry, a slightly overweight ''sixty-year-old black man with tattoos and a gold earring.'' Jerry moves in, providing not only excellent care for Ralph, but raucous, irreverent humor. When, after eight months of deprivation, Parker finds thoughts of sex reemerging, she turns to Jerry. In him she finds ''the intimacy I'd been craving - not only for the physicality of a warm snuggle but for the shared banter, the discovery of something new and totally different, the funny stories and absurd laughter, the way Jerry's existence in our home caused me to think deeply about issues and values I had never before questioned.''

Then there's Harka, a Nepalese guide who shows up with little more than the clothes on his back and trades room and board for helping out with Ralph. He not only brings them committed care, but a whole other world view to add to the eclectic social mix.

In the end, ''Tumbling After'' is about coping with what life hands you - with determination, courage, ingenuity, a modicum of grace, and a hefty dose of humor.

''It is not the life Ralph and I planned to have together. It is not the family I had once hoped for,'' Parker writes. ''But it is a family of sorts, with all the idiosyncracies that every family, however traditional or makeshift, might have. We are not without joy or laughter or love. Ralph and I remain optimists. Somehow we'll get by.''

Tumbling After: Pedaling Like Crazy After Life Goes Downhill
By Susan Parker

Crown, 283 pp., $24

Chris Chappell
06-17-2002, 02:48 PM
ordered a copy of the book today.

After reading it I'll report back.

Onward and Upward!

antiquity
06-18-2002, 01:29 AM
Is it me or does anyone else think it's wrong that the wife sought sexual intimacy in someone beside her husband or is infidelity ok if one's spouse is disabled?

[This message was edited by seneca on Jun 18, 2002 at 03:03 PM.]

alissa
06-18-2002, 11:43 AM
Originally posted by seneca:

Is it me or does anyone else think it's wrong that the wife sought sexual intimacy in someone beside her husband or infidelity ok if one's spouse is disabled?

that depends on the couple. in the sf bay area, polyamory(sp?) is an open and accepting way of satisfying the myriad needs of a human, that truly cannot be fulfilled by just 1 person. all parties must be honest and in agreement, and maybe in parker's case they did. i sometimes think about getting an ab woman to do my hubby in a way that i admittedly can't. sorry but he really does do all the work with me. bet it'd be nice for him to just "get". i'm not saying i wouldn't have issues, which is 1 reason i just think about it, but...

peace

Chris Chappell
06-18-2002, 03:51 PM
by that too Seneca?

Is that the deal Alissa, what you've called polyamory(sp)?

Interesting perspective.

Onward and Upward!

marmalady
06-18-2002, 04:02 PM
I think the word you're after, Alissa, is 'polygamy'.

I believe that this is a private, personal issue between the people involved, and that we, on the outside, shouldn't judge one way or the other based on our own belief systems. If it works, use it. If it doesn't work, or makes any one of the parties feel uncomfortable, then don't use it.

_____________
Tough times don't last - tough people do.

Chris Chappell
06-18-2002, 04:35 PM
The discussion involves a book review and we're simply trying to figure out what was meant in the review concerning "intimacy through Jerry, physicality, etc.". It's unclear, to me at least, whether the wife is sharing full sexual intimacy with the caregiver. An important issue if you are married and sci'd.

Noone is passing judgement.

And polygamy (multiple wives / spouses), I don't believe, is the word Alissa is talking about polyamory which when broken down means multiple loves. Let's give her the benefit of the doubt shall we.

[This message was edited by Chris on Jun 18, 2002 at 07:49 PM.]

marmalady
06-19-2002, 04:37 AM
Chris, please check your email.

_____________
Tough times don't last - tough people do.

alissa
06-19-2002, 04:39 PM
And polygamy (multiple wives / spouses), I don't believe, is the word Alissa is talking about polyamory which when broken down means multiple loves. Let's give her the benefit of the doubt shall we.

exactly what I meant. thank you.
If all parties - including the sci -
are consenting adults, what's the big deal?

Chris Chappell
06-22-2002, 10:45 AM
Copy of the book arrived yesterday.

A very easy read so far, I'm on chapter 9.

The review is very accurate. I'll post more when I get to the... http://sci.rutgers.edu/forum/images/smilies/wink.gif

Onward and Upward!

marmalady
06-22-2002, 10:51 AM
Alissa - Sorry - I learned a new word!

I'm certainly not passing judgement, and if what I said was misconstrued that way, my apologies. http://sci.rutgers.edu/forum/images/smilies/confused.gif

_____________
Tough times don't last - tough people do.

alissa
06-22-2002, 04:57 PM
Originally posted by Marmalady:

Alissa - Sorry - I learned a new word!

I'm certainly not passing judgement, and if what I said was misconstrued that way, my apologies. http://sci.rutgers.edu/forum/images/smilies/confused.gif

_____________


not at all Marm.

peace,
alissa

Chris Chappell
06-24-2002, 10:24 AM
I'm on chapter 42 so far (3/4 through).

Not very impressed with Suzy Parker (author) and her ways.

Hopefully I'll find some redeeming qualities as I continue to read.

Interesting characters though throughout.

Onward and Upward!

Sue Pendleton
06-24-2002, 08:39 PM
From the odd memory bank of terms learned before I dropped Cultural Anthropology:

Polygamy--multiple spouses of the opposite sex ie bigamy etc.
Polygyny--multiple wives
polyandry--multiple husbands
And after reading a spoof book titled Walden 2; polyamorous can mean any kind of group marriage.

Is this book better than Still Me?

antiquity
06-24-2002, 09:00 PM
Originally posted by Chris:

I'm on chapter 42 so far (3/4 through).

Not very impressed with Suzy Parker (author) and her ways.


Onward and Upward!

Why not, what's going on? I got the impression that she no longer viewed her husband as an adult male and instead came to see him as irrelevant and insignificant. I know it's written from the POV of a wife/caregiver but is any attention given to his feelings?

Chris Chappell
06-25-2002, 01:53 PM
I'm on chapter 50 something.

Still not impressed by the book.

Sue, no not better than Still Me.

Seneca, you nailed it. Exactly. She (Suzy Parker) imo completely disregards her husband's feelings. Referring to him as "frozen" all the time and showing very little compassion for his feelings. No longer a wife but an administrator of his care.

I think she's a tart. Selfish, angry, bitter, sarcastic, mean and spoiled. Her comments are caustic "sticking my finger up Ralph's anus so he could shit" for example. Sleeping (openly) with her husband's (Ralph) care giver a 60 something man named Jerry who, as a black ex-con, brings a lot of "baggage" with him. (white ex-cons probably have similar baggage. No stereotypes here.) And she treats Ralph with an underlying disdain. (I think its obvious to the sci population).

I could go on and I'm sure there are people who will get a kick out of her somewhat witty and dark humor but I don't. I think she's a nasty bi#*!

We'll see how it ends maybe I'll change my mind / opinion but I doubt it.

Onward and Upward!

Chris Chappell
06-29-2002, 01:53 PM
Finished the book Thurs. night.

Not impressed with the author or entertained by the material. Suzy Parker is a tramp. I wouldn't spend the money.

If anyone has any questions please let me know.

Obviously the review above was written without knowing a clue about life as an sci or as a caregiver.

Onward and Upward!

alissa
07-03-2002, 01:55 PM
I just read the book, and think maybe you're being too harsh.
She too lost her life as she knew it and planned for it and should be given some slack in the way she chose to adjust to her new life. Although she did get herself sexual, physical and emotional support elsewhere,(which i don't condone per se)her husband did seem inaccessible and withdrawn. It sounded like they had no means of communication and he wasn't providing any support for her. I remember the first 2 years of my new life, and i didn't give a rats ass about how those around me had to reconfigure their lives around me. After all, they han't lost any of their abilities, so they should just deal. Maybe i'm just abnormally selfish, but i doubt i'm alone.

I also know a handful of overmedicated quads, and they can't even carry on a conversation. I don't blame them, but I also don't go out of my way to be around them.

And ultimately she stayed - out of love for her husband. She took good care of him and didn't run out partying every night. How many of us had committed relationships b4 sci and are still with that same person? How many of us would have stayed if that partner became injured instead of us?
I've had many fingers up my butt, but can't honestly say i could have done that for someone else b4.

Anyway, although i didn't think it was a great book, i feel as though i finally got a glimpse into a caregiver's perspective, and hopefully will be better able to communicate with my husband and close family- more respectful of their role in sci.

just my humble opinion-

peace

kate
07-23-2002, 01:38 PM
Okay, I thought the review and all your comments were intriguing, so I just bought and read the book. I think it's worth a look, in spite of some questionable parts, such as:

Why did she only try to get intimate with Ralph once, and that just after he got home? One try?? With a newly injured C4 complete? This just seems out of character for the person who then went on to hang in there for the next 8 years. Something is off. His heart wasn't in it that one and only time, so never bother again?

She's awfully proud of herself for how open her eyes have become to the existence (and value) of "those less fortunate". I got a little twinge every time she started going on about how in former days she would have crossed the street to avoid the people who've now become her support system. Good Lord, she was in her 40's when he got hurt and had been all over the world . . . had she never noticed that California is a sanctuary for the privileged and well-fed and healthy? Yeesh.

I started to think that Ralph---who is oddly invisible in this book!---was actually in very much worse shape emotionally than she wanted to know or admit. What were those two accidents in the power chair about? There aren't that many ways a C4 quad can do himself in, but the "accidents" she described could have done the job.

On the other hand:

I liked it that she copped to all her behavior and crazy thinking and bitterness and rage. Clearly she knew that her former self had missed some crucial life lessons, and clearly she was admitting that sometimes she'd rather be the old self-absorbed, action-sports, sparkplug kind of girl who could care less what it's like to have to go to the drugstore and stand in line every damn day.

She didn't try to excuse the thing with her husband's caregiver. (For those who haven't read it, she just decided to have an ongoing sexual relationship with this man, who was, what? about 5 years older than her paralyzed husband, and ready, and welcoming, and remarkably well-suited to both of his jobs. . . taking care of her and taking care of Ralph.) I think she was in an impossible situation once she'd chosen to publish this book. She couldn't very well claim any kind of integrity if she left out that little detail, so she had to include it. But she also didn't seem very clear herself about what meaning to give it--she just kept saying it was intensely comforting and felt like a huge relief. I ended up feeling sad for her, because she found it necessary to do that, and because she turned away from Ralph in such a profound way at such a fragile time.

Anyway, it was interesting to hear another wife of an sci man talk so openly about how it all worked for her. This is not easy ground, and I hope you da folks aren't judging her too harshly.

I also just read this book called "Miracles Happen", written by a mother-daughter pair. The girl was hit by a car at age 12, on the first day of 7th grade. She became a c3/4 on a vent, and the narrative carries the two of them through middle-school, high school, and finally Harvard. The mother was there all the way, in every high school class and living in the dorm at college. It's an interesting counterpoint to Suzy Parker's story!

Kate

Chris Chappell
07-23-2002, 02:11 PM
Kate, good comments about Suzy Parker. Much better said than me. I tended to side with Part 1 of your review but recognize the validity of Part II. Quite possibly because I'm injured (C6-7) as well.

The other mother/daughter relationship (I want to say her name is Ellison? Brooke Ellison maybe?) is a wonderful story also recently featured in Biography magazine.

Good review Kate.

Onward and Upward!